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	<title>storytelling &#8211; medhum.org</title>
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	<description>Cultivating empathy &#38; critical thinking in health, culture &#38; the arts</description>
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		<title>Meet the Medhum Team: Dr. Tony Miksanek</title>
		<link>https://medhum.org/interview/practitioner-interview/dave_hsu/meet-the-medhum-team-dr-tony-miksanek/</link>
					<comments>https://medhum.org/interview/practitioner-interview/dave_hsu/meet-the-medhum-team-dr-tony-miksanek/#respond</comments>
		
		<dc:creator><![CDATA[Dave Hsu]]></dc:creator>
		<pubDate>Fri, 26 Jun 2026 17:00:04 +0000</pubDate>
				<category><![CDATA[Practitioner Interview]]></category>
		<category><![CDATA[compassion]]></category>
		<category><![CDATA[empathy]]></category>
		<category><![CDATA[healing]]></category>
		<category><![CDATA[Humanities]]></category>
		<category><![CDATA[literature]]></category>
		<category><![CDATA[marathon]]></category>
		<category><![CDATA[medhum]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[patients]]></category>
		<category><![CDATA[physician]]></category>
		<category><![CDATA[reflection]]></category>
		<category><![CDATA[running]]></category>
		<category><![CDATA[storytelling]]></category>
		<category><![CDATA[trust]]></category>
		<category><![CDATA[vulnerability]]></category>
		<guid isPermaLink="false">https://medhum.org/?p=15267</guid>

					<description><![CDATA[Writer, runner, and medical humanities advocate explores storytelling, trust, vulnerability, and the human side of care.]]></description>
										<content:encoded><![CDATA[
<p class="has-palette-color-5-background-color has-background has-small-font-size wp-block-paragraph"><strong><a href="https://medhum.org/author/tony_miksanek/">Tony Miksanek</a></strong> is a retired small-town family physician. He has written two collections of short stories, <em>Raining Stethoscopes</em> and <em>Murmurs,</em> and his reviews, essays, and creative nonfiction have appeared in many publications over the years. He is also an avid runner who has completed many marathons. This interview took place in February 2026, after Tony had just completed another half-marathon.</p>



<p class="wp-block-paragraph"><strong>DAVID HSU: Tell me a little bit about this half-marathon business. What&#8217;s going on with that?</strong></p>



<figure class="wp-block-image alignright size-full is-resized"><img fetchpriority="high" decoding="async" width="480" height="640" src="https://medhum.org/wp-content/uploads/2026/06/TonyMiksanek-rotated.jpg" alt="" class="wp-image-15279" style="width:250px" srcset="https://medhum.org/wp-content/uploads/2026/06/TonyMiksanek-rotated.jpg 480w, https://medhum.org/wp-content/uploads/2026/06/TonyMiksanek-225x300.jpg 225w" sizes="(max-width: 480px) 100vw, 480px" /></figure>



<p class="wp-block-paragraph">TONY MIKSANEK: I&#8217;ve been running for a number of years, which I truly enjoy, and I&#8217;ve done ten full marathons, one ultra marathon, and God knows how many half-marathons. But as I get older, I&#8217;m leaning more toward the half-marathon as the longest distance I like running.</p>



<p class="wp-block-paragraph"><strong>DH: So how did this one go? Was it good?</strong></p>



<p class="wp-block-paragraph">TM: Yeah. This one was in Florida. The weather was beautiful. There were about 20,000 people, and it was at Disney World. So you run through the Cinderella Castle, you&#8217;ve got all the characters high-fiving you on the course. It&#8217;s great. I think I originally got into running as a sort of release from medical practice, where you can be outside, mindful of your surroundings and your breathing and your foot striking the pavement. Since then, it&#8217;s become just short of an obsession. A good one, a good obsession. But I&#8217;ve often thought about the similarities between running and medicine. The greatest similarity is that both endeavors require a pair of comfortable shoes because you&#8217;re on your feet all day practicing medicine. There&#8217;s also a rhythm to running, which is a very individual, personalized thing. And, of course, there&#8217;s a rhythm to our practice. The flow of taking care of patients and our style in interacting with them. In running, you have to build up a core. We call it a core of mileage that your body gets acclimated to. In practice I think that core is sort of like developing trust in the physician-patient relationship. You have to work on that. You know that saying, &#8220;trust is hard to earn but easy to lose?&#8221;</p>



<p class="wp-block-paragraph"><strong>DH: Let&#8217;s talk a little bit about medical humanities. You mentioned that running was something that you did to put your head in a different space from your regular work. I assume that medical humanities would also be something that gives you a diversion from your regular work. Is that accurate?</strong></p>



<figure class="wp-block-image alignright size-full is-resized"><a href="https://www.amazon.com/Raining-Stethoscopes-Other-Stories-Miksanek/dp/1425793371"><img decoding="async" width="296" height="445" src="https://medhum.org/wp-content/uploads/2026/06/51LOpXVw-ZL._SY445_SX342_ML2_-4235656109.jpg" alt="" class="wp-image-15290" style="width:250px" srcset="https://medhum.org/wp-content/uploads/2026/06/51LOpXVw-ZL._SY445_SX342_ML2_-4235656109.jpg 296w, https://medhum.org/wp-content/uploads/2026/06/51LOpXVw-ZL._SY445_SX342_ML2_-4235656109-200x300.jpg 200w" sizes="(max-width: 296px) 100vw, 296px" /></a></figure>



<p class="wp-block-paragraph">TM: Most of my career was spent as a small town, rural area, solo family practitioner in a former coal mining town with a population of right around 8,000 people. So medical humanities, for me, for most of my life, has always been an individual thing. I read and tried to be involved in whatever peripheral way I could with medical humanities. And I did and still do derive a lot of satisfaction, enjoyment and learning from reading great literature. We can debate what the adjective &#8220;great&#8221; means when it applies to literature, but I feel there&#8217;s so much to gain from literature. When a patient comes into our office, they usually want to tell us a story. Sometimes they&#8217;re reluctant, but usually they want to tell us a story. And my belief is that most people, to be healed, need to tell that story. But equally important is they need somebody who is invested in listening to that story, that confirms their importance. and the validity of their illness or what they&#8217;re going through. And I think literature is a really great tool to help us learn how to listen intently to patients, more fully understand their stories of life and illness, and to enhance our empathy.</p>



<p class="wp-block-paragraph">So again, my entry into medical humanities is probably unlike most of the people on our MedHum group. It&#8217;s mostly been kind of a solo route for a long time. Currently I&#8217;m an associate editor and a book editor for the Journal of Medical Humanities. I don&#8217;t know how far back you go with your practice, but once upon a time, the American Family Physician Journal, the AFP, had a regular column called &#8220;Diary from a Week in Practice.&#8221; And there were four contributors. I was one of them. I guess I was the token rural small-town doctor, because there was somebody from an urban practice and somebody from an academic practice. I forget what the fourth one was. And so we would take turns writing a column that was basically a chronicle of a week of practice like &#8220;what were the highlights, what were the lowlights.&#8221; I think that was important for me, because at the time, that was probably my version of reflective writing, even though it was produced in a form that would be published. You know, being a doctor is tough, albeit a wonderful, often joyful, profession. Running gave me an opportunity, I think, to kind of put myself in a place where I can sustain joy and the dedication that was required, especially being a small-town doctor where your patients are your neighbors. You run into them at church or the grocery store. The land is the connecting fabric for a small-town doctor. I mean, your kids&#8217; friends are almost always your patients. So it&#8217;s a very vivid, organic, dynamic relationship.</p>



<p class="wp-block-paragraph"><strong>DH: How big was your practice? How many patients did you have?</strong></p>



<p class="wp-block-paragraph">TM: I practiced in our town for a little over 30 years, as a solo family physician, 24/7, unless it was time for vacation or a meeting. And then, you know, I had an agreement with a couple other physicians for coverage if we were gone, but it was a very full practice. The only thing I didn&#8217;t do as a family physician was OB.</p>



<p class="wp-block-paragraph">I loved to make house calls. I used to make them in my Jeep Cherokee. And I&#8217;ll never forget the first house call I made. I brought my nurse with me because I was new to town, and I didn&#8217;t really know where the address was. And we pulled up in front of this very, very small, weathered house. And I remember as they opened the door to let us in, the floor was dirt. It was a dirt floor. And having been born and raised in Chicago and then later some of the suburbs, I was dumbfounded. That was really my experience — people that were really struggling to make a living. But the dirt floor was, I mean, it sounds like an oxymoron, but it was clean. And the home was well-kept. There were a lot of eye-opening experiences being in a small town.</p>



<p class="wp-block-paragraph"><strong>DH: What&#8217;s the name of the town?</strong></p>



<p class="wp-block-paragraph">TM: Benton. Illinois. Wonderful town. Great people.</p>



<p class="wp-block-paragraph"><strong>DH: How did you stumble across the humanities and arts connection to medicine? Was this something that you were aware of as a student or at some point as you started working you started to realize that novels had something to do with your job? How did you make that connection working solo?</strong></p>



<p class="wp-block-paragraph">TM: I&#8217;ve always been an avid reader, as I think most physicians are. And actually, I got a head start because our medical school, the medical school I attended and where I am now a volunteer faculty in the Department of Medical Humanities, was one of the first medical schools in the country to actually have an independent medical humanities department. So as a student, I was already interested in medical humanities. I guess as a prelude to that, as an undergraduate student at the University of Chicago, we had what they called a core curriculum when that was not a popular thing. Every student, no matter what your major was, had to have competence in basically all the major disciplines. So, if you were going to be a biochemistry major, you still had to take the History of Western Civilization, Art Appreciation, etc.</p>



<p class="wp-block-paragraph">I&#8217;ve always been involved with literature. Once upon a time, JAMA and the New England Journal had book review sections, and I did book reviews for those two journals. The sad thing is, they haven&#8217;t had a book review section for a number of years now. There&#8217;s no interest, I presume? I don&#8217;t know. They just kind of vanished in the night. So, during my early years of clinical practice, I was writing reviews mostly for JAMA. They would send me all kinds of books, some of which were very peripherally connected with medicine. And so I think maybe when they had a book that looked interesting, they would say, &#8220;well, we&#8217;ll just send it to Tony.&#8221; Which was great. But that was in the days even before internet. I remember I would be sitting at my kitchen table with a typewriter typing these reviews to mail to JAMA or New England Journal. And it was kind of wild. But life was so much simpler then, too, on the other hand. Anyway, I would say that medical school, a love of literature, getting involved in book reviewing from early in my career was kind of the springboard for me, into medical humanities.</p>



<p class="wp-block-paragraph"><strong>DH: Can you give us a few medical humanities book titles that we can spotlight for the audience?</strong></p>



<p class="wp-block-paragraph">TM: One book that I really was impressed by was <em>Do No Harm.</em> There’s an aphorism in medicine, &#8220;do no harm.&#8221; That&#8217;s the title. And it was written by a neurosurgeon in England by the name of Henry Marsh. It’s a beautiful book because like the very best memoirs, he presented his vulnerability as an individual and as a physician, a surgeon, so beautifully. You couldn&#8217;t help but be moved by his sincerity. In fact, he had a line, I&#8217;m paraphrasing it, but the line was something like, &#8220;I am a vessel for my patients to pour their misery into.&#8221; And you know, on the one hand you can say, &#8220;well, that sounds a little pontificating, a little arrogant,&#8221; but on the other hand, it&#8217;s like, &#8220;isn&#8217;t that part of the job description?&#8221; So that would be one: <em>Do No Harm</em>. Another by a physician author is <em>Cutting for Stone</em>.</p>



<p class="wp-block-paragraph"><strong>DH: By Abraham Verghese.</strong></p>



<p class="wp-block-paragraph">TM: He’s out at Stanford and he&#8217;s written a lot. <em>The Tennis Player</em>, and others, but <em>Cutting for Stone</em> is one of these lengthy novels that you&#8217;re reading and you&#8217;re like, &#8220;this author&#8217;s all in.&#8221; He&#8217;s not saved any good stuff for another book. It&#8217;s just all there. So that&#8217;s another one I would recommend to people.</p>



<p class="wp-block-paragraph">I&#8217;m also a very big fan of Richard Selzer because first of all, most are short stories or short essays you can read in a single sitting. I&#8217;ve met him a number of times and he admits that he lies, because these are not true stories necessarily, and they may have had their genesis in some kernel of truth. So there is a lot of exaggeration and hyperbole but there&#8217;s still something that he&#8217;s able to successfully impart to the reader about a doctor&#8217;s vulnerability. When I trained, we were told to suppress our emotions and have clinical detachment. You can&#8217;t survive if you get too involved with your patients. And of course there is truth to that. It can get to the point where you lose yourself in someone else&#8217;s situation and it&#8217;s not healthy for you or them. But I think we&#8217;re in a renaissance of saying, &#8220;Okay, maybe you can&#8217;t be too empathetic, but it&#8217;s okay to be vulnerable.&#8221; We&#8217;re not superheroes. I still struggle with that.</p>



<p class="wp-block-paragraph">I had a lot of older folks in my practice who were huggers. Early on, I was always like taking a step backwards as they were lunging toward hugging me. But then my nurse, in her wisdom, said, &#8220;You know, they need to hug you.&#8221; That&#8217;s how they&#8217;re acknowledging your value to them and what you mean to them. I&#8217;ve done a lot of thinking about vulnerability and physicians. What is the optimum amount of being vulnerable? In the old days, if we had a very difficult situation, we would just go in our office, close the door, and have a cry. I mean, we would weep. We would never think of demonstrating our sorrow in front of a patient or something. And I think that comes from the training back then. But as you know, there&#8217;s no template for being a good physician. And it&#8217;s kind of a learning experience for all of us.</p>



<p class="wp-block-paragraph"><strong>DH: It has something to do with how to be a good human being.</strong></p>



<p class="wp-block-paragraph">TM: Yes, exactly. And I think the whole point of medical humanities, as I alluded to earlier, is about that soul, that spirit of medicine, which is not just about how we practice medicine and interact with other people, but also with being self-aware of who we are, what we can offer, what our strengths and our weaknesses are, and trying to embrace both. Understanding that there are things we don&#8217;t do as well as we&#8217;d like, things we could do better. But again, it goes to that understanding of our vulnerability and accentuating our strengths and trying to minimize our weaknesses, while understanding that all human beings are some unequal combination of both.</p>



<p class="wp-block-paragraph"><strong>DH: Switching gears a little, as a retired family physician, what&#8217;s your view of medicine today? Is it pessimistic? Is it optimistic? Do you think we&#8217;re moving in the right direction or are things worse than they were back when you were going through it?</strong></p>



<p class="wp-block-paragraph">TM: I think medicine is a completely different enterprise now than it used to be. I remember the joy of holding a paper chart and writing my notes with a pen on paper. I think my notes were adequate or good, but they had just the right amount of information that was necessary. There was nothing superfluous when you had to write your own note because you had a certain amount of time that you wanted to get the note done in. And I understand the utility of the electronic health record and its portability. But I think there&#8217;s something about looking a person in the eyes, giving them 100% attention, and even though back in the day I used to scribble down some notes so I wouldn&#8217;t forget certain things, 90% to 95% was just one-on-one. And then after the visit, I would write the note in the chart, or later I had the ability to dictate a note, which was great. So I think the electronic health record, on balance, has been a detriment to the practice of medicine.</p>



<p class="wp-block-paragraph">Also, the amount of time you spend with a patient has become very restricted. For example, I was very cognizant of people waiting in the waiting room. Back at my peak, I was seeing 30 to 35 people a day in the office. In addition, I admitted and cared for all my patients requiring hospitalization. The local hospital that we have, 50 beds, still does not have a hospitalist. And so you had to make rounds. You took care of people in the ICU. You saw your patients in the ER. It was a full-service experience for patients and the physician. It was hard. There&#8217;s no question. But there was something very gratifying about being able to do all those things right and being a small-town doctor. People just called you at home. We had one rule in the house, and the rule was that as a family — we had three children — we would all have dinner together and that one hour was just for us. What happened with the kids during the day at school and their activities and how work for my wife went. And I just remember laughing and laughing, but we carved out that time. But otherwise, it was all hands on deck all the time. SoI think medicine is different. Whether it&#8217;s better or worse, I don&#8217;t know.</p>



<p class="wp-block-paragraph">I really do feel sad that we&#8217;ve become such a technological profession. You hear students saying, &#8220;Well, what&#8217;s the point of trying to listen to a murmur? We&#8217;ll just get an echocardiogram.&#8221; Back in the day, you relied on your clinical acumen and you formulated your differential diagnosis. And then you thought, &#8220;well, what is the most likely diagnosis?&#8221; And then you would do testing to support that diagnosis or refute it and move on. And now I feel it&#8217;s like people immediately get tested.</p>



<p class="wp-block-paragraph">We used to have to listen to people. You probably have the same experience. I think all medical students do. You have some wise professor that says 90%, 80%, 85% of the time, the patient will tell you exactly what&#8217;s wrong. You just have to listen to them. You may have to nudge them a little bit to give you more information. But now I don&#8217;t know that we&#8217;re giving people enough time to tell us what is really wrong with them before we kind of take the leap to do these tests. And I think, unfortunately, patients are getting so comfortable with the notion of getting tests that that is all they want. I&#8217;ve had patients that say, &#8220;Well, can we do a CAT scan? Can we do this or that?&#8221; Of course we can do it, but tests come with risks. False positives, incidentalomas, radiation exposure in some cases and so on. So on balance I&#8217;m going to say, although it was not Nirvana or Eden back in the day, and we had our own issues and problems, it seemed closer to the aim of healing.</p>



<p class="wp-block-paragraph"><strong>DH: Well said. What would you like to see MedHum do in the coming months and years?</strong></p>



<p class="wp-block-paragraph">TM: I think what I would like to see is just MedHum continue on its trajectory and grow to become a go-to resource for people interested in medical humanities or just people that are curious about medicine in general. I would like to see the website continue to grow and become a valued resource where people, if they&#8217;re interested in the depiction of medicine in the humanities and in the culture of medicine, they can read articles, they can listen to podcasts. There&#8217;s a lot of interesting material on the website already. I think as we grow and expand and include more contributors, the possibilities are limitless for what it can become.</p>



<p class="wp-block-paragraph"><strong>DH: That was great. I had a good time. We should do this again.</strong></p>



<p class="wp-block-paragraph">TM: Me too. We’ll look forward to talking again.</p>



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<h4 class="wp-block-heading hide-print">Posts Written by Dr. Tony Miksanek</h4>



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		<title>Disability as a Plot Device in Tuner</title>
		<link>https://medhum.org/review/film-review/rudy_malcom/disability-as-a-plot-device-in-tuner/</link>
					<comments>https://medhum.org/review/film-review/rudy_malcom/disability-as-a-plot-device-in-tuner/#respond</comments>
		
		<dc:creator><![CDATA[Rudy Malcom]]></dc:creator>
		<pubDate>Thu, 25 Jun 2026 13:28:25 +0000</pubDate>
				<category><![CDATA[Film Review]]></category>
		<category><![CDATA[Video]]></category>
		<category><![CDATA[adaptation]]></category>
		<category><![CDATA[audiology]]></category>
		<category><![CDATA[chaos]]></category>
		<category><![CDATA[cinema]]></category>
		<category><![CDATA[Disability]]></category>
		<category><![CDATA[ethics]]></category>
		<category><![CDATA[hearing]]></category>
		<category><![CDATA[hyperacusis]]></category>
		<category><![CDATA[illness]]></category>
		<category><![CDATA[narrative]]></category>
		<category><![CDATA[quest]]></category>
		<category><![CDATA[representation]]></category>
		<category><![CDATA[restitution]]></category>
		<category><![CDATA[stigma]]></category>
		<category><![CDATA[storytelling]]></category>
		<guid isPermaLink="false">https://medhum.org/?p=15301</guid>

					<description><![CDATA[How Tuner transforms disability into a cinematic superpower]]></description>
										<content:encoded><![CDATA[
<h4 class="wp-block-heading">Directed by Daniel Roher</h4>



<p class="wp-block-paragraph"><em>Tuner</em> follows Niki White (played by Leo Woodall), the apprentice of piano tuner Harry Horowitz (Dustin Hoffman), and a tragic genius. Once a gifted pianist, Niki developed hyperacusis—an increased sensitivity to sound that prevents him from playing the piano and requires him to wear hearing protection at all times. After Harry forgets the combination to his safe, Niki teaches himself to open it by listening to the lock’s subtle sounds. When Harry is later hospitalized, Niki begins cracking safes to pay off his mentor’s mounting medical debt.</p>



<p class="wp-block-paragraph">By the film’s second act, Niki’s increasingly dangerous work jeopardizes both his safety and his relationship with his girlfriend Ruthie (Havana Rose Liu), leaving him to confront the consequences of his actions. When Niki makes amends in the third act, Uri (Lior Raz), the leader of the criminal group in which he has become entangled, viciously beats him. The injury costs him part of his hearing but enables his return to the piano.</p>



<p class="wp-block-paragraph"><em>Tuner</em> is engaging, beautifully constructed, and emotionally resonant. At the same time, it turns disability into a plot device. Marking director and co-writer Daniel Roher’s fiction debut, the film fully embraces the artistic license afforded by the genre, casting hyperacusis as a superpower rather than focusing on the condition’s often debilitating effects.</p>



<p class="wp-block-paragraph">To be fair, Niki mentions that, at one point, even the sound of his own voice was agonizing. He is constantly on guard against potentially harmful sounds. When confronted with barking dogs, smoke alarms, air horns, and gunshots, he winces and clutches his ringing ears.</p>



<p class="wp-block-paragraph">But the impact is fleeting. In real life, exposure to noises like these can permanently worsen hyperacusis. Furthermore, the hearing disorder is not a “superhuman” tool; many individuals with hyperacusis show normal hearing thresholds. For those with milder cases, everyday sounds like a running dishwasher can cause significant discomfort. In more severe cases, even near silence can be excruciatingly painful. One wonders how Niki could tolerate the clicks, clacks, and whirs of piano keys and combination locks (another creative liberty: modern safes are designed to thwart auditory decoding).</p>



<p class="wp-block-paragraph">As disability studies scholar Rebecca Garden argues, there are “tensions between the lived experience of illness… and the conventions that shape the representations of those experiences in published narratives.” [1] In other words, the demand for drama often precludes verisimilitude, instead favoring a happy ending of triumph over adversity. Niki’s liberation from his condition is narratively satisfying; another, if less commercially successful, film might depict a similar character learning to live with it.</p>



<figure class="wp-block-image alignright size-large is-resized"><img decoding="async" width="662" height="1024" src="https://medhum.org/wp-content/uploads/2026/06/9780226004976-900722339-662x1024.jpg" alt="" class="wp-image-15306" style="width:280px" srcset="https://medhum.org/wp-content/uploads/2026/06/9780226004976-900722339-662x1024.jpg 662w, https://medhum.org/wp-content/uploads/2026/06/9780226004976-900722339-194x300.jpg 194w, https://medhum.org/wp-content/uploads/2026/06/9780226004976-900722339-768x1187.jpg 768w, https://medhum.org/wp-content/uploads/2026/06/9780226004976-900722339.jpg 828w" sizes="(max-width: 662px) 100vw, 662px" /></figure>



<p class="wp-block-paragraph">In his seminal text <em>The Wounded Storyteller: Body, Illness, and Ethics</em> (2013), sociologist Arthur Frank enumerates three types of illness stories: restitution, chaos, and quest. The restitution narrative “has the basic storyline: ‘Yesterday I was healthy, today I’m sick, but tomorrow I’ll be healthy again,’” the chaos narrative “imagines life never getting better,” and the quest narrative “accept[s] illness and seek[s] to use it.”</p>



<p class="wp-block-paragraph"><em>Tuner</em> follows a kind of restitution storyline: Yesterday Niki was a healthy prodigy, today he cannot perform because he is sick with an exploitable “superpower,” but tomorrow a thief will effectively cure him by rupturing his eardrums. The film also features aspects of the quest narrative; to quote Frank, Niki “returns as one who is no longer ill but remains marked by illness”—that is, no longer hyperacusic but partially deaf. Niki is figuratively reborn with a new purpose, embodying the film’s Spider-Mannish moral logic: “With great power comes great responsibility.”</p>



<p class="wp-block-paragraph">Despite these quest elements, Niki’s story remains fundamentally a restitution narrative. Frank notes that such narratives are “culturally preferred” and calls for “an enhanced tolerance for chaos.” To that end, future films might engage more directly with the lived experience of hyperacusis. Ultimately, however, Roher’s approach is understandable and even commendable, using the possibilities of cinema to draw attention to some of the challenges of a rare, if romanticized, disability.</p>



<p class="has-palette-color-5-background-color has-background has-small-font-size wp-block-paragraph">[1] Garden, Rebecca. “Telling Stories about Illness and Disability: The Limits and Lessons of Narrative.” Perspectives in Biology and Medicine, vol. 53, no. 1, 2010, pp. 121–135.<br><br>Photo credit: Black Bear</p>



<p class="wp-block-paragraph"></p>



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<iframe loading="lazy" title="Tuner Trailer #1 (2026)" width="1310" height="737" src="https://www.youtube.com/embed/AKfGU0kUHQc?feature=oembed" frameborder="0" allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share" referrerpolicy="strict-origin-when-cross-origin" allowfullscreen></iframe>
</div></figure>
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		<title>Meet the MedHum Team: Dr. Jacalyn Duffin</title>
		<link>https://medhum.org/interview/practitioner-interview/dave_hsu/meet-the-medhum-team-dr-jacalyn-duffin/</link>
					<comments>https://medhum.org/interview/practitioner-interview/dave_hsu/meet-the-medhum-team-dr-jacalyn-duffin/#respond</comments>
		
		<dc:creator><![CDATA[Dave Hsu]]></dc:creator>
		<pubDate>Thu, 23 Apr 2026 13:30:34 +0000</pubDate>
				<category><![CDATA[Practitioner Interview]]></category>
		<category><![CDATA[authority]]></category>
		<category><![CDATA[compassion]]></category>
		<category><![CDATA[critique]]></category>
		<category><![CDATA[culture]]></category>
		<category><![CDATA[education]]></category>
		<category><![CDATA[empathy]]></category>
		<category><![CDATA[ethics]]></category>
		<category><![CDATA[healing]]></category>
		<category><![CDATA[history]]></category>
		<category><![CDATA[humanity]]></category>
		<category><![CDATA[medhum]]></category>
		<category><![CDATA[medical humanities]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[Memory]]></category>
		<category><![CDATA[narrative]]></category>
		<category><![CDATA[storytelling]]></category>
		<guid isPermaLink="false">https://medhum.org/?p=13125</guid>

					<description><![CDATA[David Hsu sits down with physician and historian Dr. Jacalyn Duffin to catch up about life, medical humanities and MedHum. ]]></description>
										<content:encoded><![CDATA[
<p class="has-palette-color-5-background-color has-background wp-block-paragraph"><strong>Office Hours</strong>&nbsp;<br>David Hsu sits down with physician and historian Dr. Jacalyn Duffin to catch up about life, medical humanities and MedHum.&nbsp;</p>



<p class="wp-block-paragraph"><strong>DAVID HSU: What do you think is the importance of medical humanities to you at this point?</strong>&nbsp;</p>



<figure class="wp-block-image alignright size-full is-resized"><img loading="lazy" decoding="async" width="600" height="600" src="https://medhum.org/wp-content/uploads/2025/12/phkb6r2civ589o0516pioiuh8l-e1713891326759-600x600.jpeg.webp" alt="" class="wp-image-13130" style="width:280px" srcset="https://medhum.org/wp-content/uploads/2025/12/phkb6r2civ589o0516pioiuh8l-e1713891326759-600x600.jpeg.webp 600w, https://medhum.org/wp-content/uploads/2025/12/phkb6r2civ589o0516pioiuh8l-e1713891326759-600x600.jpeg-300x300.webp 300w, https://medhum.org/wp-content/uploads/2025/12/phkb6r2civ589o0516pioiuh8l-e1713891326759-600x600.jpeg-150x150.webp 150w" sizes="auto, (max-width: 600px) 100vw, 600px" /><figcaption class="wp-element-caption"><a href="https://medhum.org/author/jacalyn_duffin/">Dr. Jacalyn Duffin</a></figcaption></figure>



<p class="wp-block-paragraph">JACKIE DUFFIN: I think it is a very satisfying way of filling in the gaps that are generated by traditional medical training and medical experience. It invites reflection, and it invites growth, and it especially encourages criticism. And those things were certainly not there in my training. Therefore, it is comforting and inspiring, both of those things for me.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph"><strong>When you say it that way, there&#8217;s a certain subversive quality to medical humanities. Am I catching your answer right?&nbsp;</strong>&nbsp;</p>



<p class="wp-block-paragraph">Yes, I guess that is exactly right. Subversiveness goes with the territory of what we do as historians as well. Everyone thinks that history is about the past, but the questions that we ask of the past are generated by the present and also the inherited wisdom that we have. And there has to be curiosity and a willingness to admit that the trajectory might not have been as straightforward as is sometimes pretended.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph"><strong>How do you respond to the saying that basically history is written by the victors?</strong>&nbsp;</p>



<p class="wp-block-paragraph">That statement is also a reminder that what might be out there as the master narrative isn&#8217;t exactly the truth or isn&#8217;t exactly the whole story. And the losers will have their own story. And sometimes that&#8217;s worth exploring. Of course, my view of medical humanities is very much affected by the fact that I am a historian. And more than any other aspect of medical humanities … that&#8217;s what interests me the most. In fact, I don&#8217;t mind admitting that the medical humanities boom that we&#8217;ve witnessed in the last decade and a half or so has been a wonderful vehicle for enhancing the presence of history in medical schools​,​ and our visibility. I&#8217;m happy to hitch my wagon to it, but I don&#8217;t claim any expertise in all the other disciplines that participate.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">One of the things I think is useful for history with respect to ​present and ​future doctors is how history is a mirror image of the clinical process and the scientific process. And that&#8217;s something that I raise​d​ with my students all the time when I was teaching, that you begin with a question. As medical practitioners, you ​also ​have a question​;​ ​i​t is the chief complaint of the patient. What is wrong with me? Why do I feel this way? And as a doctor, you consult the patient, you explore the history, you do the physical examination, and then you touch base with the clinical wisdom that&#8217;s available to you through ​the medical ​literature. And you come up with a diagnosis, which ​​determines the direction of action. As a historian, you have the question​:​ where did this come from? Or why do we do this? Or what happened then? And with your question, you interrogate the past, looking at all of what has already been published, which is the equivalent of the medical literature, but also looking at things that have been ignored, like the stories of the losers, for example. And you come up with an interpretation. And that is a direct parallel with the ​process of ​diagnosis. You can push this even further to make an analogy with a scientific experiment where you have the hypothesis, the method, et cetera, and you come up with a conclusion. I think that demonstrating history as a discipline to healthcare professionals opens up their imaginations to seeing the practice of what they do is something that&#8217;s malleable, that&#8217;s anchored in time, that&#8217;s affected by culture and society. So, my role in the medical school was to do that. It was a privileged position. But I had no idea how successful I ever was. I have a sneaky suspicion that a lot of my faculty colleagues and maybe a large number of the students just thought I was there for comic relief and entertaining stories to be told in the meantime. That&#8217;s okay. I accept that if that gave me permission to weasel my way into the curriculum or introduce new ideas.&nbsp;</p>



<p class="wp-block-paragraph"><strong>Tell me a little bit about this medical humanities boom over the last 15 years. What&#8217;s going on?&nbsp;</strong>&nbsp;</p>



<p class="wp-block-paragraph">As you know, medical schools are evaluated. They&#8217;re accredited by committees. And things come along that are the flavor of the month. ​P​rior to the medical humanities boom, there was an ethics boom. Many medical schools didn&#8217;t have ethics, but they looked around and they thought, oh, we better get ethics because everyone has ethics. If they got ethics, it made them look ethical. That happened in the 90s. I saw that as a real problem for people teaching history of medicine. I got along great with our ethicist at Queen’s. It wasn&#8217;t her fault, but she was my biggest enemy. Because if the school had to devote some time to what they called ​“​soft science,​”​ they would rather have the ethicist than the historian because the ethicist got them brownie points on the accreditation. ​​&nbsp;</p>



<p class="wp-block-paragraph">​​T​here was a time when the American Association for the History of Medicine was meeting in Chicago in May 2014. And we happened to be meeting at the same time as the Academy for Professionalism in Healthcare. So the brass of the American Association asked to have a meeting with their leaders to find out how they managed to convince all the medical schools they needed ethics and in particular succeeded in having questions about ethics education in the exit surveys. They did not really understand our problem. I think ethics had the media going for it and the power of a number of ​high-profile​ malpractice cases that had come along. ​It​ became obvious that patients wanted to make sure their doctors were legal and ethical, and ​t​he schools wanted to give the students tools to address these concepts. It became almost urgent.&nbsp;</p>



<p class="wp-block-paragraph">In fact, I did some Medline searches on this at the time. The number of articles addressing history of medicine basically tanked. And the number of articles addressing medical ethics soared. There was always an interest in medical ethics. It goes way back. Hippocrates even talks about this. And then there was codification in the 18th century. But what ​arose ​in the late 20th century was this concern that it should be transferred to the students as some kind of rubric that would help them in their future to ​educate them and help them ​behave ​ethically. ​And then that sort of plateaued and along came medical humanities.&nbsp;</p>



<p class="wp-block-paragraph">Accreditation saw ​​this as very good for student life. They saw it as very good for student education. If you could enhance the possibility of getting a positive accreditation of your medical school, then you would acknowledge that you should have something called medical humanities. But under that umbrella, there could be just about anything. And that&#8217;s the problem with it as a discipline. It doesn&#8217;t really have a single method. It embraces so many other sorts of​ fields​. That&#8217;s the beauty of it, but it&#8217;s also the confusion of it when it tries to make its way in a curriculum that is as rigid as a medical school structure.&nbsp;</p>



<p class="wp-block-paragraph">In Canada we now have a society for ​Medical Humanities, the Canadian Association for Health Humanities​. I&#8217;ve attended some of the meetings but the disappointing thing about it from my perspective is there&#8217;s almost never anything about history.&nbsp;</p>



<p class="wp-block-paragraph"><strong>I&#8217;m curious. If history is not emphasized as part of medical humanities what is</strong>?&nbsp;</p>



<p class="wp-block-paragraph">Presumably it&#8217;s ethics again and reactions to technology. I think ethics underpins a lot of it​,​ but medical ethics is a very distinct discipline​,​ as is history. We&#8217;re not the same thing. We respect each other but we&#8217;re very different. So medical humanities usually include, at the Canadian meetings at least, a lot of literature, of readings, both fiction and nonfiction. It includes the arts, music, poetry, visual imagery, trauma, drama, dance, etc. And often the papers in the meetings that I&#8217;ve attended are​ almost all​ about individual case studies​: ​e.g, “We tried this at our medical school​;​ and then we did an after​-​survey about whether it worked or not. Of course, our students loved it because it was fascinating​,​ and it wasn&#8217;t memorizing the elements in the periodic table. It was something that took them out of themselves.” Often medical students have other hobbies before they get to medical school, which are sadly neglected because there&#8217;s no time for anything else. And these activities provide an outlet for them to recover their previous selves and their identity.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">I think another agenda of ​Medical Humanities ​is to raise awareness of the differences between peoples &#8212; the difference between your patients, for example, and yourself, and to be prepared to tolerate it. So that&#8217;s a subliminal message of many of these things, causing you to see the world and other people in a different and more tolerant way. That&#8217;s basically what goes on in the medical humanities conferences. People get very excited about these opportunities, a drama presentation, a collect​ive​ reading, something that they might have done together, or artwork that medical students do based on their clinical learning and then having a show about it. That kind of thing gets reported. And then &#8230; it sort of sinks into an oblivion until the next meeting comes ​​​​along.<strong>&nbsp;</strong>&nbsp;</p>



<p class="wp-block-paragraph"><strong>So it sounds like the way you&#8217;re describing it, there&#8217;s a little bit of the study of history of medicine versus medical humanities. The two are not fully in sync in your mind.&nbsp;</strong>&nbsp;</p>



<p class="wp-block-paragraph">No, they&#8217;re not fully in sync in my mind, but I accept and welcome history being seen as part of ​ ​medical humanities. I think it&#8217;s an opportunity for us as historians to maintain our place and our credibility in medical schools.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">The presence of history in medical education has gone up and down over the centuries. There have been full-fledged chairs in History of Medicine. In a distant past, they went away​ and​ they came back. What is expected of it has probably also changed through time. But now, since it seems medical humanities is an easier way​ ​to open the door to medical schools, history can be part of it. I don&#8217;t know. It would be really interesting to find out if ethicists feel the same way as I do about it. I find that some medical humanities programs are peopled by or run by doctors who are so well-intentioned​&#8211;​ very, very well-intentioned​&#8211;​ but they really don&#8217;t have any expertise in anything but medicine. The best of them, obviously, are experienced clinicians who&#8217;ve had a lot of encounters and are thoughtful and reflective about those encounters. But there&#8217;s no method. It&#8217;s not a single discipline. It&#8217;s a quilt with a whole bunch of different patches in it.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph"><strong>What do you think about medical humanities and maybe more specifically the history of medicine as a vehicle for the broader mass of people out there?&nbsp;</strong>&nbsp;</p>



<p class="wp-block-paragraph">I&#8217;ve written ​11 ​books and the most recent one to get published is this one. [She holds up a copy of ​<em>Covid-19: A History</em>​]. What I was doing was getting it down for everyone. It&#8217;s a history for everyone. It&#8217;s not aimed at medical students or doctors or anybody in particular. It&#8217;s aimed at Canadians basically, but it talks about the whole pandemic from a global perspective. What I want to do is remind people of the personal stories that go with the pandemic, about the dilemmas of decision-making and policy choices, about the scientific endeavors that are so easy to mock or make fun of. And ​clearly,​ I&#8217;m revealing my colors. I believe in vaccines. I believed in the public health measures. I point out in this book about the value of quarantine. When you don&#8217;t know what the pathogen is and you haven&#8217;t got a clue what the incubation time is because it&#8217;s a previously unknown pathogen, quarantine is not a stupid thing to do​,​ because you are waiting to find out how dangerous it ​might ​be and put some parameters around it. I think​&#8211;​ and again, I&#8217;m speaking only from a history perspective, not medical humanities in general​&#8211;​ I think it was important to unpack what was behind those decisions that many people got so angry about. And yet they were lifesaving decisions in many cases. Sometimes perhaps it was over the top, but it was because we didn&#8217;t know what we were confronting.&nbsp;</p>



<p class="wp-block-paragraph">During that book writing, I served as a volunteer contact tracer at the Kingston ​[Ontario] ​Public Health Unit. I had to phone up citizens all over our area and get them to quarantine because they&#8217;d been in contact with someone who had COVID. That was very eye-opening for me because I realized at what level you had to pitch why it was a good thing to do. And at the outset, when we didn&#8217;t know what the parameters were, we were telling people who&#8217;d been exposed to COVID to stay home for 14 days. Kingston was the only health unit to use volunteer contact tracers, but we worked really hard and Kingston had the best ​​outcomes of COVID cases in the country for a brief time. It didn&#8217;t last forever, but it was like a flagrant, on-the-spot demonstration of something that has been known for years, since at least 14<sup>th</sup>-century plague.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph"><strong>What do you make of that now that we&#8217;re in 2025 and people are so over this stuff now</strong>​<strong>,</strong>​<strong> that</strong>​&nbsp;​<strong>there&#8217;s this feeling I get that people are saying we will never go into quarantine again?</strong>&nbsp;</p>



<p class="wp-block-paragraph">That&#8217;s why I wrote the book. Actually, I was invited to write it, and I had to think about whether I wanted to or not. One of the reasons I decided to write about it was that my thesis advisor, Mirko Grmek, wrote a history of AIDS right at the beginning of the pandemic. And I thought, well, I can&#8217;t write a history of COVID because it isn&#8217;t over and it may never be over. We may always have COVID. And then I remembered that Grmek had written that history of AIDS at the beginning of the AIDS epidemic. He set down where it came from. He studied the historical possibilities. He had the science too. I realized he was at the end of his life, and I&#8217;m at the end of my life. And I thought, OK, maybe this is what I need to do​,​ to accept the task of writing it as it is, right now. Now ​I’m very depressed​ by these negative attitudes. But I do hope that when the next pandemic comes-​-​and there will be another pandemic​,​ with a new pathogen that we haven&#8217;t seen before​,​ and there will be conspiracy theories about where it came from​&#8211;​ I hope that the public health agencies will remember that quarantine from 14<sup>th</sup>-century plague worked really well​,​ and that&#8217;s what we need to do again if we don&#8217;t want to overwhelm our finite resources in hospitals and health care units to look after people. The more you implement those measures, the fewer people die. It makes a huge difference​,​ and you can actually see it. So the story is there. Whether or not it will be believed, whether or not the argument can convince the naysayers, I have no idea. All I did was set it down and hope.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph"><strong>You have a historian hat, which is the critical, sometimes subversive side and then you also have the medical doctor establishment side, the scientific side. It gives you a unique lens to look at the COVID pandemic and the consequences that came afterwards.&nbsp;</strong>&nbsp;</p>



<p class="wp-block-paragraph">It&#8217;s been the story of my life. I worked in cancer care at the end of my career at Queen&#8217;s and patients would tell me really interesting things​.​ I loved talking to them and hearing what they thought about what was going on. And some of them held what I would think of as wacky ideas or they’d utter doctor​-​blaming ideas. Then the doctor in me would feel very defensive about their accusations of the mistakes or the neglect of my colleagues, even colleagues I&#8217;d never met. But when it comes to the history of medicine, I feel terribly responsible for the bad things that doctors may have done, even if it was not deliberate, but out of ignorance, because they didn&#8217;t know what was going to be discovered next​;​ or ​due to ​misplaced enthusiasm for something that turned out not to be as great as everybody thought it would be. And I&#8217;ve seen that with respect to certain drugs in my career. I&#8217;m old enough to remember thalidomide babies​;​ I was a child when that happened. But the impact of it was enormous​: ​what pills could do to us and how they might harm us. There&#8217;s a new biography out that I ​reviewed for ​Medhum of Francis Kelsey, the Canadian​-​born American health official who spared the United States from the damages of thalidomide. An amazing and courageous decision because there was great pressure on her to approve the drug and she didn&#8217;t. So we had the tragedy in Canada and they didn&#8217;t in the United States​,​ which was fascinating for me to learn at this stage of my life, because I remember being so horrified and ​thinking, ​how could doctors let us down?&nbsp;</p>



<p class="wp-block-paragraph">There are also other procedures that were once considered important to do that we have done away with, not because they shouldn&#8217;t ever have been used, but because something so much better came along. The most striking example of that that I remember are pneumoencephalograms. Pre-CT scans, if you thought there might be a space​-​occupying lesion in the brain, you put the patient under a sort of an anesthetic. You took out a modicum of CSF and injected the same volume of air. And then you strapped them to a chair and you ​​rotated them around, taking x-rays while the bubble of air moved all around the brain to see if there was a space​-​occupying lesion. It was brutal, painful, but it was the only way to find out if there was a space​-​occupying lesion in there. And of course, you could tell only if it was bulging on the surface of the brain. It took days for patients to recover with headache and vomiting. Every medical student in my class of​ ​1974 was required to go and witness one of these so that we would not order it frivolously. And in that same year, CAT scans were introduced and nobody would ever do a pneumoencephalogram again. Ever, ever, ever. But does that mean that all the doctors who were involved in ordering pneumoencephalograms or taking the x-rays were evildoers? I don&#8217;t think so. They were trying to help. They were trying to make a diagnosis. But it was excruciating.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph"><strong>If you could fix medical education and its relationship to history, what would you want done?&nbsp;</strong>&nbsp;</p>



<p class="wp-block-paragraph">I&#8217;ve written about this for a long time. I was so lucky at Queen’s; I really was. They let me get away with a lot. From my hire in 1988 until I retired, I thought the best way to bring history into medical education was to infiltrate it. The historian has to be very tolerant and very flexible. But what you do is you introduce the history of whatever it is they&#8217;re studying at any given time. History of anatomy in anatomy if they&#8217;re doing the anatomy course. History of physiology in physiology. History of pathology (essentially is the history of disease) in pathology. The timing really is everything because it&#8217;s synergistic with what they&#8217;re learning at the same time.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">With that method, you are preceded by a guy in a white coat, and you&#8217;re followed by a guy in a white coat. It gives you credibility vicariously by the people who are around you. But it makes it seem relevant in a way that otherwise it ​wouldn’t be​. If you make ​it ​an optional, elective course, the students automatically know that it&#8217;s not important. So, I refused to teach electives when I got hired at Queens, which meant that I had to meet every department head to beg for time to do a history session. There were 25 departments at the time, and only three said yes. They were​&#8211;​ anatomy, pathology, and obstetrics; I&#8217;m forever grateful.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">Early on, faculty members of those departments would come to my inaugural class on the history of their discipline. I think they were slightly checking out how “nice” I would be to their field: the history of obstetrics, for example. But they approved the approach. The most willing departments were those units in the medical school with a lot of curriculum hours​,​ ​s​o they were able to feel generous. ​“​We will give her an hour.​”​&nbsp;</p>



<p class="wp-block-paragraph">But one department head said to me, “I can&#8217;t do that. History, I love history. You&#8217;d be invited to give an ​after-dinner​ speech at our annual meeting. That would be really good. But we only have 80 hours in the curriculum. And if I gave you one of those hours, they might miss something important and kill somebody.”&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">I said, “Oh, thank you​,​” ​a​nd I ​went​ back to my office feeling rejected. Only later did I think of the right reply, “If you don&#8217;t give me one of your 80 hours to make them skeptical about everything else you&#8217;re going to teach them in the other 79 hours, then they really might kill somebody.” That was the answer I should have said.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">It&#8217;s about the time constraint; you can’t offer an entire course. Medical students are not going to be historians. They&#8217;re going to be doctors. So what you want to do is sensitize them to the fact that what they see as knowledge now is something that has evolved through time, through human endeavor, something that is destined to change in the future. So history is a reminder of life-long learning. And if you time it right, then it is relevant and interesting. Not all students are going to like it, but they don&#8217;t all like pharmacology either.&nbsp;</p>



<p class="wp-block-paragraph">And the other thing that the medical school let me do, bless their hearts, is to grant my wish for one question on every exam.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph"><strong>I remember this actually.</strong>&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">It was a question of credibility; a way of forcing the medical school to commit to the idea that history was important.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph"><strong>All right. To wrap up, we&#8217;ll get back to Medhum. what would you like to see us do in the months and years to come?</strong>&nbsp;</p>



<p class="wp-block-paragraph">I&#8217;m really a special interest voter on this because I was for 25 years involved with the Literature Arts and Medicine Database. And I contributed hundreds of annotations to that database​. ​I hope MedHum is a place where people who want to use literature&#8211;mostly literature is what I think of, but there​ are ​other things there, ​for example ​film​ reviews​&#8211;in a way that will deepen their understanding of a situation, or for enhancing education, or for whatever purpose, because that&#8217;s how the database was used, that it will be there, accessible to people who want those things.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">​​​​So for me, I get to go there when I feel like it. I get to browse. I get to pick around. I already knew some of the people and from our meetings, I&#8217;ve gotten to know new ones. I think you, people of your vintage​,​ should be deciding its purpose, in terms of determining the direction and the flavor of this entity, which hopefully will have a big reach and get to the people who need to see i​​t​. You​ ​​have a better sense. You&#8217;re closer to the users. I&#8217;m not trying to be gloomy about it. I just know that it&#8217;s entirely possible that it needs to go someplace that I can&#8217;t even imagine.&nbsp;</p>



<p class="wp-block-paragraph"><em>Dr. Jacalyn Duffin was the Hannah Chair of the History of Medicine at Queen’s University from 1988 to 2017. She was also a practising hematologist. In 2020, she was awarded the Order of Canada.</em>&nbsp;</p>



<p class="wp-block-paragraph"><em>More importantly, she’s one of my favorite people in the world. Medical school wouldn’t have been the same without her gentle encouragement and unending enthusiasm. Dr. Duffin, thanks for everything.</em>&nbsp;</p>



<p class="has-small-font-size wp-block-paragraph">Web image by Medhum.org</p>



<h4 class="wp-block-heading hide-print">Posts Written by Dr. Jacalyn Duffin</h4>



<div class="wp-block-ultimate-post-post-grid-parent ultp-post-grid-parent" data-grids="[{&quot;blockId&quot;:&quot;f30d20&quot;,&quot;name&quot;:&quot;ultimate-post_post-list-3&quot;}]" data-pagi="[&quot;ultp-block-29a8d6&quot;]"><div  class="ultp-post-grid-block wp-block-ultimate-post-post-list-3 ultp-block-f30d20 hide-print "><div class="ultp-block-wrapper" ><div class="ultp-loading"><div class="ultp-loading-spinner" style="width:100%;height:100%"><div></div><div></div><div></div><div></div><div></div><div></div><div></div><div></div><div></div><div></div><div></div><div></div></div></div><div class="ultp-block-items-wrap ultp-block-row ultp-block-column-2 ultp-block-content-top ultp-layout1"><div class="ultp-block-item ultp-block-media post-id-13527"><div class="ultp-block-content-wrap"><div class="ultp-block-image ultp-block-image-zoomIn"><a href="https://medhum.org/review/book-review/jacalyn_duffin/the-conjure-man-dies-a-mystery-tale-of-dark-harlem-by-rudolph-fisher/" ><img decoding="async"  loading="lazy" alt="The Conjure-Man Dies: A Mystery Tale of Dark Harlem by Rudolph Fisher  "  src="https://medhum.org/wp-content/uploads/2026/02/salah-ait-mokhtar-zUVOBK8_LUw-unsplash-150x150.jpg" /></a></div><div class="ultp-block-content"><div class="ultp-category-grid ultp-category-classic ultp-category-aboveTitle"><div class="ultp-category-in"><a class="ultp-cat-book-review" href="https://medhum.org/category/review/book-review/"  >Book Review</a><a class="ultp-cat-litmed" href="https://medhum.org/category/selection/litmed/"  >Litmed</a></div></div><h3 class="ultp-block-title "><a href="https://medhum.org/review/book-review/jacalyn_duffin/the-conjure-man-dies-a-mystery-tale-of-dark-harlem-by-rudolph-fisher/" >The Conjure-Man Dies: A Mystery Tale of Dark Harlem by Rudolph Fisher  </a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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04.22.26</span><span class="ultp-post-view ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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472</span></div></div></div></div><div class="ultp-block-item ultp-block-media post-id-14384"><div class="ultp-block-content-wrap"><div class="ultp-block-image ultp-block-image-zoomIn"><a href="https://medhum.org/review/book-review/jacalyn_duffin/a-civil-action-by-jonathan-harr/" ><img decoding="async"  loading="lazy" alt="A Civil Action by Jonathan Harr "  src="https://medhum.org/wp-content/uploads/2026/04/ChatGPT-Image-Apr-2-2026-11_53_53-AM-150x150.jpg" /></a></div><div class="ultp-block-content"><div class="ultp-category-grid ultp-category-classic ultp-category-aboveTitle"><div class="ultp-category-in"><a class="ultp-cat-book-review" href="https://medhum.org/category/review/book-review/"  >Book Review</a><a class="ultp-cat-video" href="https://medhum.org/category/multimedia/video/"  >Video</a></div></div><h3 class="ultp-block-title "><a href="https://medhum.org/review/book-review/jacalyn_duffin/a-civil-action-by-jonathan-harr/" >A Civil Action by Jonathan Harr </a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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04.21.26</span><span class="ultp-post-view ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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665</span></div></div></div></div><div class="ultp-block-item ultp-block-media post-id-14499"><div class="ultp-block-content-wrap"><div class="ultp-block-image ultp-block-image-zoomIn"><a href="https://medhum.org/review/book-review/jacalyn_duffin/everything-is-tuberculosis-the-history-and-persistence-of-our-deadliest-infection-by-john-green/" ><img decoding="async"  loading="lazy" alt="Everything is Tuberculosis: The History and Persistence of Our Deadliest Infection by John Green"  src="https://medhum.org/wp-content/uploads/2026/04/ChatGPT-Image-Apr-12-2026-03_51_39-PM-150x150.jpg" /></a></div><div class="ultp-block-content"><div class="ultp-category-grid ultp-category-classic ultp-category-aboveTitle"><div class="ultp-category-in"><a class="ultp-cat-book-review" href="https://medhum.org/category/review/book-review/"  >Book Review</a><a class="ultp-cat-focus" href="https://medhum.org/category/selection/focus/"  >Focus</a><a class="ultp-cat-video" href="https://medhum.org/category/multimedia/video/"  >Video</a></div></div><h3 class="ultp-block-title "><a href="https://medhum.org/review/book-review/jacalyn_duffin/everything-is-tuberculosis-the-history-and-persistence-of-our-deadliest-infection-by-john-green/" >Everything is Tuberculosis: The History and Persistence of Our Deadliest Infection by John Green</a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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04.13.26</span><span class="ultp-post-view ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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685</span></div></div></div></div><div class="ultp-block-item ultp-block-media post-id-14278"><div class="ultp-block-content-wrap"><div class="ultp-block-image ultp-block-image-zoomIn"><a href="https://medhum.org/article/reflection/jacalyn_duffin/craftivism-is-activism/" ><img decoding="async"  loading="lazy" alt="Craftivism is Activism"  src="https://medhum.org/wp-content/uploads/2026/03/BrowserPreview_tmp-9-150x150.jpg" /></a></div><div class="ultp-block-content"><div class="ultp-category-grid ultp-category-classic ultp-category-aboveTitle"><div class="ultp-category-in"><a class="ultp-cat-focus" href="https://medhum.org/category/selection/focus/"  >Focus</a><a class="ultp-cat-reflection" href="https://medhum.org/category/article/reflection/"  >Reflection</a></div></div><h3 class="ultp-block-title "><a href="https://medhum.org/article/reflection/jacalyn_duffin/craftivism-is-activism/" >Craftivism is Activism</a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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		<title>Everything is Tuberculosis: The History and Persistence of Our Deadliest Infection by John Green</title>
		<link>https://medhum.org/review/book-review/jacalyn_duffin/everything-is-tuberculosis-the-history-and-persistence-of-our-deadliest-infection-by-john-green/</link>
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		<dc:creator><![CDATA[Jacalyn Duffin]]></dc:creator>
		<pubDate>Mon, 13 Apr 2026 13:38:20 +0000</pubDate>
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		<category><![CDATA[treatment]]></category>
		<category><![CDATA[Tuberculosis]]></category>
		<guid isPermaLink="false">https://medhum.org/?p=14499</guid>

					<description><![CDATA[A narrative exploring tuberculosis through history, inequality, medical progress, and global injustice.]]></description>
										<content:encoded><![CDATA[
<p class="wp-block-paragraph">John Green is a vlogger, award-winning novelist, environmentalist, and advocate for global health through his support of the international non-profit Partners in Health. He went to Sierra Leone to investigate the high maternal mortality rates in that country. In a hospital there, he met Henry Reider, a teenager whose tuberculosis had so hampered his growth that he seemed like a small child. Green was deflected into a deep friendship with Henry and an exploration of tuberculosis.&nbsp;</p>



<p class="wp-block-paragraph">Henry’s severe illness and his difficulties accessing treatment prompted Green to contemplate the horrifying statistics of tuberculosis and the paradox of our extensive knowledge about it. More than one million people still die every year from this ancient disease; yet the bacterial cause was elucidated a century and a half ago, and effective treatments have been around since the 1950s. Barring eradication, the germs mutate and become resistant. Given dire living conditions, it spreads. Effective therapy can be prohibitively expensive. “The cure is where the disease is not, and the disease is where the cure is not” (p. 5). People die where cures cannot be obtained.&nbsp;</p>



<figure class="wp-block-image alignright size-full is-resized"><img loading="lazy" decoding="async" width="662" height="1000" src="https://medhum.org/wp-content/uploads/2026/04/220341391-636859751.jpg" alt="" class="wp-image-14500" style="width:280px" srcset="https://medhum.org/wp-content/uploads/2026/04/220341391-636859751.jpg 662w, https://medhum.org/wp-content/uploads/2026/04/220341391-636859751-199x300.jpg 199w" sizes="auto, (max-width: 662px) 100vw, 662px" /></figure>



<p class="wp-block-paragraph">History is woven though Henry’s story, but so are politics, culture, and economics: the discoveries, the 19<sup>th</sup>-century romanticization of ‘wasting away,’ the hard realities of pharmaceutical development and delivery. Henry has survived, become healthy and an inveterate TikToker and <a href="https://www.youtube.com/channel/UCMjyZU6hnZk0ZUaMHSgsPdg">youtuber</a>. He even has an episode on the <a href="https://www.youtube.com/watch?v=2nzroe4LfO0">power of storytelling</a>. But other people that we encounter through this tale have died.&nbsp;</p>



<p class="wp-block-paragraph">We still have tuberculosis because statistics de-personify it, and geography allows ignoring it. Green uses Henry’s story to invite us to ‘[t]hink about how rare and precious humans are, and how many of them you get to worry for and care about. Then if you can, find a way to multiply that 1,250,000 times’ (p. 189). &nbsp;</p>



<p class="wp-block-paragraph">The book flows easily in language that is clear and accessible, a tribute to Green’s experience in writing young-adult fiction. In the end, without denying the benefits of medical interventions, he calls for a focus on the real cause of tuberculosis: injustice—tolerated and unchallenged. ‘Ultimately,’ he writes, ‘we are the cause’ (p. 184). &nbsp;</p>



<p class="has-palette-color-5-background-color has-background has-small-font-size wp-block-paragraph"><strong><em>Everything is Tuberculosis: The History and Persistence of </em></strong><strong><em>Our Deadliest Infection</em><br></strong>John Green<br>New York: Penguin/Crash Course Books<br>2025<br>ISBN 9780525556572 <br><br>Web image created by Medhum.org</p>



<p class="wp-block-paragraph"></p>



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		<title>The Only Doctor Hawthorne Would See</title>
		<link>https://medhum.org/article/narrative/joshua_dolezal/the-only-doctor-hawthorne-would-see/</link>
					<comments>https://medhum.org/article/narrative/joshua_dolezal/the-only-doctor-hawthorne-would-see/#respond</comments>
		
		<dc:creator><![CDATA[Joshua Doležal]]></dc:creator>
		<pubDate>Wed, 25 Mar 2026 14:58:09 +0000</pubDate>
				<category><![CDATA[Narrative]]></category>
		<category><![CDATA[childbirth]]></category>
		<category><![CDATA[compassion]]></category>
		<category><![CDATA[Contagion]]></category>
		<category><![CDATA[ethics]]></category>
		<category><![CDATA[Hawthorne]]></category>
		<category><![CDATA[Holmes]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[mortality]]></category>
		<category><![CDATA[physicians]]></category>
		<category><![CDATA[puerperal]]></category>
		<category><![CDATA[reform]]></category>
		<category><![CDATA[responsibility]]></category>
		<category><![CDATA[Science]]></category>
		<category><![CDATA[storytelling]]></category>
		<category><![CDATA[trust]]></category>
		<guid isPermaLink="false">https://medhum.org/?p=14230</guid>

					<description><![CDATA[A physician-poet uses storytelling and moral conviction to challenge deadly medical ignorance and earn Hawthorne’s trust.]]></description>
										<content:encoded><![CDATA[
<figure class="wp-block-pullquote"><blockquote><p><em>The time has come when the existence of a private pestilence in the sphere of a single physician should be looked upon, not as a misfortune, but a crime; and in the knowledge of such occurrences the duties of the practitioner to his profession should give way to his paramount obligations to society.</em></p><cite><strong><em>— Oliver Wendell Holmes, “The Contagiousness of Puerperal Fever”</em></strong></cite></blockquote></figure>



<p class="wp-block-paragraph">It would have been cold on February 13, 1843, when the Boston Society for Medical Improvement convened. But anyone who heard Oliver Wendell Holmes’s fiery speech about puerperal fever would have forgotten about the chill outside immediately.</p>



<p class="wp-block-paragraph">Holmes stood just 5’ 3”. And he was young, only 34 years old. But he was hot with moral authority. He was so sure that puerperal fever was contagious that he accused his skeptical colleagues of murder. He knew that in order to make them listen, he had to do more than lay out the facts. He needed a persuasive story.</p>



<p class="wp-block-paragraph">As I’ll show presently, it was precisely this approach that allowed Holmes to win Nathaniel Hawthorne’s trust as personal physician to the great author near the end of his life. No mean feat, since <a href="https://joshuadolezal.substack.com/p/hawthorne-was-right-to-fear-the-clinical?utm_source=publication-search" target="_blank" rel="noreferrer noopener">Hawthorne was terrified by medical science</a>.</p>



<h4 class="wp-block-heading"><strong>The Crowd Puller</strong></h4>



<p class="wp-block-paragraph">In those days, you had to speak well publicly to make a name for yourself. Oratory was required in school. In New England, the rhetorical standard was set in the pulpit, and public discourse followed. So it wasn’t an insult if someone said your speaking or writing felt sermon-like. Good sermons could awaken, convict, inspire, and transform even the most uneducated souls. The best professors and the best doctors fit the ministerial mold.</p>



<p class="wp-block-paragraph">In New England, good speakers were a dime a dozen. But Holmes stood alone.</p>



<p class="wp-block-paragraph">One of Holmes’s students recalled how he could hold a crowd:</p>



<p class="wp-block-paragraph">He always makes people attentive, and I have been told that there is no professor whom the students so much like to listen to. In one of his books he says that every one of us is three persons, and I think that if the statement is true in regard to ordinary men and women, Doctor Holmes himself is at least half a dozen persons. He lectures so well on anatomy that his students never suspect him to be a poet, and he writes verses so well that most people do not suspect him of being an authority among scientific men.</p>



<p class="wp-block-paragraph">This was also a time when science was retreating from the public sphere. Hawthorne was writing short stories about the terrors of the lab, where Rappaccinis and Chillingworths played God. As Michel Foucault said, it was a time when some doctors took the patient into account “only to place him in parentheses.”</p>



<p class="wp-block-paragraph">Holmes was a scientist, but he hated how science made some of his peers “think only in single file.” And so he tried to wake his colleagues up on that cold day in Boston with facts, but also with panache and metaphor.</p>



<h4 class="wp-block-heading"><strong>The Case for Contagion</strong></h4>



<p class="wp-block-paragraph">Attention spans were different in 1843. The full text of Holmes’s speech, which he later published in essay form, was over 12,000 words. It would have taken him at least an hour to deliver it. He had to review many cases in depth, not just spin fetching tales.</p>



<p class="wp-block-paragraph">But that’s why everyone in the Boston Society had gathered that day. They wanted to get better as doctors, for medicine itself to improve. So they listened.</p>



<p class="wp-block-paragraph">Holmes points out that William Dewees’s <em>A Treatise on the Diseases of Females</em>, published in Philadelphia in 1833, explicitly denies that puerperal fever is contagious and that the <em>Philadelphia Practice of Midwifery</em> (1838) omits mention of the disease entirely.</p>



<p class="wp-block-paragraph">Unthinkable now, but it was commonplace for a doctor or midwife to deliver one baby and then move to the other without washing their hands. Holmes’s words for such a physician? A “death-carrying attendant.”</p>



<p class="wp-block-paragraph">He also opens with a logical list, a kind of syllogism, something he’d have learned from his humanities education. If all these things are true, then there’s no room left for opposing views.</p>



<ol class="wp-block-list">
<li>Not all forms of puerperal fever may be equally contagious. But evidence shows the disease appearing again and again among patients of a single practitioner, even when no epidemic is present. That pattern demands explanation.</li>



<li>Whether infection travels through the air a physician carries into the sick-chamber or passes directly from his unwashed hands, the practical result is the same. We need not settle the question to act on it.</li>



<li>Contagion does not guarantee infection. Even the smallpox vaccine, fresh and carefully administered, sometimes fails. Same for scarlet fever. But no one doubts those diseases are contagious.</li>



<li>Seasonal and regional influences may trigger or worsen the disease. But smallpox follows the same patterns of rise and fall, and no one doubts it spreads by contagion. Why should puerperal fever be different?</li>



<li>If physicians can be shown to carry death instead of health, no excuse will absolve them. “[W]henever and wherever they can be shown to carry disease and death instead of health and safety, the common instincts of humanity will silence every attempt to explain away their responsibility.”</li>
</ol>



<p class="wp-block-paragraph">It made Holmes angry that colleagues could explain the deaths of new mothers as Providence, using God’s will as an excuse for their own failures to stop preventable deaths.&nbsp;</p>



<p class="wp-block-paragraph">We do not deny that the God of battles decides the fate of nations; but we […] are particular that our soldiers should not only say their prayers, but also keep their powder dry. We do not deny the agency of Providence in the disaster at Norwalk, but we turn off the engineer and charge the Company five thousand dollars apiece for every life that is sacrificed. Why a grand jury should not bring in a bill against a physician who switches off a score of women one after the other along his private track, when he knows that there is a black gulf at the end of it, down which they are to plunge, while the great highway is clear, is more than I can answer.</p>



<p class="wp-block-paragraph">I’ll not reprise Holmes’s full review of cases (he painstakingly covers more than half a dozen). You can read the full text that he reprinted in <em>Medical Essays</em> <a href="https://archive.org/details/medicalessays18400holmuoft" target="_blank" rel="noreferrer noopener">here</a>.</p>



<p class="wp-block-paragraph">What I want to emphasize is how storytelling was much more than a way to “sell” science for Holmes. He knew that story piqued an emotional understanding of science, which was how doctors could be persuaded to act, and also how public trust could be earned and held.</p>



<p class="wp-block-paragraph">Here’s his passionate conclusion in full:</p>



<p class="wp-block-paragraph">It is as a lesson rather than as a reproach that I call up the memory of these irreparable errors and wrongs. No tongue can tell the heart-breaking calamity they have caused; they have closed the eyes just opened upon a new world of love and happiness; they have bowed the strength of manhood into the dust; they have cast the helplessness of infancy into the stranger’s arms, or bequeathed it, with less cruelty, the death of its dying parent. There is no tone deep enough for regret, and no voice loud enough for warning. The woman about to become a mother, or with her new-born infant upon her bosom, should be the object of trembling care and sympathy wherever she bears her tender burden or stretches her aching limbs. The very outcast of the streets has pity upon her sister in degradation when the seal of promised maternity is impressed upon her. The remorseless vengeance of the law, brought down upon its victim by a machinery as sure as destiny, is arrested in its fall at a word which reveals her transient claim for mercy. The solemn prayer of the liturgy singles out her sorrows from the multiplied trials of life, to plead for her in the hour of peril. God forbid that any member of the profession to which she trusts her life, doubly precious at that eventful period, should hazard it negligently, unadvisedly, or selfishly!</p>



<p class="wp-block-paragraph">I read recently that we respond much more powerfully to troubled characters in fiction than we do to stock types who move from one adrenaline-spiked obstacle to the next. That’s because our deepest emotional responses are driven by three chemicals (dopamine, cortisol, and oxytocin). These brain responses are strongest when we truly care about someone else.</p>



<p class="wp-block-paragraph">Holmes was trying to do something similar by creating a moral dilemma within the physicians he addressed. The doctor who cared nothing about exposing his patients to risk had no soul. But the doctor who could imagine a family’s grief and wrestle with his own culpability was more complex, more colorful, more worthy of trust.</p>



<p class="wp-block-paragraph">If you’d been listening to Holmes on that February day, you know which doctor you’d have wanted to be.</p>



<h4 class="wp-block-heading"><strong>Converting the Chief Skeptic</strong></h4>



<p class="wp-block-paragraph">Despite his charms, it took time for Holmes to push his reforms. People thought he looked too young. One woman ordered him out of her house when he accompanied a senior physician during his medical training. “Take him away!” she cried. “This is no place for boys.”</p>



<p class="wp-block-paragraph">Holmes’s colleagues respected his medical skill, but thought him “impaired” for writing poetry. And not all readers of <em>The Atlantic</em> loved him. To some he was a “tiresome little man.”</p>



<p class="wp-block-paragraph">As one biographer explains, Holmes “disarmed criticism…by courageously persisting in the same method which had originally produced it, namely, by the most fearless intimacy with his audience, never keeping back any jest or any expression of confidence.” In a word, he was not afraid to make himself vulnerable in his writing.&nbsp;</p>



<p class="wp-block-paragraph">Holmes and Hawthorne shared pages in <em>The Atlantic Monthly</em> and also knew each other through the Saturday Club, a gathering of literary celebrities that included Ralph Waldo Emerson, Henry Wadsworth Longfellow, and Harriet Beecher Stowe hosted by the publisher James T. Fields. Hawthorne was quiet and shy, brooding around the edges, but Holmes loved to regale the group. As Annie Fields recalled, “with Dr. Holmes sunshine and gayety came into the room.”</p>



<p class="wp-block-paragraph">The two writers developed a close intellectual relationship, commenting on each other’s manuscripts and commiserating with one another over the dangers of pseudoscience and careless experimentation. So it was no surprise that when he grew ill in 1864, Holmes was the only doctor that Hawthorne would see. Hawthorne had watched a friend die of pneumonia while a quack prescribed a variety of ineffective drugs, poultices, even cupping and blistering, to no avail.</p>



<p class="wp-block-paragraph">As the two men walked the Boston streets, Holmes conducted a “talking exam,” listening while Hawthorne reported his symptoms of indigestion and fatigue. Holmes recognized that Hawthorne suffered from a profound sense of despondency which signaled imminent death, that there was no cure but compassion. This was an intimate moment—as vulnerable as the introverted Hawthorne had ever allowed himself to be with anyone—and it illustrates Holmes’s ability to reassure even this great skeptic of his good intentions.&nbsp;</p>



<p class="wp-block-paragraph">Hawthorne’s simultaneous fear of alternative medicine and medical science left him nowhere to turn as his own death approached. On the one hand were the mesmerists who sought to control the individual through pseudoscientific means. On the other were the <a href="https://joshuadolezal.substack.com/p/the-1844-warning-american-medicine" target="_blank" rel="noreferrer noopener">Rappaccinis</a> whose misappropriation of science was equally hostile to the privacy of the soul.</p>



<p class="wp-block-paragraph">Only Holmes could rescue Hawthorne from those two nightmares. He did it as a man of science, as an indefatigable optimist, as a caring friend, and, yes, as a storyteller who knew that passion is one form of understanding.</p>



<p class="has-small-font-size wp-block-paragraph">Web image of A young Oliver Wendell Holmes from PBS.</p>
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		<title>Learning Empathy through Chekhov </title>
		<link>https://medhum.org/article/reflection/guy_glass/learning-empathy-through-chekhov/</link>
					<comments>https://medhum.org/article/reflection/guy_glass/learning-empathy-through-chekhov/#respond</comments>
		
		<dc:creator><![CDATA[Guy Glass]]></dc:creator>
		<pubDate>Mon, 29 Dec 2025 14:21:13 +0000</pubDate>
				<category><![CDATA[Reflection]]></category>
		<category><![CDATA[Chekhov]]></category>
		<category><![CDATA[compassion]]></category>
		<category><![CDATA[education]]></category>
		<category><![CDATA[empathy]]></category>
		<category><![CDATA[ethics]]></category>
		<category><![CDATA[Humanities]]></category>
		<category><![CDATA[learning]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[narrative]]></category>
		<category><![CDATA[New York]]></category>
		<category><![CDATA[patientcare]]></category>
		<category><![CDATA[pedagogy]]></category>
		<category><![CDATA[playwriting]]></category>
		<category><![CDATA[psychiatry]]></category>
		<category><![CDATA[reflection]]></category>
		<category><![CDATA[Russia]]></category>
		<category><![CDATA[storytelling]]></category>
		<category><![CDATA[theater]]></category>
		<guid isPermaLink="false">https://medhum.org/?p=13053</guid>

					<description><![CDATA[A psychiatrist-playwright shows how adapting classic drama for medical students cultivates empathy and reflective care practice.]]></description>
										<content:encoded><![CDATA[
<p class="wp-block-paragraph">In 2015 this 50-something- year-old psychiatrist graduated from Stony Brook University with a Master of Fine Arts degree in playwriting.&nbsp; For my thesis project, I was of course required to write a play. During my time at Stony Brook, I had also become involved with the medical humanities program at the medical school.&nbsp; At first, I took a course in the department as an elective.&nbsp; The following semester I became a co-teacher in the same course. We were already using plays, e.g., an adaptation of <em>The Death of Ivan Ilyich</em>, so it seemed sensible to fulfil my requirement by creating something to use for didactic purposes.&nbsp;&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">Before embarking on my project, I reviewed the literature pertaining to the use of plays in medical settings.&nbsp; Friedrich Schiller, the German playwright (who was, incidentally, a physician), laid the groundwork for the use of theater as an educational tool in his 1784 essay “The Stage as a Moral Institution” calling it “a great school of practical wisdom, a guide for civil life, and a key to the mind” (Schiller, page 252).&nbsp; In his view, the theatricalization of the “vices and virtues of men” and of “human woe” not only makes them more palatable, but it also actually teaches the audience to be more empathic.&nbsp;</p>



<p class="wp-block-paragraph">I found a wide range of milieus in which plays have been used.&nbsp; In 1938, The Federal Theatre Project, a program sponsored by the WPA, produced a play entitled <em>Spirochete</em> with the goal of reducing the spread of syphilis (Flanagan, page 144).&nbsp; More recently, dramatic narratives were used by scientists to provide a forum for learning about human genetics; these have been collected in a volume entitled <em>The Drama of DNA</em>.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">A pioneering program that proved inspirational to me is Medical Readers’ Theater, developed in the 1980s at East Carolina University’s Brody School of Medicine. Stories by William Carlos Williams and other doctor writers have been turned into scripts used to encourage dialogue among medical staff, students and the public about a variety of medical issues. These plays are available in anthologies accompanied by discussion questions.&nbsp;&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">There are also numerous popular plays which are natural fits for teaching because they illustrate points of ethics, diagnosis, doctor-patient relationship, etc. at the same time as just being entertaining.&nbsp; Some of the ones I have used include <em>Wit, A Streetcar Named Desire</em>, and <em>Next to Normal.&nbsp;&nbsp;&nbsp;</em>&nbsp;</p>



<p class="wp-block-paragraph">While deciding what to do for my thesis project, I was becoming quite taken with Anton Chekhov’s writing through working with Jack Coulehan at Stony Brook.&nbsp; Previously, although I knew of course that Chekhov had a reputation for being one of the great playwrights, I had had the impression that his plays were a bit boring because nothing much happens in them.&nbsp; What can I say?&nbsp; I must just not have seen the right productions.&nbsp;&nbsp;&nbsp;</p>



<figure class="wp-block-image alignright size-full is-resized"><img loading="lazy" decoding="async" width="334" height="480" src="https://medhum.org/wp-content/uploads/2025/12/Chekhov_at_Melikhovo.jpg" alt="" class="wp-image-13057" style="width:280px" srcset="https://medhum.org/wp-content/uploads/2025/12/Chekhov_at_Melikhovo.jpg 334w, https://medhum.org/wp-content/uploads/2025/12/Chekhov_at_Melikhovo-209x300.jpg 209w" sizes="auto, (max-width: 334px) 100vw, 334px" /><figcaption class="wp-element-caption"><a href="https://upload.wikimedia.org/wikipedia/commons/d/d6/Chekhov_at_Melikhovo..jpg">Chekhov at Melikhovo</a></figcaption></figure>



<p class="wp-block-paragraph">I researched Chekhov’s life, read his short stories, and even plowed through <em>Sakhalin Island</em>, the epidemiological survey he wrote about health conditions in a penal colony. As a result, I became an admirer and gained insight into his method.&nbsp; It does not matter whether there appears to be anything happening or not.&nbsp; The author’s job is to record what he observes. It is not by chance that this is also the job of a physician.&nbsp; One can understand why Chekhov might have wanted to continue to practice medicine even after becoming one of Russia’s most celebrated writers.&nbsp; Chekhov soon became my personal role model as a doctor writer, and it felt like an honor to dedicate my time and energy to his work, and in my own extremely modest way, to add to his dramatic corpus.&nbsp;&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">Chekhov wrote over 500 short stories, and doctors play a significant role in about 25 of them.&nbsp; I chose “A Nervous Breakdown” (1889) and “A Doctor’s Visit” (1898) “for adaptation.&nbsp; As “A Doctor’s Visit” has fewer characters and is the shorter of the two that is the one I use to teach.&nbsp; Some students may even have read the original story already because it is so well known.&nbsp;&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">The plot may be summarized as follows:&nbsp; A doctor has been summoned away from the city to see the daughter of a factory owner, but for some reason he sends his assistant instead.&nbsp; (Perhaps he just did not want to go out to the boondocks.) The assistant doctor arrives at the house and examines the young lady.&nbsp; After not finding anything wrong, he concludes that he’s been called for nothing. The patient’s mother, who is depressed and overwhelmed, implores him to spend the night instead of going home to his family.&nbsp; The doctor is not in a position to refuse, but he feels as if his time is being wasted and he is annoyed.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">However, in the short time he is in the factory town, the doctor gets a sense of what it is like in live in such a place. He sees how unhealthy the environment is for the workers. He sees how, despite having lavished a fortune on expensive furnishings, the inhabitants of the house are miserable. Adding insult to injury, a servant repeatedly contradicts him and gets on his nerves.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">In spite of the prejudices he has brought with him from the city, the totality of his experience makes an impression on this doctor. The next morning, he meets with the patient again. This time, he recognizes that she is a sensitive and intelligent young lady, and he now has empathy for what she must be going through. There is a moment of understanding between them. Although it does not perhaps appear as if the doctor has applied any treatment, the patient responds and shows a sense of hope.&nbsp; The doctor has also changed as a result of this experience. He leaves the house and heads home in a good mood.&nbsp;&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">Like general practitioners today, general practitioners in 19<sup>th</sup>-century Russia undoubtedly ended up doing a good bit of psychiatry.&nbsp; Although Chekhov and Freud were contemporaries, there seems to be no evidence that Chekhov was aware of Freud’s “talking cure. “&nbsp; But even if not, and even if the doctor in “A Doctor’s Visit” does not think he has done anything, the doctor has in fact unwittingly administered a brief psychotherapy session.&nbsp; The powerful results he obtains with such simple means remind me of some of my own experiences as a psychiatrist.&nbsp; Sometimes when one uses one’s psychoanalytic theories to make what one thinks are brilliant interpretations, they fall on deaf ears.&nbsp; Just being present and listening often produces the best outcomes.&nbsp;&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">The greatest technical challenge this playwright confronted in dramatizing “A Doctor’s Visit” was figuring what to do about the doctor’s internal thoughts.&nbsp; There is plenty of spoken dialogue in Chekhov’s story, and I used much of it practically verbatim.&nbsp;&nbsp; But how to dramatize one’s inner dialogue?&nbsp; It would be cumbersome to have a narrator describe it, and unnatural to have the doctor verbalize it.&nbsp; My solution was to create a brand-new character, a young apprentice, someone the doctor uses to bounce ideas off.&nbsp;&nbsp; I hope audiences and readers feel this was a reasonable compromise on my part.&nbsp;&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">My adaptations of Chekhov’s two stories made their debut in 2015.&nbsp; Since then, “A Doctor’s Visit” has been used to teach students at several medical schools:&nbsp; Stony Brook, Drexel, New York University, Boston University, Cleveland Clinic, and the University of Pennsylvania.&nbsp;&nbsp; At all but one of these I introduced the play in person, read the stage directions aloud, and led the discussion.&nbsp; The text of the play is included in an appendix to this article in the hope that other schools will take it up.&nbsp; And I am still available to read stage directions!&nbsp;</p>



<p class="wp-block-paragraph"></p>



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<p class="has-palette-color-5-background-color has-background has-small-font-size wp-block-paragraph"><br><strong>References</strong>: <br>Chekhov, Anton: “A Doctor’s Visit.”  Translated by Constance Garnett.  https://www.ibiblio.org/eldritch/ac/jr/193.h<br>Coulehan, Jack.  “Cold Eye, Warm Heart: Medicine and Anton Chekhov.” MedHum, October 2, 2025 Flanagan, Hallie. 1940, reprinted 1985. <em>Arena: The Story of the Federal Theatre</em>. New York: Limelight Editions <br>Rothenberg, Karen H. and Bush, Lynn Wein. 2014. <em>The Drama of DNA</em>. New York: Oxford University Press <br>Savitt, Todd L. (ed.) 2002.  <em>Medical Readers’ Theater:  A Guide and Scripts</em>.  Iowa City: University of Iowa Press <br>Schiller, Friedrich. 1784. “The Stage as a Moral Institution.” In <em>Theatre/Theory/Theatre, </em>250-254.  New York:  Applause <br><br>Web image created based on <a href="https://en.wikipedia.org/wiki/A_Doctor%27s_Visit#/media/File:Illustration_to_Chekhov's_A_Doctor's_Visit.jpg" target="_blank" rel="noreferrer noopener">this vintage illustration</a> from WikiCommons</p>



<h4 class="wp-block-heading">A Doctor’s Visit:&nbsp; An Adaptation of a Short Story by Chekhov</h4>



<p class="wp-block-paragraph">by Guy Fredrick Glass</p>



<p class="has-small-font-size wp-block-paragraph">Downloads of this play may be distributed and performed for educational purposes only, with permission of the author.&nbsp; Dr Glass may be contacted at <span 
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		<title>Cold Eye, Warm Heart: Medicine and Anton Chekhov  </title>
		<link>https://medhum.org/article/narrative/jack_coulehan/cold-eye-warm-heart-medicine-and-anton-chekhov/</link>
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		<dc:creator><![CDATA[Jack Coulehan]]></dc:creator>
		<pubDate>Wed, 06 Aug 2025 13:58:04 +0000</pubDate>
				<category><![CDATA[Focus]]></category>
		<category><![CDATA[Narrative]]></category>
		<category><![CDATA[activism]]></category>
		<category><![CDATA[Anton Chekhov]]></category>
		<category><![CDATA[Chekhov]]></category>
		<category><![CDATA[compassion]]></category>
		<category><![CDATA[dual identity]]></category>
		<category><![CDATA[empathy]]></category>
		<category><![CDATA[focus-chekhov]]></category>
		<category><![CDATA[healing]]></category>
		<category><![CDATA[humanity]]></category>
		<category><![CDATA[literature]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[Melikhovo]]></category>
		<category><![CDATA[objectivity]]></category>
		<category><![CDATA[observation]]></category>
		<category><![CDATA[physician]]></category>
		<category><![CDATA[public health]]></category>
		<category><![CDATA[resilience]]></category>
		<category><![CDATA[Russia]]></category>
		<category><![CDATA[Sakhalin]]></category>
		<category><![CDATA[storytelling]]></category>
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		<category><![CDATA[Tuberculosis]]></category>
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		<guid isPermaLink="false">https://medhum.org/?p=11231</guid>

					<description><![CDATA[A moving portrait of Anton Chekhov, whose dual life as physician and writer reveals the deep interplay between healing and storytelling.]]></description>
										<content:encoded><![CDATA[
<p class="wp-block-paragraph">While visiting Anton Chekhov’s estate near Melikhovo, I purchased a reproduction of a late 19<sup>th</sup> century painting in which a doctor sits at the foot of a child’s bed in a darkened sick room. A second child plays on the floor. The physician speaks earnestly to the anxious mother, who stands beside him, wearing crumpled clothes and a babushka. Is the news good or bad? Will the boy survive? Whatever the outcome, this doctor appears to embody the best elements of traditional medical virtue. The scene is much like Sir Luke Fildes’ ever popular painting of “The Doctor” (1891). But the striking difference in this case is the man’s identity. The doctor in the Russian sickroom is Anton Pavlovich Chekhov, one of masters of world literature.&nbsp;</p>



<figure class="wp-block-image alignright size-large is-resized"><img loading="lazy" decoding="async" width="798" height="1024" src="https://medhum.org/wp-content/uploads/2025/07/Chekhov_1898_by_Osip_Braz-1-798x1024.jpg" alt="" class="wp-image-11242" style="width:280px" srcset="https://medhum.org/wp-content/uploads/2025/07/Chekhov_1898_by_Osip_Braz-1-798x1024.jpg 798w, https://medhum.org/wp-content/uploads/2025/07/Chekhov_1898_by_Osip_Braz-1-234x300.jpg 234w, https://medhum.org/wp-content/uploads/2025/07/Chekhov_1898_by_Osip_Braz-1-768x985.jpg 768w, https://medhum.org/wp-content/uploads/2025/07/Chekhov_1898_by_Osip_Braz-1-1198x1536.jpg 1198w, https://medhum.org/wp-content/uploads/2025/07/Chekhov_1898_by_Osip_Braz-1.jpg 1200w" sizes="auto, (max-width: 798px) 100vw, 798px" /><figcaption class="wp-element-caption"><a href="https://commons.wikimedia.org/wiki/File:Chekhov_1898_by_Osip_Braz.jpg" target="_blank" rel="noreferrer noopener">Chekhov by Osip Braz</a></figcaption></figure>



<p class="wp-block-paragraph">The artist depicts Chekhov as he was in the early 1890’s, soon after he had purchased a small, dilapidated estate and moved there from Moscow with his family. In addition to serving as country doctor and public health official in Melikhovo, Chekhov at that time was composing many of the stories and plays that made him one of Russia’s most well-loved writers and a major influence on 20<sup>th</sup> century literature. How was he able to pursue two such different and demanding careers? Several years earlier, at the height of Chekhov’s early literary success, his friend Alexi Suvorin had urged the young writer to give up medicine. Don’t spread yourself too thin, he said. You’ll never reach your potential unless you concentrate on writing. In response, Chekhov wrote, “You advise me not to chase after two hares at once and to forget about practicing medicine. Well, I don’t see what’s so impossible about chasing two hares at once… Medicine is my lawful wedded wife and literature my mistress. When one gets on my nerves, I spend the night with the other. This may be somewhat disorganized, but then again, it’s not boring, and anyway, neither loses anything by my duplicity.” (1) In this famous passage, the 28-year-old writer dances lightly over a fundamental truth of his life and identity. In fact, Chekhov’s career was not so much a matter of jumping from one bedroom to another, as was the case perhaps with the poets Wallace Stevens and T. S. Eliot, or the composer Charles Ives. Rather, Chekhov thrived on the effective, if not always seamless, integration of the arts of medicine and writing, which reinforced one another throughout his creative life. This essay explores that integration, and the manner in which Chekhov’s cold eye (objectivity) and warm heart (compassion) reveal themselves in his medical and literary lives.&nbsp;</p>



<h4 class="wp-block-heading"><strong>DOCTOR CHEKHOV&nbsp;</strong>&nbsp;</h4>



<p class="wp-block-paragraph"><strong>“Medicine Is My Lawful Wife”</strong>&nbsp;</p>



<p class="wp-block-paragraph">When he graduated from the Moscow State University School of Medicine in June 1884, Chekhov was already earning his living as a professional writer. The grandson of serfs, Anton was the third of six children in a poor merchant family from Taganrog, a southern provincial town on the shore of Sea of Azov. His father had moved the family to Moscow after going bankrupt in 1877. By the time Anton entered medical school on a scholarship in 1879, the Chekhovs were living in squalor. His father had a dead-end job. His older brothers were alcoholics and generally unemployed. Anton soon discovered that he could ameliorate the situation by selling comic sketches to local magazines for eight kopecks per line. This was a type of moonlighting he loved. He wrote obsessively, often knocking off a story or two each night, after spending the day listening to lectures or working in the hospital. Chekhov ultimately published more than 200 pieces while a medical student, most of them under his preferred pseudonym, Antosha Chekhonte.&nbsp;</p>



<p class="wp-block-paragraph">Chekhov was a natural storyteller. Thus, it wasn’t surprising that the newly minted Doctor Chekhov continued to write, even after he opened his office and patients began to arrive. “Continued to write” is an understatement. Chekhov published 54 stories in 1885, 76 in 1886, and 57 in 1887. His work evolved from humorous sketches to longer, more serious stories for leading literary journals. In 1888 Chekhov won the prestigious Pushkin Prize and published “The Steppe,” his longest and most innovative story to date. <em>Ivanov,</em> his first full-length play, had a successful premiere in St. Petersburg in January 1889. By that time the young doctor had become one of the best known writers in Russia.&nbsp;</p>



<p class="wp-block-paragraph">Yet Chekhov always saw himself as a physician, even though in 1889 he did, in fact, retire from a normal paying practice; after that, he offered his medical services at no charge, even though the generous Chekhov often found himself financially strapped. He took care of the peasants near Melikhovo (as depicted in the painting), donated his services to the government as a district physician, and engaged regularly in public health initiatives. In less than five months in 1891, Chekhov reported seeing 453 patients at a district health center and making 576 house calls, in addition to his home practice. (2) Throughout his life, Chekhov also was heavily involved in grass roots activism, building schools for peasants, raising funds to help famine victims, and, later, near the end of his life, supporting the establishment of a sanitarium for tuberculosis victims at Yalta. &nbsp;</p>



<p class="wp-block-paragraph"><strong>“My Debt To Medicine”</strong>&nbsp;</p>



<p class="wp-block-paragraph">One of the best known of these public health efforts was his 1890 epidemiological survey of health and social conditions in the prison colonies on Sakhalin Island. Traveling by himself, Chekhov journeyed six weeks by train, steamboat, and horse-drawn carriage across Siberia to reach the 1000-km long Pacific island on which the Czarist government had recently established a notorious gulag. There, he embarked on a one-man, three-month survey of the population, tenaciously picking his way from settlement to settlement and from house to house, often by foot. &nbsp;</p>



<p class="wp-block-paragraph">Biographers have long tried to pinpoint his motivation for this perilous journey. During the year prior to the trip, Chekhov had undergone a crisis of confidence. In a letter to Suvorin, he opined, “I don’t love money enough for medicine, and I lack the necessary passion—and therefore talent—for literature. The fire in me burns with an even, lethargic flame; it never flares up or roars… I have very little passion. Add to that the following psychopathic trait: for two years now, seeing my works in print has for some reason given me no pleasure.” (3) He reported symptoms suggestive of clinical depression, perhaps precipitated by grief over the death of his brother Nicholas from tuberculosis. There was also a literary issue. The master of the short story had promised himself that he would create a Tolstoy-like novel that would confirm his status as a serious writer. But he was unable to do so. &nbsp;</p>



<p class="wp-block-paragraph">Undoubtedly a major factor for choosing Sakhalin was Chekhov’s desire to pay his debt to medicine. He had recently developed a scientific interest in penology and had read about the dismal conditions in the Siberian gulag. He saw an opportunity to influence this situation by obtaining accurate data on the health status of Sakhalin convicts. He had never completed the research thesis (the equivalent of a Ph.D.) that would make him eligible to be a medical specialist or professor. Hence, his notion of “my debt to medicine”—he would perform a survey, write his thesis, and become a teacher.&nbsp;</p>



<p class="wp-block-paragraph">Ultimately, Chekhov claimed to visit every settlement and survey every household on Sakhalin Island, using a 12-item data collection form. He said he completed over 10,000 of these forms in three months, a feat that (if true) qualifies Chekhov as the speediest shoe-leather epidemiologist of all time. After his return to European Russia, the author found it difficult to organize his data into a coherent study. While he had planned to write a strictly scientific monograph, his creative spirit struggled with the limitations of science. What about his personal experience? What about the interesting stories? After struggling for years, in 1895 Chekhov published <em>The Island of Sakhalin</em>, a curious (but engrossing) mixture of journal, geography, history, medicine, statistics, and travelogue. (4) Unfortunately, the faculty of the University of Moscow was unimpressed.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph"><strong>“As I Grow Older, the Pulse of Life in Me Beats Faster”</strong>&nbsp;</p>



<p class="wp-block-paragraph">Picture the mature Chekhov—a middle-aged bachelor, longish face, rather neatly trimmed beard, a prince-nez clipped to the bridge of his nose. His household included his aging parents and his sister Masha, an unmarried schoolteacher who had become his confidant and secretary. His three surviving brothers looked to him for guidance and financial help. Anton was popular, witty, and generous. Among the guests at Melikhovo, there were frequently female admirers. Chekhov’s encounters with women were flirtatious and obviously enjoyable. He had teasing, sexually charged relationships with several women, but whether any of these liaisons are actually “affairs” is uncertain.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">The doctor in the painting already suffered from the tuberculosis from which he would die at the age of 44 years. In fact, he first coughed blood as a medical student. Yet, Chekhov dismissed that episode and each subsequent episode that occurred with disheartening regularity as “influenza” or “bronchitis,” steadfastly refusing to label himself consumptive. As a physician Chekhov must surely have understood the meaning of his symptoms. Was his denial simply a face to show others? Or was his denial so great that it made him unaware? The cat finally came out of the bag in early 1897. While dining at a restaurant in Moscow, Chekhov had a violent spell of hemoptysis that left him critically ill. For the first time, he sought medical treatment and entered the clinic run by Dr. Ostropov, one of his medical school professors. Chekhov’s chronic illness progressively worsened. At the insistence of his doctors, Chekhov left his beloved Melikhovo after 1898 and lived mostly at a new home in the sunny Black Sea resort of Yalta.&nbsp;</p>



<p class="wp-block-paragraph">It was also during these last years that the bachelor writer courted and married Olga Knipper, an actress with the Moscow Theater Arts Company. Even after their marriage in 1901, Olga remained at work in Moscow during much of the year, while the invalid Chekhov lived in Yalta, theirs being perhaps one of the earliest examples of the modern two-career commuter marriage. Chekhov found himself able to devote less and less of his waning energy to writing, especially since he refused to give up his social and philanthropic activities. Nonetheless, between 1898 and his death in 1904 Chekhov completed some of his greatest work, including several stories, two novellas (“Peasants” and “In the Ravine”), and his last plays, <em>The Three Sisters</em> (1900) and <em>The Cherry Orchard</em> (1903). &nbsp;</p>



<h4 class="wp-block-heading"><strong>COLD EYE, WARM HEART</strong>&nbsp;</h4>



<p class="wp-block-paragraph"><strong>Chekhov’s Doctors</strong>&nbsp;</p>



<p class="wp-block-paragraph">Several characteristics of Chekhov’s work reveal the influence of medical training and practice. He used clinical knowledge to lend accuracy to his descriptions of disease and medical situations. This characteristic is perhaps most clearly seen in the characterization of mental disorders. For example, the title character in <em>Ivanov</em> is a subtle portrait of a man suffering from clinical depression, who eventually commits suicide. The young heiress in “<a href="https://medhum.org/content/review/book-review/jack_coulehan/a-doctors-visit-by-anton-chekhov/">A Doctor’s Visit</a>” presents symptoms we would now label as generalized anxiety or panic disorder. The title character in <em>Uncle Vanya</em> appears to have a neurotic depression, a condition that meets today’s DSM 5 criteria for Persistent Depressive Disorder. In the peculiar story called “The Black Monk,” Chekhov describes a psychotic condition, presumably schizophrenia.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">Chekhov also drew from his medical experience in creating a multitude of physician characters. Doctors play significant roles in nearly 30 stories and in all of his major plays, except <em>The Cherry Orchard</em>. The author’s sensibility as a medical insider gives insight and poignancy to these characters, who range from committed altruists to lazy bureaucrats to burned out cases. Chekhov knew too much about the contemporary state of medical science to portray his doctors as curing many people. Thus, they often appear impotent. Yet, at their best Chekhov’s doctors convey the seamless fabric of tenderness (compassion) and steadiness (detachment) that lies at the heart of good medical practice. They also demonstrate courage, altruism, and self-effacement. For example, in “<a href="https://medhum.org/content/review/book-review/jack_coulehan/the-grasshopper-by-anton-chekhov/">The Grasshopper</a>” (1892) Dr. Dymov dies as a result of contracting diphtheria from a patient. Dr. Kirilov in “<a href="https://medhum.org/content/review/book-review/jack_coulehan/enemies-by-anton-chekhov/">Enemies</a>” (1887) demonstrates extraordinary devotion to duty by leaving his distraught wife and dead son in order to make an emergency house call.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">Perhaps Chekhov’s most textured portrait of a good physician appears in “A Doctor’s Visit” (1898). The protagonist, Korolyov, is a young doctor substituting for his boss, the professor of medicine. During the course of the story he moves from being a careful observer (detached concern) who ascertains that his young patient has nothing wrong but a “case of nerves,” to making an imaginative leap by which he connects more deeply with her. This empathic connection allows him to relieve some of her suffering by re-framing her illness. While he cannot solve her existential problems, his demonstration of solidarity leads her to trust him and to gain insight. Korolyov is like Chekhov himself. Dr. Pavel Archangelsky, who supervised Chekhov’s first job as a physician, captured the author’s ability to listen carefully when he later commented: “… he did everything with attention and a manifest love of what he was doing, especially toward the patients who passed through his hands. He listened quietly to them, never raising his voice, however tired he was and even if the patient was talking about things quite irrelevant to his illness.” (5) &nbsp;</p>



<p class="wp-block-paragraph">At the other end of the spectrum, some of Chekhov’s doctors are insensitive, incompetent, or impaired. Mayer, the callous medical student in “<a href="https://medhum.org/content/review/book-review/jack_coulehan/a-nervous-breakdown-by-anton-chekhov/">A Nervous Breakdown</a>” (1889) is a disaster. Mayer can rattle off statistics on the number of whores in London and Moscow, but he is unable to “see” (empathize with) the suffering of the living-and-breathing whores he encounters. Shelestov in “Intrigues” (1883) and the public health doctor in “Darkness” (1887) are examples of self-centered physicians a little further along in their professional lives. The former is superficial and pompous; the latter is narrow-minded and detached. &nbsp;</p>



<p class="wp-block-paragraph">Chekhov’s most complete insensitive and acquisitive social climber is found in “<a href="https://medhum.org/content/review/book-review/jack_coulehan/ionych-by-anton-chekhov/">Ionych</a>” (1898). Dr. Startsev, when the reader first meets him, is a young physician setting up practice in a provincial town. After surviving an unrequited infatuation with the daughter of a wealthy townsman, Startsev devotes himself entirely to work. His practice prospers and he branches out into real estate. As he grows corpulent and wealthy, Startsev loses touch with his patients (and his own humanity):&nbsp;</p>



<p class="wp-block-paragraph">“Probably because his throat is covered with rolls of fat, his voice has changed; it has become thin and sharp. His temper has changed, too; he has become ill humored and irritable. When he sees his patients, he is usually out of temper; he impatiently taps the floor with his stick, and shouts in his disagreeable voice: ‘Be so good as to confine yourself to answering my questions! Don’t talk so much!’” (6)&nbsp;</p>



<p class="wp-block-paragraph">“Ionych” traces the progressive destruction of a medical practitioner who finds that medical affluence is more to his liking than the emotionally and physically difficult path of medical virtue. &nbsp;</p>



<p class="wp-block-paragraph">Some of Chekhov’s most interesting doctors are tortured by existential or spiritual conflict. Chekhov accurately depicted professional burnout, a syndrome characterized by depletion, detachment, depersonalization, denial, and depression. (7) Dr. Kirilov, who chooses to “go to the office” instead of mourning with his wife, may illustrate the relatively early phase of emotional detachment. Dr. Ovchinnikov in “<a href="https://medhum.org/content/review/book-review/jack_coulehan/an-awkward-business-by-anton-chekhov/">An Awkward Business</a>” (1888) demonstrates the more advanced symptom of depersonalization when he slugs his assistant in response to the man’s incompetence. The overworked Ovchinnikov reacts to his personal depletion by objectifying and dehumanizing his assistant, a response that compromises the medical care he is trying to protect. Chebutykin in <em>The Three Sisters </em>(1900) illustrates the extreme of alcoholism. Though still employed as a military physician, Chebutykin convincingly asserts that he has forgotten all the medicine he ever learned. &nbsp;&nbsp;</p>



<p class="wp-block-paragraph">Ragin in “<a href="https://medhum.org/content/review/book-review/jack_coulehan/ward-no-6-by-anton-chekhov/">Ward #6</a>” (1892) and Nikolai Stepanovich in “A Dreary Story” (1889) are complex characters in whom depression and burnout are superimposed on a deep sense of existential failure. Like many of Chekhov’s characters, these physicians suffer from a lack of self-knowledge; they move through life relying on one form of self-deception or another. When they were younger, they committed themselves to noble ideals—Stepanovich to teaching and Ragin to practice in a provincial hospital. But in the long run they never “found” themselves. Professor Stepanovich yearns for a unifying moral principle that would knit together the fragments of his life. Dr. Ragin experiences his failure as emotional numbness. He yearns to suffer, assuming that if he experienced pain, he would be freed from his inability to feel. Thus, the academic physician pines for salvation in the cognitive sphere; the practitioner yearns for emotional redemption. In each case the focus remains inward, rather than turning outward to others, in whom salvation might actually be found.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph"><strong>Medical Sensibility</strong>&nbsp;</p>



<p class="wp-block-paragraph">Medical attitudes and methodology play a larger role in Chekhov’s work than does medical knowledge. He believed that his duty as a writer was to present his observations clearly and accurately; in other words, to lay out the data in an objective fashion and allow readers to reach their own conclusions, rather than providing an author’s interpretation. He wrote, “The artist should not be a judge of his characters and what they say, but only an objective observer.” (8)&nbsp;</p>



<p class="wp-block-paragraph">This objective attitude put him in conflict with most other Russian writers of the time. It was a major source of conflict with Tolstoy, who was widely revered at the time as a living saint. The two men enjoyed a close personal bond but approached writing with radically different philosophies. After his mid-life religious conversion, Tolstoy viewed literature as a way to communicate his moral vision. He preached the gospel of a radical Christianity, in which all men work together to achieve economic and social equality. However, he rejected the concept of material progress and was particularly skeptical of medicine and doctors. Chekhov, on the other hand, strove to be objective, to present people as they are and the world as it is. His medical training taught him to be a careful observer; his medical attitude made him leery of judging others.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">Other Russian writers and intellectuals spoke out against the czarist government’s repressive social institutions. While this protest was disguised in various ways in order to satisfy the state censors, late 19<sup>th</sup> century Russians (like their 20<sup>th</sup> century counterparts) learned to speak and understand a subtle code of insurrection. The intellectuals addressed “big issues”—democracy, education, social revolution. They wrote articles, organized meetings, and gave speeches. Here again, Chekhov found himself on a different wavelength. He rarely engaged in theoretical discussion and did not advocate radical social change. Rather, he preferred a pragmatic, case-based approach. His goals were relatively limited, but achievable. Treat the sick patient. Document and publicize the abysmal condition of prisoners. Contain the cholera epidemic. Provide financial assistance to keep farmers afloat during the famine. Raise money for a new school. On and on, but always specific and personal. &nbsp;</p>



<p class="wp-block-paragraph">In “About Love” (1898), the narrator speculates on the essence of love. Are there universal characteristics that identify love wherever it occurs? “What seems to fit one instance doesn’t fit a dozen others,” the narrator concludes. “It’s best to interpret each instance separately in my view, without trying to generalize. We must isolate each individual case, as doctors say.” (9) Indeed, Chekhov’s stories and plays rigorously follow this dictum. While many of his Russian contemporaries used fiction to advance moral or social theories, Dr. Chekhov focused on the complexities of human interaction. In Chekhov’s world, biology and circumstance constrain freedom. People often do not listen. Acts performed with good intentions frequently result in hurtful outcomes. And yet occasionally and in unexpected places, one finds a glimmer of love, courage, spirituality, or healing. “Never generalize,” Chekhov tells his readers. “Never theorize. Pay attention to the particulars. Focus on the concrete.” In this respect, the 19<sup>th</sup> century physician-storyteller presages the 20<sup>th</sup> century physician-poet, William Carlos Williams, who coined the aphorism, “No ideas but in things.”&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">In the long run, Chekhov’s objectivity and aversion to theory played a major role in the development of modern literature, as 20<sup>th</sup> century writers followed Chekhov in attempting to describe the world of human character and relationship objectively, and allowing that world to speak for itself. To the extent that Chekhov’s “lawful wedded wife” contributed to his sensitivity, skills, and attitudes, perhaps medical education and practice played an unanticipated role in the history of literature, his delightful “mistress.”&nbsp;</p>



<p class="wp-block-paragraph">Adapted in part from Coulehan J. (Ed.) <em>Chekhov&#8217;s Doctors,</em>&nbsp;Kent State University Press,&nbsp; 2003</p>



<p class="has-palette-color-5-background-color has-background has-small-font-size wp-block-paragraph">Sir Luke Fildes’ “The Doctor,&#8221; is in the Tate: <a href="https://commons.wikimedia.org/wiki/File:The_Doctor_Luke_Fildes_crop.jpg" target="_blank" rel="noreferrer noopener">File:The Doctor Luke Fildes crop.jpg &#8211; Wikimedia Commons</a>&nbsp;<br><br>Portrait of Chekhov:&nbsp;<a href="https://commons.wikimedia.org/wiki/File:Chekhov_1898_by_Osip_Braz.jpg" target="_blank" rel="noreferrer noopener">File: Chekhov 1898 by Osip Braz.jpg &#8211; Wikimedia Commons</a>&nbsp;<br><br><strong>REFERENCES</strong>&nbsp;<br>1, Chekhov A. The Selected Letters of Anton Chekhov, translated by Sidonie Lederer, New York, The Ecco Press, 1984, p.&nbsp;&nbsp;<br>2, Coope J. Doctor Chekhov. A Study in Literature and Medicine, Chale, Isle of Wight, Cross Publishing, 1997, p.&nbsp;&nbsp;<br>3, Chekhov A. The Selected Letters of Anton Chekhov, translated by Sidonie Lederer, New York, The Ecco Press, 1984, p. 81.&nbsp;<br>4, Chekhov A. A Journey to Sakhalin, translated by Brian Reeve, Cambridge, Ian Faulkner Publishing, 1993. &nbsp;<br>5, Coope J. Doctor Chekhov. A Study in Literature and Medicine, Chale, Isle of Wight, Cross Publishing, 1997, p. 27.&nbsp;<br>6, Chekhov A. Ionych. In: The Tales of Chekhov. Volume 3, translated by Constance Garnett, New York, The Ecco Press, 1972, p. 91.&nbsp;<br>7, Coulehan JL. Being a Physician. In: Mengel MB, Holleman WL (Eds.) Fundamentals of Clinical Practice. A Textbook on the Patient, Doctor, and Society, New York, Plenum Medical Books Company, 1997, pp. 73-101.&nbsp;<br>8, Chekhov A. The Selected Letters of Anton Chekhov, translated by Sidonie Lederer, New York, The Ecco Press, 1984, p. 54.&nbsp;<br>9, Chekhov A. About love. In: The Tales of Chekhov. Volume 5, translated by Constance Garnett, New York, The Ecco Press, 1972, p. 290.<br></p>



<p class="wp-block-paragraph"></p>



<h4 class="wp-block-heading">Reviews of Chekhov&#8217;s Stories </h4>


<div  class="ultp-post-grid-block wp-block-ultimate-post-post-grid-2 ultp-block-39f152 "><div class="ultp-block-wrapper" ><div class="ultp-loading"><div class="ultp-loading-spinner" style="width:100%;height:100%"><div></div><div></div><div></div><div></div><div></div><div></div><div></div><div></div><div></div><div></div><div></div><div></div></div></div><div class="ultp-block-items-wrap ultp-block-row"><div class="ultp-block-item post-id-11231"><div class="ultp-block-content-wrap ultp-block-content-overlay"><div class="ultp-block-image ultp-block-image-opacity ultp-block-image-overlay ultp-block-image-simgleGradient"><a href="https://medhum.org/article/narrative/jack_coulehan/cold-eye-warm-heart-medicine-and-anton-chekhov/" ><img decoding="async"  alt="Cold Eye, Warm Heart: Medicine and Anton Chekhov  "  src="https://medhum.org/wp-content/uploads/2025/07/BrowserPreview_tmp-9-300x168.jpg" /></a></div><div class="ultp-block-content ultp-block-content-bottomPosition"><div class="ultp-block-content-inner"><h3 class="ultp-block-title "><a href="https://medhum.org/article/narrative/jack_coulehan/cold-eye-warm-heart-medicine-and-anton-chekhov/" >Cold Eye, Warm Heart: Medicine and Anton Chekhov  </a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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6286</span></div></div></div></div></div><div class="ultp-block-item post-id-11341"><div class="ultp-block-content-wrap ultp-block-content-overlay"><div class="ultp-block-image ultp-block-image-opacity ultp-block-image-overlay ultp-block-image-simgleGradient"><a href="https://medhum.org/review/book-review/jack_coulehan/an-awkward-business-by-anton-chekhov/" ><img decoding="async"  alt="An Awkward Business by Anton Chekhov "  src="https://medhum.org/wp-content/uploads/2025/08/BrowserPreview_tmp-2-1-300x168.jpg" /></a></div><div class="ultp-block-content ultp-block-content-bottomPosition"><div class="ultp-block-content-inner"><h3 class="ultp-block-title "><a href="https://medhum.org/review/book-review/jack_coulehan/an-awkward-business-by-anton-chekhov/" >An Awkward Business by Anton Chekhov </a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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1431</span></div></div></div></div></div><div class="ultp-block-item post-id-11364"><div class="ultp-block-content-wrap ultp-block-content-overlay"><div class="ultp-block-image ultp-block-image-opacity ultp-block-image-overlay ultp-block-image-simgleGradient"><a href="https://medhum.org/review/book-review/jack_coulehan/the-grasshopper-by-anton-chekhov/" ><img decoding="async"  alt="The Grasshopper by Anton Chekhov"  src="https://medhum.org/wp-content/uploads/2025/08/BrowserPreview_tmp-5-300x168.jpg" /></a></div><div class="ultp-block-content ultp-block-content-bottomPosition"><div class="ultp-block-content-inner"><h3 class="ultp-block-title "><a href="https://medhum.org/review/book-review/jack_coulehan/the-grasshopper-by-anton-chekhov/" >The Grasshopper by Anton Chekhov</a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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1252</span></div></div></div></div></div><div class="ultp-block-item post-id-11326"><div class="ultp-block-content-wrap ultp-block-content-overlay"><div class="ultp-block-image ultp-block-image-opacity ultp-block-image-overlay ultp-block-image-simgleGradient"><a href="https://medhum.org/review/book-review/jack_coulehan/ionych-by-anton-chekhov/" ><img decoding="async"  alt="Ionych by Anton Chekhov "  src="https://medhum.org/wp-content/uploads/2025/08/BrowserPreview_tmp-3-300x168.jpg" /></a></div><div class="ultp-block-content ultp-block-content-bottomPosition"><div class="ultp-block-content-inner"><h3 class="ultp-block-title "><a href="https://medhum.org/review/book-review/jack_coulehan/ionych-by-anton-chekhov/" >Ionych by Anton Chekhov </a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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2065</span></div></div></div></div></div><div class="ultp-block-item post-id-11336"><div class="ultp-block-content-wrap ultp-block-content-overlay"><div class="ultp-block-image ultp-block-image-opacity ultp-block-image-overlay ultp-block-image-simgleGradient"><a href="https://medhum.org/review/book-review/jack_coulehan/a-doctors-visit-by-anton-chekhov/" ><img decoding="async"  alt="A Doctor&#8217;s Visit  by Anton Chekhov "  src="https://medhum.org/wp-content/uploads/2025/08/BrowserPreview_tmp-1-1-300x168.jpg" /></a></div><div class="ultp-block-content ultp-block-content-bottomPosition"><div class="ultp-block-content-inner"><h3 class="ultp-block-title "><a href="https://medhum.org/review/book-review/jack_coulehan/a-doctors-visit-by-anton-chekhov/" >A Doctor&#8217;s Visit  by Anton Chekhov </a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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1730</span></div></div></div></div></div><div class="ultp-block-item post-id-11368"><div class="ultp-block-content-wrap ultp-block-content-overlay"><div class="ultp-block-image ultp-block-image-opacity ultp-block-image-overlay ultp-block-image-simgleGradient"><a href="https://medhum.org/review/book-review/jack_coulehan/ward-no-6-by-anton-chekhov/" ><img decoding="async"  alt="Ward No. 6 by Anton Chekhov"  src="https://medhum.org/wp-content/uploads/2025/08/BrowserPreview_tmp-6-300x168.jpg" /></a></div><div class="ultp-block-content ultp-block-content-bottomPosition"><div class="ultp-block-content-inner"><h3 class="ultp-block-title "><a href="https://medhum.org/review/book-review/jack_coulehan/ward-no-6-by-anton-chekhov/" >Ward No. 6 by Anton Chekhov</a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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Mar 11, 2025</span><span class="ultp-post-view ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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3245</span></div></div></div></div></div><div class="ultp-block-item post-id-11317"><div class="ultp-block-content-wrap ultp-block-content-overlay"><div class="ultp-block-image ultp-block-image-opacity ultp-block-image-overlay ultp-block-image-simgleGradient"><a href="https://medhum.org/review/book-review/jack_coulehan/a-nervous-breakdown-by-anton-chekhov/" ><img decoding="async"  alt="A Nervous Breakdown by Anton Chekhov "  src="https://medhum.org/wp-content/uploads/2025/08/BrowserPreview_tmp-4-300x168.jpg" /></a></div><div class="ultp-block-content ultp-block-content-bottomPosition"><div class="ultp-block-content-inner"><h3 class="ultp-block-title "><a href="https://medhum.org/review/book-review/jack_coulehan/a-nervous-breakdown-by-anton-chekhov/" >A Nervous Breakdown by Anton Chekhov </a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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Feb 11, 2025</span><span class="ultp-post-view ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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1477</span></div></div></div></div></div><div class="ultp-block-item post-id-11348"><div class="ultp-block-content-wrap ultp-block-content-overlay"><div class="ultp-block-image ultp-block-image-opacity ultp-block-image-overlay ultp-block-image-simgleGradient"><a href="https://medhum.org/review/book-review/jack_coulehan/enemies-by-anton-chekhov/" ><img decoding="async"  alt="Enemies by Anton Chekhov"  src="https://medhum.org/wp-content/uploads/2025/08/BrowserPreview_tmp-1-2-300x168.jpg" /></a></div><div class="ultp-block-content ultp-block-content-bottomPosition"><div class="ultp-block-content-inner"><h3 class="ultp-block-title "><a href="https://medhum.org/review/book-review/jack_coulehan/enemies-by-anton-chekhov/" >Enemies by Anton Chekhov</a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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1566</span></div></div></div></div></div><div class="ultp-block-item post-id-11429"><div class="ultp-block-content-wrap ultp-block-content-overlay"><div class="ultp-block-image ultp-block-image-opacity ultp-block-image-overlay ultp-block-image-simgleGradient"><a href="https://medhum.org/multimedia/podcast/russell_teagarden/painting-an-ideal-luke-fildes-the-doctor-with-hannah-darvin/" ><img decoding="async"  alt="Painting an Ideal: Luke Fildes’ The Doctor with Hannah Darvin"  src="https://medhum.org/wp-content/uploads/2025/07/BrowserPreview_tmp-9-300x168.jpg" /></a></div><div class="ultp-block-content ultp-block-content-bottomPosition"><div class="ultp-block-content-inner"><h3 class="ultp-block-title "><a href="https://medhum.org/multimedia/podcast/russell_teagarden/painting-an-ideal-luke-fildes-the-doctor-with-hannah-darvin/" >Painting an Ideal: Luke Fildes’ The Doctor with Hannah Darvin</a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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		<title>The Happiest Couple</title>
		<link>https://medhum.org/article/narrative/dave_hsu/the-happiest-couple/</link>
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		<dc:creator><![CDATA[Dave Hsu]]></dc:creator>
		<pubDate>Mon, 28 Jul 2025 12:38:11 +0000</pubDate>
				<category><![CDATA[Narrative]]></category>
		<category><![CDATA[A Chinese City Doctor’s Notebook]]></category>
		<category><![CDATA[adaptation]]></category>
		<category><![CDATA[aging]]></category>
		<category><![CDATA[caregiving]]></category>
		<category><![CDATA[chinese]]></category>
		<category><![CDATA[community]]></category>
		<category><![CDATA[compassion]]></category>
		<category><![CDATA[cultural revolution]]></category>
		<category><![CDATA[elderly]]></category>
		<category><![CDATA[Family]]></category>
		<category><![CDATA[growth]]></category>
		<category><![CDATA[healing]]></category>
		<category><![CDATA[immigration]]></category>
		<category><![CDATA[independence]]></category>
		<category><![CDATA[language barrier]]></category>
		<category><![CDATA[laughter]]></category>
		<category><![CDATA[resilience]]></category>
		<category><![CDATA[seniors]]></category>
		<category><![CDATA[storytelling]]></category>
		<category><![CDATA[Toronto]]></category>
		<category><![CDATA[trauma]]></category>
		<guid isPermaLink="false">https://medhum.org/?p=11248</guid>

					<description><![CDATA[A moving portrait of resilience, aging, and love through the remarkable immigrant journey of the happiest couple this doctor has met.]]></description>
										<content:encoded><![CDATA[
<h4 class="wp-block-heading">A Chinese City Doctor’s Notebook–Chapter Four</h4>



<p class="wp-block-paragraph">After eighteen years of clinical practice, I think I’ve looked after somewhere between four and five thousand patients in total. Some patients I meet only a handful of times. Others I know like extended family. There are all types of patients: pleasant ones, well-behaved ones, as well as difficult ones that try my patience and of course, some that I’d rather forget.</p>



<p class="wp-block-paragraph">Of course, most of my patients are Chinese immigrants and immigrating is a difficult business, not something to be undertaken by the faint of heart. New home. Often a new language. Usually a whole new culture. The immigrant experience means uprooting a person or a family from all that they are comfortable with and placing them in a strange and unfamiliar setting.</p>



<p class="wp-block-paragraph">If being an immigrant is hard, then being an immigrant as a senior citizen is even harder. Try learning English for the first time when you’re in your sixties and seventies. Try going to the bank or dealing with a leaky faucet when you are a stranger in a foreign land. And yet, I’ve seen countless examples over the years of Chinese seniors starting over in Canada somewhere in their sixth or seventh decades. I often wonder. What is it that makes them want to start over yet again in their life? Is it simply that they want to be closer to their children and grandchildren who’ve come to Canada? Is there nobody left back in their home country? Do they really know what they are in for? Can anyone really be prepared for it?</p>



<p class="wp-block-paragraph">In my own family, I’ve seen this process of elderly immigrants play out firsthand. Both of my grandmothers spent portions of their later years living with my parents in Toronto, with varying degrees of success. Through them, I witnessed just how difficult it could be to be an elderly Chinese immigrant in Toronto, which is probably, with its enormous Chinese population, already one of the most Chinese-friendly cities in the world outside of Asia.&nbsp;</p>



<p class="wp-block-paragraph">In Taipei, my grandmothers could walk outside in the mornings and bring back fresh produce and noodles from the market down the street in their respective neighborhoods. Never mind that the produce in the Food City and Miracle Food Mart of my childhood was nowhere near as a fresh or tasty as the food culled on the subtropical island of Taiwan: in Toronto, our family lived in the suburbs of Scarborough, and later North York, so my grandmothers could only visit a store if my father was free on the weekends to drive them.</p>



<figure class="wp-block-image alignright size-large is-resized"><img loading="lazy" decoding="async" width="1024" height="768" src="https://medhum.org/wp-content/uploads/2025/07/43_Chinatown_Toronto-1024x768.jpg" alt="" class="wp-image-14354" style="width:350px" srcset="https://medhum.org/wp-content/uploads/2025/07/43_Chinatown_Toronto-1024x768.jpg 1024w, https://medhum.org/wp-content/uploads/2025/07/43_Chinatown_Toronto-300x225.jpg 300w, https://medhum.org/wp-content/uploads/2025/07/43_Chinatown_Toronto-768x576.jpg 768w, https://medhum.org/wp-content/uploads/2025/07/43_Chinatown_Toronto-1536x1152.jpg 1536w, https://medhum.org/wp-content/uploads/2025/07/43_Chinatown_Toronto-1320x990.jpg 1320w, https://medhum.org/wp-content/uploads/2025/07/43_Chinatown_Toronto.jpg 1920w" sizes="auto, (max-width: 1024px) 100vw, 1024px" /><figcaption class="wp-element-caption">Chinatown, Toronto</figcaption></figure>



<p class="wp-block-paragraph">Of course, my grandmothers couldn’t read or speak much English. In the era before cellular phones and Google maps, my parents taught them to navigate the Toronto subway system by memorizing the pattern of the coloured tiles at the individual subway stations, back when the city made a point of individualizing each station’s appearance. Dundas Station meant yellow coloured tiles. This was important because this way my grandmother knew which spot to get off if she wanted to find Chinatown.</p>



<p class="wp-block-paragraph">My maternal grandmother abhorred Canada. Her complaints were plentiful: the produce didn’t taste fresh, the winter weather was too cold, it was too difficult to go places without a car and the language barrier was insurmountable. Ultimately, nothing about life here was as easy or as convenient for her as life in Taipei. At some point, she actually learned enough English to pass her Canadian citizenship exam. But years later, she defiantly informed me that she had returned all that knowledge back to her teachers. She had forgotten it all.</p>



<p class="wp-block-paragraph">My paternal grandmother didn’t voice her complaints about Canada as much. Whether it was because she was more content, or simply because she tended to keep more to herself, I’m not sure what she ultimately thought about being a Chinese immigrant. But watching from afar as she spent the long months from spring to fall in our house (she always returned to Taiwan before it got too cold), living with my mom while my father was mostly out of the house, I couldn’t help but surmise that things weren’t really that easy. She didn’t learn much English, and save for her morning walk around the neighbourhood, she rarely ventured outside the house, preferring instead to spend most of her days watching satellite television from Taiwan. Living with grandchildren you don’t know very well, a son who is usually at work, and making nice with your daughter-in-law on a regular basis; this was another form of the Chinese Canadian immigrant experience.</p>



<p class="wp-block-paragraph">This phenomenon, that of the frustrated elderly immigrant, is one that I’ve seen countless times in my medical practice. Flummoxed by a language they don’t understand, struggling to live under the roof of a son or daughter-in-law that they aren’t completely in sync with, and often tasked with the thankless job of babysitting little grandchildren for no pay, the immigrant elderly experience is fraught with trials and tribulations. And that is before real crises hit the family: a car accident, or a health situation, or worse. Crises are difficult enough when you are surrounded by your social safety net of familiar family and friends. But now, imagine being in an unfamiliar country when life unloads a crisis as it is wont to do. The examples are endless, but the end result is the same. Frustration, resentment, and ultimately regret. Why did we ever bother to come here?</p>



<p class="wp-block-paragraph">Over the years, I’ve seen versions of it all. Disinterested adult children chauffeuring their elderly parents to doctor appointments, and those children then falling asleep in the chairs while their parents are describing their symptoms next to them. Other times, I’ve seen seniors get chastised verbally by their children when they try to ask me one question too many. I’ve treated elderly patients who got into physical altercations with their son-in-laws. And it goes both ways too: I’ve seen adult children come to me to request Prozac knowing that their mother-in-law will be arriving a month from now.</p>



<p class="wp-block-paragraph">When I sat down to write this piece about elderly immigrants, I thought about which of my patients I really wanted to know more about. One couple, the Chens, immediately leapt into my mind. I’ve changed their names here to protect their privacy.&nbsp;</p>



<figure class="wp-block-image alignright size-full is-resized"><img loading="lazy" decoding="async" width="640" height="960" src="https://medhum.org/wp-content/uploads/2025/07/tran-nhu-tuan-dC0lg-f1W6U-unsplash.jpg" alt="" class="wp-image-11292" style="width:320px" srcset="https://medhum.org/wp-content/uploads/2025/07/tran-nhu-tuan-dC0lg-f1W6U-unsplash.jpg 640w, https://medhum.org/wp-content/uploads/2025/07/tran-nhu-tuan-dC0lg-f1W6U-unsplash-200x300.jpg 200w, https://medhum.org/wp-content/uploads/2025/07/tran-nhu-tuan-dC0lg-f1W6U-unsplash-600x900.jpg 600w" sizes="auto, (max-width: 640px) 100vw, 640px" /><figcaption class="wp-element-caption">Photo of an elderly Asian couple <br>by &nbsp;<a href="https://unsplash.com/@kooldark?utm_content=creditCopyText&amp;utm_medium=referral&amp;utm_source=unsplash">TRAN NHU TUAN</a></figcaption></figure>



<p class="wp-block-paragraph">On the surface, there’s nothing special about them. They’re an elderly Chinese couple, living in Toronto while their children live elsewhere. They aren’t particularly well off, and they spend their retirement doing typical Chinese immigrant senior citizen things: attending doctor visits, taking classes at the community centre, and so forth.</p>



<p class="wp-block-paragraph">But dig past the surface, and they are unique. They’ve been married for over sixty years, and they are quite possibly the happiest, most resilient seniors I know. When things happen to them that would certainly derail others, they laugh about it, avoid blaming others and then move on. I’ve seen it happen in my office many times.</p>



<p class="wp-block-paragraph">A few years back, Mr. Chen was struck by a car while crossing the street as a pedestrian, injuring his shoulder. For many patients, this would be a cue for initiating legal proceedings and a demand for compensation, as well as an endless stream of doctor visits and requests for pain medications. How did Mr. Chen handle it? He laughed it off, dismissed my question about “who was at fault” in the accident and recovered within a few months while doing some exercises with a physiotherapist.</p>



<p class="wp-block-paragraph">Not too long after that, Mrs. Chen was found to have a slowly growing brain tumour. For many patients, this would be cause for anxiety, angst and even hysteria. But for Mrs. Chen, it was just another fact of life. She decided that in her mid-eighties, she didn’t need to risk surgery, and she’d continue to live day by day, even though the neurosurgeons thought that a more aggressive approach might improve her mortality and her quality of life, especially if her vision were to decline further. But they didn’t take into account that she was already fine with her quality of life and didn’t see the need to potentially upend things with surgical complications. Now, three years later, she’s remained the same, happy, laughing patient, who always makes a point to end our visits with a “good bye“ or ”thank you very much,” spoken in English that she learned in her English as a Second Language class.</p>



<p class="wp-block-paragraph">Actually, I’ll correct what I said earlier. The Chens aren’t just the happiest seniors I know. They are quite possibly the happiest, most well-balanced people I know. What is the secret sauce of their happiness? That’s what I set out to find out. And that’s what I explained to them when I brought them into my office to be interviewed a few weeks ago.</p>



<p class="wp-block-paragraph"><strong>This is their story.</strong></p>



<p class="wp-block-paragraph">The first thing to point out is that neither Mr. nor Mrs. Chen’s life was easy. If we suspected that part of the magic sauce of resilience is the ability to live a peacefully blissful existence in a Garden of Eden type environment, the Chens’ lives, dating back to their childhood, shows that this is not the case.</p>



<p class="wp-block-paragraph">Mr. Chen was born in a small town in the province of Shanxi, in Northern China in 1937. At that time, China was at war, trying to stave off Japanese occupation, and so he grew up in an environment where war and violence were everywhere. In fact, the Japanese began bombing his town of Qixian three days before he was born. As a child, he watched as soldiers of all the different warring sides-the Communist People’s Liberation Army, the Nationalist Kuomintang, and the Japanese—took turns filing through the town’s lone major road. His father was a businessman who later made a name for himself selling tea and often had to travel. Mr. Chen remembered that for some years, he would see his father only once a year. Fortunately, their family avoided major mishaps during the war years, but he remembers seeing body bags piled up by the side of the road. When World War II ended and the occupation by Japan ended, he recalled seeing people dancing in the streets.</p>



<p class="wp-block-paragraph">Meanwhile, Mrs. Chen was born in 1938 in Tianjin in Northern China, one out of four children. Her father was a businessman, and her mother was a housewife. During the war years, her family moved regularly, living at different times in Sichuan, then Nanjing, and finally in Shanghai.</p>



<p class="wp-block-paragraph">She had some recollection of planes flying overhead while she lived in Shanghai, and that her mother didn’t want her to attend school for fear of violence. But for the most part though, she didn’t see much of the violence of war firsthand.</p>



<p class="wp-block-paragraph">Of course, the cycle of war in China didn’t end when the Japanese occupation ended. After the Japanese departed, the Chinese Civil War between the communists and the Kuomintang promptly resumed and only ended with the Communist Party victorious in 1949.</p>



<p class="wp-block-paragraph">By liberation day of that year, Mr. Chen’s father had moved the family to Beijing. He was now a sixth grade student and heard the horns and sirens announcing the liberation of China.&nbsp;</p>



<figure class="wp-block-image alignright size-large is-resized"><img decoding="async" src="https://upload.wikimedia.org/wikipedia/commons/thumb/c/cf/1967-04_%E5%B1%B1%E8%A5%BF%E9%9D%A9%E5%91%BD%E9%80%A0%E5%8F%8D%E6%B4%BE%E5%A4%A7%E8%81%94%E5%90%88%E5%A4%BA%E6%9D%83%E8%AA%93%E5%B8%88%E5%A4%A7%E4%BC%9A.jpg/960px-1967-04_%E5%B1%B1%E8%A5%BF%E9%9D%A9%E5%91%BD%E9%80%A0%E5%8F%8D%E6%B4%BE%E5%A4%A7%E8%81%94%E5%90%88%E5%A4%BA%E6%9D%83%E8%AA%93%E5%B8%88%E5%A4%A7%E4%BC%9A.jpg" alt="" style="width:350px"/><figcaption class="wp-element-caption"><a href="https://upload.wikimedia.org/wikipedia/commons/thumb/c/cf/1967-04_%E5%B1%B1%E8%A5%BF%E9%9D%A9%E5%91%BD%E9%80%A0%E5%8F%8D%E6%B4%BE%E5%A4%A7%E8%81%94%E5%90%88%E5%A4%BA%E6%9D%83%E8%AA%93%E5%B8%88%E5%A4%A7%E4%BC%9A.jpg/960px-1967-04_%E5%B1%B1%E8%A5%BF%E9%9D%A9%E5%91%BD%E9%80%A0%E5%8F%8D%E6%B4%BE%E5%A4%A7%E8%81%94%E5%90%88%E5%A4%BA%E6%9D%83%E8%AA%93%E5%B8%88%E5%A4%A7%E4%BC%9A.jpg" target="_blank" rel="noreferrer noopener">Culture Revolution (wikimedia)</a></figcaption></figure>



<p class="wp-block-paragraph">He would go on to continue his education in Beijing, and it was here that he witnessed the Chinese Cultural Revolution taking place. He was a university student in Beijing by the time the Cultural Revolution reached full swing, but he kept his nose out of politics and was not much directly affected. By now, there were no more actual classes in university. As engineering students, they spent time working in factories. He even recalled how during the Great Leap Forward, the students busied themselves with trying to figure out how to make iron into steel at Mao Zedong’s behest.</p>



<p class="wp-block-paragraph">Meanwhile, Mrs. Chen had studied to become a mechanical engineer. She was one of only three women studying computers at her university, Tianda in 1960. She went on to study in an engineering school and then became a professor from 1961 until her retirement in 1998, at the age of 60.</p>



<p class="wp-block-paragraph">Spread out over almost two decades, the Chinese Cultural Revolution under Mao Zedong marked the complete upending of all societal norms. Scholars were vilified. Universities were closed. Anyone with links to bourgeois thinking or a questionable family background was blacklisted. Countless people lost their lives and countless more lost their livelihoods.</p>



<p class="wp-block-paragraph">Mr. and Mrs. Chen’s experience through the Cultural Revolution was notable mostly in that they managed to remain apolitical. Academics came under siege during the Mao era, and intellectuals were frequent targets of Mao’s reforms. They knew that it was better to avoid political conflict than to get into the heat of it.</p>



<figure class="wp-block-pullquote has-palette-color-5-background-color has-background"><blockquote><p>Mr. Chen still remembers how a colleague of his being was almost buried alive before being rescued at the last minute because he refused to recant certain political beliefs. He remembers peers of his losing their jobs as well as outbursts of bloodshed on the campuses at those times.</p></blockquote></figure>



<p class="wp-block-paragraph">When asked how he managed to survive this, he admits that he wasn’t that bothered by the political crises that surrounded them. He learned mostly to keep his mouth shut and keep out of trouble.</p>



<p class="wp-block-paragraph">Mrs. Chen, meanwhile, became a scribe during meetings during the Cultural Revolution. In fact, she points out that her propensity for smiling and laughter showed up even here, as people identified her during these meetings as the “one who was always giggling.” On a more serious note, she remembers colleagues of hers who died during the years of infighting, but like her husband, she avoided most political issues herself.</p>



<p class="wp-block-paragraph">Of course, all my elderly patients from China are survivors of the Cultural Revolution in one way, shape or form. And of course, there is a survivorship bias here. I’m talking to survivors, those who not only lived through it, but those who lived through China’s gradual rebuild, through Tiananmen Square, through Deng Xiaoping, and now live through to be able to tell their tales as Chinese Canadian immigrants.</p>



<p class="wp-block-paragraph">Of course, while China was engulfed by these years of political upheaval, the Chens moved on with their personal lives. They had already met as university students but really got to know each other better in their final year of university. They ended up matching positions in Beijing together in 1962 and have been together ever since.</p>



<p class="wp-block-paragraph">The Chens have two daughters, both of whom are now successful computer engineers with graduate degrees from prestigious North American universities. Their grandchildren are also studying to become engineers as well.</p>



<p class="wp-block-paragraph">When her children were small, the Chens were busy as young academics. They were fortunate that Mrs. Chen’s hours weren’t long. She only taught two to three classes a week. Furthermore, the university had a kindergarten on site, and her mother came to help look after the grandchildren so that they could continue to work.</p>



<p class="wp-block-paragraph">When asked about parenting tips, Mrs. Chen points out that they’ve been asked this very question many times by their friends over the years: “Your daughters are both so successful. However did you manage to inspire them?”&nbsp;</p>



<p class="wp-block-paragraph">Mrs. Chen tells me that she believes in parenting by example. She and her husband were both academics, so books were always plentiful in the house, and the parents could always be found reading. So, in time, the children saw them doing this and became intellectually curious themselves. “Don’t yell and berate,” she informs me. “That style of parenting doesn’t work anyways.”</p>



<p class="wp-block-paragraph">What is unique about Mr. and Mrs. Chen’s immigration story is that while they have lived in Toronto for more than fifteen years, their two daughters have never lived here. This was a result of curious circumstances, but of particular relevance to our discussion.</p>



<p class="wp-block-paragraph">When they first decided to come to North America to be closer to their children, one of their daughters was still studying in Manitoba and the other was on Long Island. Toronto, they reasoned, was roughly equidistant between Long Island and Winnipeg, and so they settled here.</p>



<p class="wp-block-paragraph">A few years in though, their daughter in Manitoba married a Dutch husband, and before long, she had relocated to Holland to be closer to his family. This meant that the Chens would no longer be equidistant between the two daughters.</p>



<p class="wp-block-paragraph">Still, rather than hinder their immigration experience, the fact that neither of their children are nearby seems to have strengthened their immigrant experience and actually gets to the root of how the Chens have thrived in Toronto. The Chens have never been reliant on their children. They made a point on arriving in Canada, to seek out the local LINC (Language Instruction for Newcomers to Canada) program, and began attending English classes on a regular basis. With no children to take them around, they’ve learned to make use of public transit. She tells me about how many of her fellow seniors at the community centre are reliant on their children to get around in Toronto. “They’re miserable,” she says. “They can’t do anything without their children.”</p>



<p class="wp-block-paragraph">In my experience, many Chinese immigrants, even younger ones, pay only lip service to these offerings. With the influx of Chinese immigrants to Canada, it is possible to carry on a passable existence here and almost never speak English. But the passable existence has limits. You can rely on using exclusively Chinese-speaking service providers only so much, and there’s certainly a limit to how much patience your own children will have for acting as your translators.</p>



<p class="wp-block-paragraph">The Chens moved into an apartment building near a bustling shopping centre, replete with a neighbouring Chinese grocery store and a large population of Chinese seniors. This is a far cry from other seniors like my own grandparents, who often end up living with their children in the suburbs, trapped on suburban streets where the nearest community centre or grocery store can’t easily be accessed except by cars which they cannot drive.</p>



<p class="wp-block-paragraph">Through their English classes, the Chens became connected to various local Chinese community groups. Mrs. Chen proudly recalls that this was where she was introduced to me, having been informed that there was a local family physician who spoke Mandarin and was accepting new patients.</p>



<figure class="wp-block-image alignright size-full is-resized"><img loading="lazy" decoding="async" width="640" height="960" src="https://medhum.org/wp-content/uploads/2025/07/katie-moum-7XGtYefMXiQ-unsplash.jpg" alt="" class="wp-image-11296" style="width:320px" srcset="https://medhum.org/wp-content/uploads/2025/07/katie-moum-7XGtYefMXiQ-unsplash.jpg 640w, https://medhum.org/wp-content/uploads/2025/07/katie-moum-7XGtYefMXiQ-unsplash-200x300.jpg 200w, https://medhum.org/wp-content/uploads/2025/07/katie-moum-7XGtYefMXiQ-unsplash-600x900.jpg 600w" sizes="auto, (max-width: 640px) 100vw, 640px" /><figcaption class="wp-element-caption">&#8220;Everyone is Welcome&#8221; by &nbsp;<a href="https://unsplash.com/@katiemoum">Katie Moum</a></figcaption></figure>



<p class="wp-block-paragraph">When asked what her overall sense of her immigrant journey is, Mrs. Chen tells me that she is most grateful for how she is treated by people in the Canadian service industries. A case in point: earlier in the week prior to our interview, she had received a notification of an error in her tax return from Revenue Canada. She took it upon herself to call Revenue Canada herself, and explained to me that in Canada, if she tells the agent on the other end of the line that her English isn’t very good, the person will invariably slow down and cheerfully take their time helping answer her questions. She says that this is a level of personal attention that simply doesn’t exist in China and is one of the things she is most grateful for here.</p>



<p class="wp-block-paragraph">I think back to my own experiences dealing with the service industry, from my cellular provider to Revenue Canada. I’ve experienced many feelings when dealing with these people, but gratitude has never been near the top of the list.</p>



<p class="wp-block-paragraph">These days, when the Chens visit their children in the US or in Holland, things are pleasant. Both of their daughters married foreigners. One of their son-in laws is Dutch and the other is American. They describe their son-in laws as both being extra polite, and extremely attentive to their daughter’s needs. But of course they would describe them this way. It only makes sense for such a happy couple to be able to get along just fine with their son-in-laws.</p>



<p class="wp-block-paragraph">After sitting and talking to the Chens, I took away several ideas from their story. It seems that a stressful childhood environment does not preclude being happy and balanced as an adult.&nbsp;</p>



<p class="wp-block-paragraph">But the most remarkable trait of this amazing couple that I have learned is their willingness to adopt a growth mindset. I wonder who taught them this? Certainly, they grew up long before terms like growth and fixed mindsets became common parlance. I wonder if this comes from their background as educators. How else can I explain their willingness to come to Toronto, a country in a strange land where they had no existing family members? How else can I understand their enthusiasm for learning English at an age when many elderly are convinced that an old dog can no longer learn new tricks?</p>



<p class="wp-block-paragraph">From this growth mindset, comes the steadfast determination to look after themselves and remain independent from their children. They know they can look after themselves, and their children know it too. In this day and age of complicated intra-family dynamics, when the best-selling psychology book on Amazon is titled <em>Children of Emotionally Immature Parents</em>, I realize the Chens have somehow figured all this out and they didn’t need a self-help book to do it.</p>



<p class="wp-block-paragraph">We model ourselves, whether consciously or not on the people around us. When I was younger, I imagined that my life as a senior probably would mean living like my grandmothers: a lot of sitting around, imbibing television shows while grumbling about how nothing is quite as good as it was in the good old days. But then I think about the Chens, and it makes me realize that we’re never really too old to reinvent ourselves, or too old to move to a new country, or even too old to learn a new language. All is possible, as long as we remember to smile and laugh.</p>



<p class="has-small-font-size wp-block-paragraph">Web image by &nbsp;<a href="https://unsplash.com/@northwoodn?utm_content=creditCopyText&amp;utm_medium=referral&amp;utm_source=unsplash" target="_blank" rel="noreferrer noopener">Li Lin</a>.</p>



<h4 class="wp-block-heading"><br>Additional Chapters from A Chinese City Doctor’s Notebook</h4>


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1687</span></div></div></div></div><div class="ultp-block-item ultp-block-media post-id-11248"><div class="ultp-block-content-wrap"><div class="ultp-block-image ultp-block-image-zoomIn"><a href="https://medhum.org/article/narrative/dave_hsu/the-happiest-couple/" ><img decoding="async"  loading="lazy" alt="The Happiest Couple"  src="https://medhum.org/wp-content/uploads/2025/07/BrowserPreview_tmp-11-150x150.jpg" /></a></div><div class="ultp-block-content"><h3 class="ultp-block-title "><a href="https://medhum.org/article/narrative/dave_hsu/the-happiest-couple/" >The Happiest Couple</a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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07.28.25</span><span class="ultp-post-view ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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1423</span></div></div></div></div><div class="ultp-block-item ultp-block-media post-id-10596"><div class="ultp-block-content-wrap"><div class="ultp-block-image ultp-block-image-zoomIn"><a href="https://medhum.org/article/narrative/dave_hsu/the-things-we-dont-talk-about-when-we-talk-about-dying/" ><img decoding="async"  loading="lazy" alt="The Things We Don’t Talk About When We Talk About Dying "  src="https://medhum.org/wp-content/uploads/2025/05/alexander-grey-r6_xcsNg0kw-unsplash-e1746725533225-1-150x150.jpg" /></a></div><div class="ultp-block-content"><h3 class="ultp-block-title "><a href="https://medhum.org/article/narrative/dave_hsu/the-things-we-dont-talk-about-when-we-talk-about-dying/" >The Things We Don’t Talk About When We Talk About Dying </a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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05.13.25</span><span class="ultp-post-view ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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2005</span></div></div></div></div><div class="ultp-block-item ultp-block-media post-id-9541"><div class="ultp-block-content-wrap"><div class="ultp-block-image ultp-block-image-zoomIn"><a href="https://medhum.org/article/narrative/dave_hsu/one-patient-two-systems/" ><img decoding="async"  loading="lazy" alt="One Patient, Two Systems "  src="https://medhum.org/wp-content/uploads/2025/02/zac-ong-HzD40FXD1hY-unsplash-e1740113067137-1-150x150.jpg" /></a></div><div class="ultp-block-content"><h3 class="ultp-block-title "><a href="https://medhum.org/article/narrative/dave_hsu/one-patient-two-systems/" >One Patient, Two Systems </a></h3><div class="ultp-block-meta ultp-block-meta-emptyspace ultp-block-meta-style3"><span class="ultp-block-date ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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02.24.25</span><span class="ultp-post-view ultp-block-meta-element"><svg xmlns="http://www.w3.org/2000/svg" fill="none" viewBox="0 0 24 24">
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2691</span></div></div></div></div></div></div><div class="pagination-block-html" aria-hidden="true" style="display: none;"></div></div>]]></content:encoded>
					
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		<title>Reading Lolita in Tehran by Azar Nafisi</title>
		<link>https://medhum.org/review/book-review/jacalyn_duffin/reading-lolita-in-tehran-by-azar-nafisi/</link>
					<comments>https://medhum.org/review/book-review/jacalyn_duffin/reading-lolita-in-tehran-by-azar-nafisi/#respond</comments>
		
		<dc:creator><![CDATA[Jacalyn Duffin]]></dc:creator>
		<pubDate>Mon, 07 Jul 2025 12:41:44 +0000</pubDate>
				<category><![CDATA[Book Review]]></category>
		<category><![CDATA[Video]]></category>
		<category><![CDATA[bestseller]]></category>
		<category><![CDATA[censorship]]></category>
		<category><![CDATA[defiance]]></category>
		<category><![CDATA[education]]></category>
		<category><![CDATA[freedom]]></category>
		<category><![CDATA[Identity]]></category>
		<category><![CDATA[Iran]]></category>
		<category><![CDATA[literature]]></category>
		<category><![CDATA[Memoir]]></category>
		<category><![CDATA[novel]]></category>
		<category><![CDATA[patriarchy]]></category>
		<category><![CDATA[protest]]></category>
		<category><![CDATA[repression]]></category>
		<category><![CDATA[resistance]]></category>
		<category><![CDATA[revolution]]></category>
		<category><![CDATA[storytelling]]></category>
		<category><![CDATA[students]]></category>
		<category><![CDATA[Tehran]]></category>
		<category><![CDATA[trauma]]></category>
		<category><![CDATA[War]]></category>
		<category><![CDATA[women]]></category>
		<guid isPermaLink="false">https://medhum.org/?p=11171</guid>

					<description><![CDATA[A powerful memoir revealing how classic literature can illuminate, challenge, and resist authoritarianism, especially through the eyes of courageous women.]]></description>
										<content:encoded><![CDATA[
<p class="wp-block-paragraph">In 2025, both Israel and the United States dropped bombs on Iran for its nuclear ambitions, its support of terrorism, its arrest, torture and murder of journalists. Meanwhile, Iranian women continue to protest the rigid rules of dress and behavior following the 2022 death of Mahsa Amini for wearing her hijab improperly. This memoir of more than two decades ago explores the reality of life in the Islamic republic and juxtaposes it to the timeless messages to be found in classics of 19<sup>th</sup> and 20<sup>th</sup> C English fiction.&nbsp;</p>



<figure class="wp-block-image alignright size-full is-resized"><img loading="lazy" decoding="async" width="400" height="400" src="https://medhum.org/wp-content/uploads/2025/07/BrowserPreview_tmp-35.jpg" alt="" class="wp-image-11177" style="object-fit:cover;width:280px;height:280px" srcset="https://medhum.org/wp-content/uploads/2025/07/BrowserPreview_tmp-35.jpg 400w, https://medhum.org/wp-content/uploads/2025/07/BrowserPreview_tmp-35-300x300.jpg 300w, https://medhum.org/wp-content/uploads/2025/07/BrowserPreview_tmp-35-150x150.jpg 150w" sizes="auto, (max-width: 400px) 100vw, 400px" /><figcaption class="wp-element-caption">Azar Nafisi</figcaption></figure>



<p class="wp-block-paragraph">The Iranian-American author, Azar Nafisi (b. 1955), reminisces about her experiences teaching English literature in Iran before, during and after the revolution and the Iran-Iraq war (1980-1988). The book opens near the end of her sojourn in Tehran. A small group of young women, who have been friends since they were University students, gather in the author’s home to read and discuss English novels. They wear western clothes, remove their veils, and eat sweets. Some have been in prison. They conceal their simple purpose from fathers, husbands, brothers, because meeting to read Western fiction would be construed as an act of defiance.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">In four sections, two named for twentieth-century novels and two for nineteenth-century authors &#8212; “Lolita” “Gatsby” “James” and “Austen,” Nafisi constructs a series of flashbacks that describe the events of late 1970s to the 1990s in the inner and outer world of an academic woman. The books and writers used in the section headings have walk-on parts or starring roles that jar in this ostensibly alien context. Yet, they work surprisingly well for the women students, stimulating them to think in new ways about the situation in which they find themselves. Conversely, as the students assimilate the English and American writers into their world, we learn more about their Iran.&nbsp;</p>



<p class="wp-block-paragraph">Myriad details of moment, garb, color, and food, evoke the everyday “feel” of protests and atrocities that are known in the West only through journalist’s reports. The long descriptions contrast sharply with a relentless and probably deliberate lack of precision about several basic things. For example, the author withholds her age and the identity and the nature of her relationship with “my magician,” a greatly admired man –perhaps a lover or a teacher&#8211;who seems to exist on chocolate and philosophy.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">Possessives and the first-person singular are used liberally (“my students”) to remind us that this is one woman’s story—notwithstanding the solace, but barely developed presence, of a husband, two children, and a mother. The decision may have been made to protect personal privacy. But the result also conspires to build a narcissistic tone, as if the author marvels at her own creativity, attractiveness, resilience, survival, and escape.&nbsp;&nbsp;</p>



<figure class="wp-block-image alignright size-full is-resized"><img loading="lazy" decoding="async" width="655" height="1000" src="https://medhum.org/wp-content/uploads/2025/07/61-THaGuP3L._UF10001000_QL80_.jpg" alt="" class="wp-image-11179" style="width:280px" srcset="https://medhum.org/wp-content/uploads/2025/07/61-THaGuP3L._UF10001000_QL80_.jpg 655w, https://medhum.org/wp-content/uploads/2025/07/61-THaGuP3L._UF10001000_QL80_-197x300.jpg 197w" sizes="auto, (max-width: 655px) 100vw, 655px" /></figure>



<p class="wp-block-paragraph">Some of the most engaging passages describe the male students’ difficulty with literature that they perceive to be immoral (for its sexual content or for the agency it assigns women). In the social climate, the young men are utterly unable to accept great writing on its own terms. One wonders how they would react to Nafisi’s own book and her portrayal of them. The wonderful device of a mock trial of Gatsby (pp. 120-136) challenges the students by going to the heart of the conflict of politics, religion, literature, and justice; it would work well as an excerpt and is worthy of emulation in our classrooms. The work deepens our understanding and complicates the impressions of Iran that are generated by a steady diet of news reports.&nbsp;</p>



<p class="wp-block-paragraph">In 2024, <em>Reading Lolita in Tehran</em> became a film directed by Israeli filmmaker Eran Riklis.&nbsp;</p>



<p class="wp-block-paragraph">Born into a privileged, Iranian family and educated in both England and the United States, Nafisi saw the great changes in her beloved country as the encroachment of a retrograde, unthinking tyranny, hostile to women and to reason. She moved to the United States in 1997 and became a citizen in 2008. She has served as a professor of English literature in several universities, holds at least nine honorary doctorates and numerous awards and prizes for her creative work.&nbsp;</p>



<figure class="wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio"><div class="wp-block-embed__wrapper">
<iframe loading="lazy" title="Iranian author Azar Nafisi warns: &#039;Totalitarian mindsets can exist anywhere&#039; • FRANCE 24 English" width="1310" height="737" src="https://www.youtube.com/embed/MGgMIi3MUWE?feature=oembed" frameborder="0" allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share" referrerpolicy="strict-origin-when-cross-origin" allowfullscreen></iframe>
</div></figure>



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<iframe loading="lazy" title="Azar Nafisi &quot;The Republic of Imagination&quot;" width="1310" height="737" src="https://www.youtube.com/embed/6EO-IMW6mLw?feature=oembed" frameborder="0" allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share" referrerpolicy="strict-origin-when-cross-origin" allowfullscreen></iframe>
</div></figure>



<p class="wp-block-paragraph">  </p>



<p class="has-palette-color-5-background-color has-background has-small-font-size wp-block-paragraph"><em><strong>Reading Lolita in Tehran</strong></em><br>Azar Nafisi<br>Random House, New York 2003<br>347 pages<br><br><strong>From the Vault:</strong><br>In these times, certain works of literature seem to be as relevant to us now as when they were published &#8212; possibly more relevant than the times that they depict. From the vault of the now closed&nbsp;<em>Literature, Arts and Medicine Database</em>, we will pluck a few items for their power and timeliness.<br><br>Web photo by &nbsp;<a href="https://unsplash.com/@ariyandv">ariyan Dv</a>&nbsp;</p>



<p class="wp-block-paragraph"></p>
]]></content:encoded>
					
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		<title>The Remarkable Life of Ibelin</title>
		<link>https://medhum.org/review/film-review/dave_hsu/the-remarkable-life-of-ibelin/</link>
					<comments>https://medhum.org/review/film-review/dave_hsu/the-remarkable-life-of-ibelin/#respond</comments>
		
		<dc:creator><![CDATA[Dave Hsu]]></dc:creator>
		<pubDate>Thu, 17 Apr 2025 12:28:42 +0000</pubDate>
				<category><![CDATA[Film Review]]></category>
		<category><![CDATA[Focus]]></category>
		<category><![CDATA[Podcast]]></category>
		<category><![CDATA[Video]]></category>
		<category><![CDATA[Apollo on Call]]></category>
		<category><![CDATA[blog]]></category>
		<category><![CDATA[community]]></category>
		<category><![CDATA[Disability]]></category>
		<category><![CDATA[documentary]]></category>
		<category><![CDATA[empathy]]></category>
		<category><![CDATA[focus-video-games]]></category>
		<category><![CDATA[friendships]]></category>
		<category><![CDATA[gaming]]></category>
		<category><![CDATA[Ibelin Redmoore]]></category>
		<category><![CDATA[Identity]]></category>
		<category><![CDATA[Mats Steen]]></category>
		<category><![CDATA[muscular dystrophy]]></category>
		<category><![CDATA[Norway]]></category>
		<category><![CDATA[online]]></category>
		<category><![CDATA[parenting]]></category>
		<category><![CDATA[podcast]]></category>
		<category><![CDATA[relationship]]></category>
		<category><![CDATA[resilience]]></category>
		<category><![CDATA[storytelling]]></category>
		<category><![CDATA[Sundance]]></category>
		<category><![CDATA[Technology]]></category>
		<category><![CDATA[terminal illness]]></category>
		<category><![CDATA[theater]]></category>
		<category><![CDATA[video games]]></category>
		<category><![CDATA[virtual]]></category>
		<category><![CDATA[War]]></category>
		<category><![CDATA[warcraft]]></category>
		<category><![CDATA[World of Warcraft]]></category>
		<guid isPermaLink="false">https://medhum.org/?p=9971</guid>

					<description><![CDATA[A poignant documentary exploring how a young man with muscular dystrophy found profound connection and purpose in virtual worlds.]]></description>
										<content:encoded><![CDATA[
<h4 class="wp-block-heading">From Apollo on Call–a Medhum Podcast</h4>



<hr class="wp-block-separator has-text-color has-palette-color-12-color has-alpha-channel-opacity has-palette-color-12-background-color has-background is-style-wide" style="margin-top:var(--wp--preset--spacing--40);margin-bottom:var(--wp--preset--spacing--40)"/>



<iframe style="border-radius:12px" src="https://open.spotify.com/embed/episode/372i765tswyrncDTsinKVO?utm_source=generator" width="100%" height="250" frameBorder="0" allowfullscreen="" allow="autoplay; clipboard-write; encrypted-media; fullscreen; picture-in-picture" loading="lazy"></iframe>



<hr class="wp-block-separator has-text-color has-palette-color-12-color has-alpha-channel-opacity has-palette-color-12-background-color has-background is-style-wide" style="margin-top:var(--wp--preset--spacing--40);margin-bottom:var(--wp--preset--spacing--40)"/>



<figure class="wp-block-image alignright size-full is-resized"><img loading="lazy" decoding="async" width="565" height="565" src="https://medhum.org/wp-content/uploads/2025/04/BrowserPreview_tmp-1.png" alt="" class="wp-image-9975" style="width:280px" srcset="https://medhum.org/wp-content/uploads/2025/04/BrowserPreview_tmp-1.png 565w, https://medhum.org/wp-content/uploads/2025/04/BrowserPreview_tmp-1-300x300.png 300w, https://medhum.org/wp-content/uploads/2025/04/BrowserPreview_tmp-1-150x150.png 150w" sizes="auto, (max-width: 565px) 100vw, 565px" /><figcaption class="wp-element-caption">Mats Sheen</figcaption></figure>



<p class="wp-block-paragraph">The <strong>Remarkable Life of Ibelin </strong>is a 2024 documentary about the life of Mats Steen, a Norwegian man who died from complications of Duchenne Muscular Dystrophy. The movie explores how Mats, unbeknownst to the people around him, adopts a full online persona that allows him to experience the fullness of the human experience through a video game, experiences that were denied to him in the physical world because of his illness.&nbsp;</p>



<p class="wp-block-paragraph">I grew up during the nascent age of video games and home computers. While our parents looked at computers as tools that might help us in the future, as children, we looked at computers mostly as a source of fun. We crowded around arcade machines at convenience stores and arcades, throwing away quarters until our pockets emptied. We congregated at our friends’ houses after school and on weekends, befriending whoever was fortunate enough to have a console or a computer powerful enough to support the latest graphics.&nbsp;</p>



<figure class="wp-block-image alignright size-full is-resized"><img loading="lazy" decoding="async" width="280" height="280" src="https://medhum.org/wp-content/uploads/2025/04/BrowserPreview_tmp.png" alt="" class="wp-image-9976" style="width:280px;height:auto" srcset="https://medhum.org/wp-content/uploads/2025/04/BrowserPreview_tmp.png 280w, https://medhum.org/wp-content/uploads/2025/04/BrowserPreview_tmp-150x150.png 150w" sizes="auto, (max-width: 280px) 100vw, 280px" /><figcaption class="wp-element-caption">Mats&#8217; online profile image (Ibelin)</figcaption></figure>



<p class="wp-block-paragraph">Now though, as a parent and physician, my nostalgic view of video games is tempered by a mixture of skepticism and fear when it comes to games and internet technology. To hear the skeptics discuss it, video games are one of the root causes of the obesity epidemic, and online games and social media are part of the teen mental health crisis. Schools bring in experts to teach parents the perils of children spending time online while pediatricians pound out guidelines that describe “healthy limits on screen time.” &nbsp;</p>



<p class="wp-block-paragraph">This month, on <strong>Apollo On Call</strong>, we sit down to talk about video games and how there is another side to this narrative. We look at the story of Ibelin and talk about how video games may add to our lives in ways that many of us have never considered.&nbsp;</p>



<p class="wp-block-paragraph">Thank you, Mats, for showing us a different way to think about the online world.&nbsp;</p>



<p class="wp-block-paragraph">Luki and Dave&nbsp;</p>



<hr class="wp-block-separator has-text-color has-palette-color-12-color has-alpha-channel-opacity has-palette-color-12-background-color has-background is-style-wide"/>



<p class="has-small-font-size wp-block-paragraph"></p>



<details class="wp-block-details has-palette-color-1-color has-text-color has-link-color has-small-font-size wp-elements-46cb255012f9931349c931f73ba89eae is-layout-flow wp-block-details-is-layout-flow" style="font-style:normal;font-weight:700" open><summary>TRANSCRIPT FROM THIS EPISODE</summary>
<p class="wp-block-paragraph">00:00&nbsp;</p>



<p class="wp-block-paragraph">Welcome to <strong>Apollo On Call</strong>, the podcast of MedHum.org. I&#8217;m your host, Dr. David Hsu. Hope you enjoy the show.&nbsp;</p>



<p class="wp-block-paragraph">00:18&nbsp;</p>



<p class="wp-block-paragraph">Alright, we are back on <strong>Apollo On Call</strong>, the podcast of <strong>MedHum.org</strong> and I&#8217;m your host, Dr. David Hsu, and I&#8217;m here with my co-host, Mr. Luki Danukarjanto, who is back, and we&#8217;re here to talk about movies.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">00:36&nbsp;</p>



<p class="wp-block-paragraph">LD: This is going to be a departure from our normal cadence, because we typically talk about books, but movies are a nice change.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">00:52&nbsp;</p>



<p class="wp-block-paragraph">DH: Alright. The movie that we&#8217;re talking about is <strong>The Remarkable Life of Ibelin</strong>, and it&#8217;s a really interesting movie. It exists right at the intersection of all the things we&#8217;re talking about &#8211; about medicine, life, death, technology. So Luki, give us a breakdown of what this movie is about and why we chose it.&nbsp;</p>



<p class="wp-block-paragraph">01:14&nbsp;</p>



<p class="wp-block-paragraph">LD: One of the reasons we chose it, it’s award winning. It won two awards at the 2024 Sundance Film Festival, was Oscar nominated and, well, it is also available on Netflix. They made it accessible for us. But essentially, this story is about Mats Steen. He is a Norwegian man who has Duchenne&#8217;s. And Duchenne&#8217;s is a disease of, I guess, the neurological area where it confines him into a wheelchair. So basically, as a young boy, he&#8217;s able to walk around, and as he gets older, then he has less and less mobility. The first part of the story goes through his life, His parents try to take care of him the best they can. He becomes a little bit more challenged in terms of being able to live through life. He gets more confined to his wheelchair, and he ends up in the world of video games.[The film] shows his parents talking to him, and basically a little bit upset, because he lives in this video game world, and he misses various life events &#8211; I think there was some key outing that they all were looking forward to go to, which he didn&#8217;t want to go to, because he had some sort of video game online event. The first part of it ends with him passing away, and his parents understand that he has this blog site where he talks a little bit about his adventures, and they post about his departure and his funeral, and they post it online, and unbeknownst to them, they start getting responses, and not just one response or 10. I think hundreds, if not thousands, of responses of how Mats, or Ibelin, in the game that was his online character, how he touched their lives. And then the second part of the story really talks about how his parents uncover this whole new world and life that Mats Steen or Ibelin lived unbeknownst to them, and how many lives that he touched, what things he did, all in an online world that he wasn&#8217;t otherwise able to do in the real world because he was stuck in a wheelchair. So that&#8217;s the major premise. And Dave, what else would you add to it?&nbsp;</p>



<p class="wp-block-paragraph">03:55&nbsp;</p>



<p class="wp-block-paragraph">DH: I think you covered the main arc of the movie very, very well. I mean, that was basically everything that happened. The only thing I&#8217;m going to add is the game that he was actually playing was a game that people who know anything about computer games know about, and that&#8217;s <strong>World of Warcraft</strong>, which has been a very, very popular online game for more than 10 years, I think.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">04:14&nbsp;</p>



<p class="wp-block-paragraph">LD: I think it still has a following, and they keep releasing updates and things like that. So it probably isn&#8217;t as popular as it used to be, but I think it&#8217;s still fairly well-played.&nbsp;</p>



<p class="wp-block-paragraph">04:26&nbsp;</p>



<p class="wp-block-paragraph">DH: Right, now, people might be wondering, what does this movie have to do with MedHum, or medicine in the humanities? And actually, that was my initial take when I heard, you know, people talking about this movie during the MedHum, monthly meeting. But after I watched it, I was like, Okay, I kind of get this now because, you know, I went to medical school and did medical training, and I have this idea in my head that sure, there&#8217;s the humanities in medicine, like history of medicine, bioethics, science and society, these kind of topics, right? I didn&#8217;t think a movie about a video game or about a gamer would fit into this, but then I watched the movie, and I mean, of course, Mats is dying. He has a terminal illness. It&#8217;s a very sad story that way. But that&#8217;s definitely the medical angle in terms of how we access the story from a medical standpoint. But then this whole business about how the game can support his emotional well-being, and how the game can add to his mental health, and even so far as the movie continues, it actually doesn&#8217;t talk just about Mats. Some of these friends that he meets online enter the story in the second half of the movie, right? And we actually hear from them how much Mats helped them. They tell us about their own troubles, like, why were they on <strong>World of Warcraft</strong>? Why did they need Mats to help them through their personal life problems? And then you start to realize that the game is a therapeutic tool in a way, right? Which I never would have thought about before, right? I mean, honestly, most days when I think about games as a parent, I&#8217;m like, No more games. Turn off the computer to the kids all the time, right? So this presented this whole technology of gaming in a different light, and I thought it was really, really interesting, and made me really challenge my assumptions of what medical humanities is all about. It really broadened my understanding of it. So that&#8217;s what we&#8217;re here to talk about.&nbsp;</p>



<p class="wp-block-paragraph">06:36&nbsp;</p>



<p class="wp-block-paragraph">LD: It also puts a bit of a modern spin to it, because traditionally, you wouldn&#8217;t have thought video games, but with the prevalence of things like VR, it&#8217;s just a matter of time until more people will be sucked into these worlds. And with AI, who knows what&#8217;s going to happen with all that as well? So we&#8217;re probably just at the iceberg&#8217;s tip of all this coming through, and we probably need to watch more of these to be more prepared.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">07:05&nbsp;</p>



<p class="wp-block-paragraph">DH: Well I like it from the MedHum point of view, because it shows that we are at the cutting-edge of what is going on. Because there&#8217;s this idea that, you know, oh, you&#8217;re talking about medicine and the arts. It&#8217;s probably like some old book or that you&#8217;re going to read, right, some ancient text about something. But no, this is like cutting-edge modern stuff, and we&#8217;re here to break it down. Now, before we go any further, I think you and I should declare our bias. You know, people are always declaring their bias before these medical talks. Like, you know, I&#8217;m not an employee of this drug company, and so therefore I can give an unbiased opinion about such and such. We rarely will have the opportunity to do that. But regarding this movie, Luki, are you a gamer? Like, what is your stance on video games?&nbsp;</p>



<p class="wp-block-paragraph">07:48&nbsp;</p>



<p class="wp-block-paragraph">LD: I definitely was a gamer, for sure. I got into my career path, I took computer science as an undergrad because I wanted to code video games. I wanted to do that for a living, and so definitely growing up, it was a fixture of everyday life. Probably spent too many not restless nights on a console in front of a PC.&nbsp;</p>



<p class="wp-block-paragraph">08:19&nbsp;</p>



<p class="wp-block-paragraph">LH:Okay, so this is in your teens and 20s, I presume.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">08:23&nbsp;</p>



<p class="wp-block-paragraph">LD:Yeah.&nbsp;</p>



<p class="wp-block-paragraph">08:24&nbsp;</p>



<p class="wp-block-paragraph">DH: Okay, how about now?&nbsp;</p>



<p class="wp-block-paragraph">08:26&nbsp;</p>



<p class="wp-block-paragraph">LD: I’m a casual gamer, so right now I have some, I guess they&#8217;re called idle games, like little puzzle games that I probably spend too many hours than I should, right? They are a bit of a time suck, and then I&#8217;ll be like, Ah, I spent another hour or two on this stupid thing, and what did I gain from it? Not much. So I definitely have that, but not the hardcore console games. My kids have the Roblox, the Minecraft, the other things that they&#8217;re starting to get into. They try to get me to join their Brawl Stars club league or something, and I play with them a little bit, but that&#8217;s just more to help be that father figure to make sure they stay out of trouble. But okay, how about you, Dave, are you a gamer?&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">09:15&nbsp;</p>



<p class="wp-block-paragraph">DH: I used to be a bit of a gamer, but it sounds like if we had to, if we had standings, you would be higher in the standings of gaming than I. I used to play games regularly, I remember growing up, I was fascinated by computers. I loved playing games, but I didn&#8217;t spend a ton of time on it, right? Like, yes, long afternoons after school lets out, weekends booting up the computer first thing in the morning, for sure, but I think by the time I got into adult life, you know, as a resident and then working as a physician, I&#8217;ve gradually drifted away from games. I know some of my buddies who still play a lot, but I&#8217;m definitely someone who has kind of left that. So actually, I&#8217;ve never played <strong>World of Warcraft</strong>. I don&#8217;t know, have you played that before?&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">10:01&nbsp;</p>



<p class="wp-block-paragraph">LD: I have not. I know my younger brother did, and I would watch him play, try to understand his fascination with it. But I could see it, because at a point in time I probably would have jumped into that world.&nbsp;</p>



<p class="wp-block-paragraph">10:19&nbsp;</p>



<p class="wp-block-paragraph">DH: The <strong>World of Warcraft</strong> is the sequel to <strong>Warcraft II</strong> and <strong>Warcraft III</strong>, which are a couple outstanding classic games.&nbsp;</p>



<p class="wp-block-paragraph">10:27&nbsp;</p>



<p class="wp-block-paragraph">LD: Absolutely, but it was a little bit more expansive than I was used to, because in <strong>Warcraft</strong> you create farms and barracks and this giant world of stuff.&nbsp;</p>



<p class="wp-block-paragraph">10:41&nbsp;</p>



<p class="wp-block-paragraph">DH: Right, an entirely different type of thing, really.&nbsp;</p>



<p class="wp-block-paragraph">10:44&nbsp;</p>



<p class="wp-block-paragraph">LD: Exactly, so very much during that point in time I was immersed. I remember back in the day when we still had desktops, and laptops were like a luxury, we would bring our whole like tower units to people&#8217;s houses and have parties. So, we were of that ilk. But after getting into the adult working world, that kind of fell off a little bit and then kind of picked its way up on occasion when you find the right friends. Hey, we haven&#8217;t played blah blah blah in a while. So we play online and connect, but probably not as hardcore as Mr. Mats here.&nbsp;</p>



<p class="wp-block-paragraph">11:24&nbsp;</p>



<p class="wp-block-paragraph">DH: Definitely not as hardcore as this. Now, before we leave the disclaimer, you are a parent, you mentioned this that your kids do game a bit.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">11:32&nbsp;</p>



<p class="wp-block-paragraph">LD: Yeah.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">11:33&nbsp;</p>



<p class="wp-block-paragraph">DH: Are you okay with them gaming? Are you one of these reluctant to allow your kids to use technology parents? Where do you stand in that regard?&nbsp;</p>



<p class="wp-block-paragraph">11:41&nbsp;</p>



<p class="wp-block-paragraph">LD: I like to allow them to play, because kids should play. Now I don&#8217;t prefer them being on it, 24/7, that sort of thing, or even for the majority of the time, because I would love them to be outside and playing, doing something a little bit more physical, is definitely my stance, but at the same time, it&#8217;s part of the world, right? It&#8217;s not like they can avoid playing video games. It&#8217;s part of normal childhood nowadays. So do I want to take that away from them? No, but do I want them to be completely immersed and addicted to it? Absolutely not either. So it&#8217;s kind of that balance. But right, how about yours?&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">12:27&nbsp;</p>



<p class="wp-block-paragraph">DH: Same, same. I mean, we&#8217;re reformed gamers from our youth, but conveniently we forget that when we talk to our children, we forget how into it we were, right?. The problem is the bells and whistles that come with games these days, it&#8217;s so enticing, not just for the kids, even dad wants to play, right? But I&#8217;m always the bearer of bad news, like I&#8217;m the bucket of cold water. Like these are bad for you. You don&#8217;t want to be addicted. You can play, but we&#8217;re gonna turn it off in 15 minutes. I’m always issuing these decrees, which, when I look back, are not things I would have wanted to follow as a kid at all. So I get the frustration that my children feel, but I also feel like games these days are a little bit different, like they really can take over your life, in a way. And I think this movie is going to talk about this, but from a different vantage point, because we&#8217;re so used to hearing about how bad games are for you and how bad your smartphone is, and how social media gives you anxiety, right? And leads to teen suicide and all these bad things about games. This movie, in its own little way, is telling us the opposite. So I think it&#8217;s worth talking about.&nbsp;</p>



<p class="wp-block-paragraph">13:36&nbsp;</p>



<p class="wp-block-paragraph">LD: I think it&#8217;s painting the entire game world with one broad brush, right? To say it&#8217;s all bad, but there are pockets which are very helpful for a lot of folks who have certain challenges. So in this particular case, Mats, who was confined to a wheelchair, right? Otherwise, most kids, you&#8217;d want them to go to the park and play. Well, that&#8217;s not an option for him, right? So he could go to the <strong>World of Warcraft</strong> and play with other folks there. So that&#8217;s kind of his outlet, where he can have his own life. And the movie showcases where he had this other life, right, that his parents didn&#8217;t even know. And I think one of the opening scenes was something with his dad talking about the eulogy at his funeral, where he says something to the effect where Mats, being confined to a wheelchair, will never having friends and falling in love and writing all these things. But as the second part of the movie goes through, then you actually recount that he went through all those emotions, but he did all that online, which was quite an interesting achievement.&nbsp;</p>



<p class="wp-block-paragraph">14:55&nbsp;</p>



<p class="wp-block-paragraph">DH: It&#8217;s interesting because if he wasn&#8217;t disabled, right, we might look at that and say, That&#8217;s kind of weird, right? Like, if you came and told me that, you know, your buddy doesn&#8217;t go out of his room, sits at home all day, and fell in love with someone online that he never met and had real feelings and real emotions for someone who he&#8217;s never met or seen &#8211; we would find this kind of odd, right? In this case, Mats, of course, he gets a pass because he&#8217;s ill. He cannot go outside, right? And, because of that, it changes our whole understanding of the things that have happened to him. It allows us to be a little bit more understanding, which I think is really important. One thing I&#8217;ll say is that, as a family physician, I have seen in my practice in the last few years, a handful of times patients, young people, usually male, but also a few female &#8211; there&#8217;s more than one of these in my practice, and I don&#8217;t have a huge practice, out of a couple thousand patients, this has happened like four or five times &#8211; where a child does not come out of their room. They hit teenagerness, and at some point as a teenager, they&#8217;re in their room all day, and the parents come to see me. They&#8217;re really frustrated, they think something&#8217;s really wrong with their child. Their child doesn&#8217;t come down to eat meals. Their child&#8217;s on the computer all the time, and when they try to turn off the computer, the child gets very upset, right? They&#8217;re smashing things, they&#8217;re threatening to kill themselves. The parents are at wit&#8217;s end, and this is a really new phenomenon. There&#8217;s no medical textbook that explains how to deal with this, because this is a really new thing. It&#8217;s happening just in the last couple, maybe just the last decade, or maybe in Asia it&#8217;s happening a little bit longer, right? And when parents see their child acting like this, they get scared, and this actually happens in the movie. As the movie progresses, one of Mats&#8217; friends, a woman named Lisette, is part of the story, and she actually befriends Mats in the game. But at some point, she&#8217;s the one that he falls in love with. And at some point, she vanishes from the game, just completely disappears. And it turns out, in real life, her parents were fed up with her being on the computer all day, and made her log off and turned off the computer. Classic dictator parents style, right, without understanding why she needed to be there. And then they sent her off to school and she wasn&#8217;t allowed to log on, and it was a miserable year or two, I think, where this went on before she finally got allowed back into the game because Mats wrote her parents a letter. But I&#8217;ve seen this happen. I&#8217;ve seen this story from the angle of those parents. They come into my office at wits end, and no one knows what to do about it, right? The medical system says, Okay, maybe we&#8217;ll send them to a psychiatrist, right? Or sometimes, well, if he won&#8217;t come out of his room, can we send him to the emergency room for a psychiatric evaluation, right? I&#8217;ve seen emergency docs try to tell these kids you&#8217;re gonna go start going to school again, right? And then the kid agrees, and then maybe they go for a few days, but within a few weeks, the problem comes back again. So there&#8217;s something really insidious about the games, which I will admit this messes with me as a parent, because I see this and I&#8217;m like, okay, so these games are that addictive, right? So, son, we&#8217;re not gonna buy a Nintendo, sorry, right? But really that&#8217;s not fair. We&#8217;re drawing this generalization from these specific things that we&#8217;re seeing, but these specific things we&#8217;re seeing are so frightening, right? And this movie touches on all this and is asking us the question, are games all good or all bad, and if not, where should we stand on it? And why do people get into it? And why are people so addicted to it that they can&#8217;t stop playing? All of these questions get addressed to some degree, much more here than in any medical textbook or talk that I&#8217;ve ever attended.&nbsp;</p>



<p class="wp-block-paragraph">18:54&nbsp;</p>



<p class="wp-block-paragraph">LD: These are good questions and conversations to have with yourself, with your parents, your kids, depending on what life stage you are, because I think it&#8217;s one where it&#8217;s just gonna increase, right, with these games and virtual reality and whatever, there&#8217;s probably going to be more augmented reality, There&#8217;s another movie called Ready Player One, where he has an immersive set and basically everybody lives in two worlds, like the real world and this virtual one. And, well, I don&#8217;t know how long from now where that will be a regular thing, but it wasn&#8217;t too long ago when things like E Sports, weren&#8217;t around. But now, kids are making millions of dollars and a very good career playing video games.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">19:52&nbsp;</p>



<p class="wp-block-paragraph">DH: Now in the movie, Mats&#8217; parents initially reluctantly allow him to become an avid gamer. They basically are like, okay, he&#8217;s got this terminal illness. There&#8217;s nothing else you can do, so we&#8217;re just gonna let him play games. It&#8217;s almost like saying this kid has suffered enough, we&#8217;ll just let him have some fun, right? And that&#8217;s totally cool, right? That makes complete sense as a parent, right? Like, what else are you gonna do as a parent? The funny thing, though, is the parents actually, by doing this, give Mats his whole life, right? They give him the key to humanity, finding emotional and human connection, without realizing. They think they&#8217;re just going to give him something to idle away the time, right? Time killer, pass some time, and it turns out to be a lot of time, right? But they&#8217;re like, honestly, what else is he gonna do, right? So that&#8217;s all that they think it is. And I think that, to me, my favorite part of the movie, is when they&#8217;re so startled when people start emailing them when they see that Mats has died, and they start to realize that their son, who had been sitting there on the computer and he could barely move by the end, so he&#8217;s just like fiddling with a mouse, staring at the screen. They probably just left him in the room for hours and hours, and didn&#8217;t interact with him too much. They probably never asked him what&#8217;s actually happening in the game. And in effect, he had this whole alter ego, right, that was like a fully formed adult person in the game that they knew nothing about. He was just sitting there in the room next to them, and they knew nothing about it. I just found that to be such a moving mental image that, to me, made the whole movie worth it, I was like, Luki, we gotta watch this. This is actually outstanding.&nbsp;</p>



<p class="wp-block-paragraph">21:36&nbsp;</p>



<p class="wp-block-paragraph">LD: I&#8217;m wondering how many of your patients might have a similar type of situation, where they might be living this whole new life, or a whole different life, absolutely, and their parents are kind of berating them and saying, like, what are you doing? You&#8217;re no good, blah, blah, blah. And meanwhile, they might be having all these amazing relationships and experiences online, and it&#8217;s just they&#8217;re doing it in a way that they can make sense of it, versus where, quote, unquote, we traditionally do so in the real world.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">22:11&nbsp;</p>



<p class="wp-block-paragraph">DH: In the movie, Mats actually gives us a potential answer for this, right? There is a character in the movie who also befriends Ibelin in the game. She&#8217;s a lady that has an autistic son. At some point in the game, she starts to share with Mats that she has a really difficult relationship with her son who can&#8217;t communicate with her and he is also playing <strong>World of Warcraft</strong>. So Mats suggests, why don&#8217;t you play the game with him? Right? And so they start playing the game together, and this becomes a bonding thing. They actually have a virtual hug and it changes the trajectory of her relationship with her son, right? So that whole thing was really eye opening, right? Because maybe it takes a person who plays the game and has lived the game and knows how therapeutic it is to understand. A patient comes into the medical office and they&#8217;re asking me, a reformed gamer, like I played video games 20 years ago. I&#8217;m like turn that thing off. Just like you, turn that thing off and get outside and exercise, right? Maybe we&#8217;re approaching this problem from the wrong angle. So I think there are some very neat messages that Mats teaches us in this movie.&nbsp;</p>



<p class="wp-block-paragraph">23:20&nbsp;</p>



<p class="wp-block-paragraph">LD: For sure, and it sounds like you have a new prescription to provide some of your patients as they come in.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">23:25&nbsp;</p>



<p class="wp-block-paragraph">DH: Next time, if your kid isn&#8217;t talking to you, make an avatar and get in the game and just see what they&#8217;re actually up to. A lot of times, I think that probably is true for parenting, right? We and our kids, we kind of veer off. We feel like we know what&#8217;s right for our kids without really knowing what&#8217;s going on with them. It doesn&#8217;t have to be this extreme, like in this game, but sometimes, maybe getting to understand what makes our kids tick is useful. But anyway, I&#8217;m just digressing into parenting world.&nbsp;</p>



<p class="wp-block-paragraph">23:52&nbsp;</p>



<p class="wp-block-paragraph">LD: Well, no, I think that&#8217;s an important part of the story. And it reminds me of some of the expressions that my kids talk about. So now they&#8217;ve got into the point where the younger one is recounting back in my day, because we say that as we&#8217;re talking and explaining why they should or shouldn&#8217;t do something, right? So it&#8217;s become a thing where he actually turns that type of voice, where he goes, back in my day, and whenever we recount something. So it is that perspective of a parent saying, Well, we know better than you, because when we were growing up, this is how it was. But it&#8217;s not how it was. So I think the movie points to having those conversations, taking those different perspectives, and that might be one of the solutions. Okay, play the game and get an understanding of what your kids are doing and well, whether you like it or not, whether you agree or not, but that should open your eyes and give you a slightly different perspective. So I think that&#8217;s, again, good messages from the story and to be honest, for me, when I was watching the movie at first, the moment where they post the message on his blog that he had passed away, and then you start getting all the blips for all the emails, and then another one. .&nbsp;</p>



<p class="wp-block-paragraph">25:19&nbsp;</p>



<p class="wp-block-paragraph">DH:.. and another one of them. I cried I had a bit of teary eyes during that whole part of it, and it was a very touching moment, because, it&#8217;s intense. Now I will say, I mean, I might as well just give a bit of a review of the movie. The second half of the movie, to me, was a hard watch, the movie gets, it gets pretty dark, right? He&#8217;s getting sick, and it&#8217;s not like an uplifting like Saturday night at the movie theater, it&#8217;s intense, and I guess we expected it, and there&#8217;s some really emotional stuff that happens. It&#8217;s not just that he&#8217;s getting sick, because we kind of know that&#8217;s going to happen, but we&#8217;ll talk a bit more about this later, but overall, I think the movie is really, really important, and really looks at this gaming thing from a whole different angle than what we&#8217;re used to seeing, but it is not a super easy movie to watch, just so people can brace themselves. Alright, let&#8217;s switch up a little bit, because you had written down that you wanted to talk a little bit about this whole concept of disability and terminal illness, so I&#8217;m curious what you wanted to talk about here.&nbsp;</p>



<p class="wp-block-paragraph">26:22&nbsp;</p>



<p class="wp-block-paragraph">LD: Well, for me, one of the bleaker parts of the story is having a child, having a family member that has a terminal illness. So I take a look at some folks, some families, some people, where their lives revolve around this person, right? They can&#8217;t travel, they can&#8217;t do this, they can&#8217;t do whatever, because they have to take care of, or when they do travel, it has to be in a slightly different way, right? So it&#8217;s just calling out how people with those types of challenges, they sacrifice a lot, and they&#8217;re like mini heroes, I guess, in being able to…&nbsp;</p>



<p class="wp-block-paragraph">27:10&nbsp;</p>



<p class="wp-block-paragraph">DH: Not mini heroes, mega heroes.&nbsp;</p>



<p class="wp-block-paragraph">27:14&nbsp;</p>



<p class="wp-block-paragraph">LD: Mega heroes, for being able to basically give up a “normal life” in order to care for someone, right? So that&#8217;s a little bit of that, because when growing up, we didn&#8217;t really have anybody with any terminal illnesses. But my grandfather, before he passed away, had Alzheimer&#8217;s and kidney failure, so we had to go through dialysis. So there were years where basically, our schedules revolved around him, right? Someone always had to be home to change his dialysis bag. Someone had to do whatever, and we couldn&#8217;t travel as much. So, and in full honesty, there was my part being a selfish kid, there&#8217;s a little bit of resentment.&nbsp;</p>



<p class="wp-block-paragraph">DH: You were gaming.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">28:04&nbsp;</p>



<p class="wp-block-paragraph">LD: Well, if I was gaming, I’d have to interrupt my game to, like, change my grandfather&#8217;s dialysis bag. So again, what an idiot, or what a selfish being I was.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">28:20&nbsp;</p>



<p class="wp-block-paragraph">DH: We all are, ultimately, right.&nbsp;</p>



<p class="wp-block-paragraph">28:22&nbsp;</p>



<p class="wp-block-paragraph">LD: But it&#8217;s one of those things where it&#8217;s just calling to mind where there are folks who are very privileged, and there are folks that make other sacrifices for the ones they loved, and it&#8217;s thinking about at some point, there&#8217;s probably going to be aging parents, that some of us are going to have to deal with some of that in life, and, yeah, who knows what sort of challenges. So it&#8217;s just putting another perspective, another piece of gratitude, I would say, for folks to just appreciate everybody&#8217;s healthy, and everybody&#8217;s able to do whatever you want, then, just count your lucky stars. So that&#8217;s what I wanted to talk a little bit about terminal illness or disabilities &#8211; have you encountered it in your life, or what sort of challenges has it brought forth?&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">29:23&nbsp;</p>



<p class="wp-block-paragraph">DH: I have not really dealt with this in the form of a child so much. I mean, I&#8217;ve seen it with my patients. I know in the families there&#8217;s a child that&#8217;s really ill, and you see how much pressure it puts parents under. You know, my dad has been ill with dementia for more than a decade, so you kind of see that decline, which many people have seen. I mean, fortunately, Duchenne and muscular dystrophy isn&#8217;t that common, so this isn&#8217;t something a lot of people encounter. I think the movie does a really good job of showing us, showing everybody, you know, what this illness is like, what the family has to go through, what Mats&#8217; life is like. I think it paints a really nice picture of that, because we need to see that as people. We forget about this stuff too easily, right? Like when we talk about healthcare policy or parenting, or even the role of video games in the world, right? We are always thinking about it from the standpoint of robust, young, healthy kids and their overstressed parents or something, right? But actually, there are people who have to deal with much, much more complicated variations of life, and I think this movie does a really good job of that. And in that sense, I do think it&#8217;s actually a movie that people should watch. And, you know, even our children, as they get a little bit older, they should probably see it, and it gives a bit of sense of balance, you know. The things that you&#8217;re complaining about, they&#8217;re not real issues, right? When you see what Mats has to go through. So on this level, kudos to the movie for showing us this.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">30:53&nbsp;</p>



<p class="wp-block-paragraph">LD: I like towards the end that, I think they had a section where he was doing some public service announcements on the use of some of the mobility tools or access tools for someone with handicaps or disabilities and things like that, so the little devices that he can click and access and but that&#8217;s another amazing part, where if you have limited mobility, he was still able to navigate an entire world, but he couldn&#8217;t really stretch and push or type or all that stuff. And I guess one of the points in the movie is that they didn&#8217;t, or he&#8217;d never want to join their group calls or group meetings or something, because my guess is that he probably couldn&#8217;t have. Couldn&#8217;t speak as well.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">DH: If he had to do a group call, and it&#8217;s like a video chat, people would see that he looked strange to them, right? He could have turned off his camera, he was being self-conscious about that too, which all makes sense. I don&#8217;t think I thought about the gratitude part of this movie until you talked about it just now. But it does really hit me, because I&#8217;ve been thinking about it so much from the academic viewpoint, right? Like, what is the video game angle, and the humanities angle, but I think this very basic angle is actually probably the best way to view the movie, because it really gets to the underlying humanity of it, that most of us should actually appreciate where we are and stop worrying about stuff.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">Score one for the non-clinician, yeah.&nbsp;</p>



<p class="wp-block-paragraph">32:37&nbsp;</p>



<p class="wp-block-paragraph">LD: I have started on this trek to always see if I can pull it back to gratitude, right? Because, to be honest, wherever you are, if you&#8217;re able to listen to this podcast, you&#8217;re in a good spot, right? Think about that. So I&#8217;ve been saying this to a bunch of folks, is that your worst day is someone else&#8217;s dream.&nbsp;</p>



<p class="wp-block-paragraph">The fact that you have access to a podcast player means you probably have access to some sort of smartphone device, right, and data and stuff, that you&#8217;re probably in the first world, right?. And yes, you may have challenges or money problems or whatever, but at least you don&#8217;t have Duchenne&#8217;s. And for those of you who do, and you&#8217;re listening, props to you, but the fact that you&#8217;re able to listen here right, and do whatever it is that you can do, there&#8217;s so much to be grateful for.&nbsp;</p>



<p class="wp-block-paragraph">33:50&nbsp;</p>



<p class="wp-block-paragraph">DH: Absolutely. Now, one thing I wanted to talk a little bit about is this whole business of what&#8217;s the purpose of life? This movie does get to this in the later part, right? Mats himself says something like, I need to know. I&#8217;m just gonna paraphrase, it&#8217;s not a direct quote, but he basically says something like, I need to know that I affected other people&#8217;s lives so that my life will have meaning. Otherwise, the whole point of it would have been for not, right? And this, to me, is a really interesting take, because this is a kid. I mean, he&#8217;s young. I&#8217;m gonna call him a kid, but he&#8217;s like, 20 something, but he&#8217;s a young guy with a terminal illness. He, more than anyone else in the world, probably could just say, screw it, and be selfish and be like, You know what? They gave me a bad hand, I&#8217;m miserable, like, I&#8217;ll just enjoy my life and whatever. But he actually says, I want to make a difference to people, and he does make a difference. He goes out of his way in the game to get to know people, befriend them, befriend them in a real, in a meaningful way, and does affect their lives. He brings people closer to their families and brings them closer to emotional healing many times, it&#8217;s recounted throughout this movie. I found it fascinating that he had such a strong will to do this. And sometimes the rest of us, getting to your point, we forget about gratitude, right? We&#8217;re miserable, even though we have the ability to do all this stuff to help people and be part of the community and care. We&#8217;re too busy being annoyed about the state of the government or taxes and whatnot, right? So I thought this was a really interesting thing, that he had this ambition to help people. That&#8217;s one part. The second thing that I thought was really interesting was that, as the movie goes on, and this is where I think it becomes a bit of a tough watch, because, it&#8217;s not just that he&#8217;s getting physically ill. The fact that he&#8217;s hiding the truth of his actual condition from all the other players in the game starts to take a toll, right? Like, at some point he starts to, he starts to have difficulty, I think it&#8217;s with one of his fingers. He can&#8217;t push the buttons fast enough. And part of <strong>World of</strong> <strong>Warcraft</strong>, you actually have to participate in fights against villains and monsters. He can&#8217;t fight in those things where he gets defeated easily, right? And people don&#8217;t really understand why, and he can&#8217;t explain it. He starts to get testy with the people around him. He sees that his girlfriend in the game is talking to another guy and gets jealous and starts to try to pit people against other people, right? He becomes a little bit of a nasty individual for a while, until the other players in the game decide that we need to have an intervention. Mats, what is going on with you? This stuff was really strange to watch because it was reenacted in the form of the game with the video game character graphics, but all at the same time, it was so real, like, this is actual real life. This happens to people, right? And he&#8217;s exhibiting all the classical signs of someone who&#8217;s just very angry and emotionally unconnected. And then where he finds healing at the end is when he finally confronts, is confronted by someone, and tells them the truth, and people start to understand that, oh, that&#8217;s why he&#8217;s being this way. And they start to understand. And I was just like, this is so heavy. This is so heavy and what he needed all along was actual emotional connection, right? And somehow he maybe couldn&#8217;t articulate it, but he needed that, even though this is a kid who has a loving family, he&#8217;s got a terminal illness, he has no way to articulate, but what he really needs is to be connected to the people around him and to find meaning in his life and to be helping others. I found that the fact that that underlying humanity could come through despite the Duchenne and the fact that he was almost like really end-stage at this point to be really moving.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">37:54&nbsp;</p>



<p class="wp-block-paragraph">LD And I guess going back to your original question about the purpose of life, perhaps he found it.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">And for me, it&#8217;s to help others, and it&#8217;s the impact. On my side, the people I connect with are always on the career coaching piece, and people are looking for titles and money and moving up. But ultimately, when you get down to it, it&#8217;s how am I contributing to others? And what Mats said is like, how am I changing the world? How do I matter? But it&#8217;s not about changing the world. It&#8217;s about changing your world, right? So impacting the people around you, whether it&#8217;s your family, whether it&#8217;s the <strong>World of</strong> <strong>Warcraft</strong> and people online. I think they had his guild that he joined, and people were helped, and all those messages that he got were because, oh, Mats helped me through a trying time in my life, and he listened, and he paid attention. So sometimes just a sympathetic ear is all it takes to help and being there. It doesn&#8217;t necessarily take money or power or fame, but it&#8217;s that contribution, it&#8217;s that helping out and being there and present. Seems like he found his purpose. Now that doesn&#8217;t mean everybody should go online and start becoming a therapist for everybody there, but figuring out what is that purpose for, for you is always a very interesting journey that you’ll have to be on. But yeah, it seems like even someone with Duchenne&#8217;s who shouldn&#8217;t be able to or has everything stacked against them, still has that ability, then I guess there&#8217;s hope for the rest of us.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">39:48&nbsp;</p>



<p class="wp-block-paragraph">DH: I would hope so, I would hope so. Now, anything else you want to add about the movie?&nbsp;</p>



<p class="wp-block-paragraph">39:56&nbsp;</p>



<p class="wp-block-paragraph">LD: No, I think we covered a lot of it. To me, it&#8217;s taking away that broad brush to say that all video games are bad. Oftentimes, you don&#8217;t understand it as well, because it&#8217;s one of those areas where I think people find escape, people find peace, people find connection and relationships in different ways, For most people, it&#8217;s real life, meeting people at events, at parties, at school get-togethers but more and more, it’s meeting people online. And that&#8217;s more and more the norm. But again, what is the world becoming, right? Over the Christmas holidays, we actually got a VR headset. And there is this world out there. Now, right now, it’s not really that clear, but I could see it eventually. You could actually immerse yourself in this. And maybe something similar to what Ibelin, what Mats had gone through. There&#8217;s going to be more and more people lost in that world, where I can picture professional networking events, where you just attend and you have this avatar, and you&#8217;re walking to a conference that&#8217;s happening, I don&#8217;t know, halfway across the world, right? And you meet and “build” relationships there, as if you were there, but you&#8217;re online, right? So it&#8217;s going to be a different world. And the interesting part, I think you touched on it, is where the medical establishment doesn&#8217;t know how to deal with it.&nbsp;</p>



<p class="wp-block-paragraph">41:48&nbsp;</p>



<p class="wp-block-paragraph">DH: Well not just medical, l the education establishment doesn&#8217;t know how to handle it. Parents don&#8217;t know how to handle it. Nobody knows how to handle this stuff. It&#8217;s too new.&nbsp;</p>



<p class="wp-block-paragraph">41:56&nbsp;</p>



<p class="wp-block-paragraph">LD: I think you had it right, where, at the end of the day, it&#8217;s all about connection. I think that&#8217;s the key, whether it&#8217;s in real life, whether it&#8217;s online, whether it&#8217;s wherever, once you find that connection, once you find your tribe, oftentimes that&#8217;s where you will spend the most of your time. So I actually had a conversation about Maslow&#8217;s hierarchy of needs, where you have, the physiological needs and then safety, and then relationships is somewhere in the middle. Well, maybe he got it wrong, where relationships need to be the foundation. Because if you think about it, for babies, like, what can they do? So it&#8217;s the relationships and the parents, and it&#8217;s everyone around them that takes care of them. And if you think about it, so Mats&#8217; family, or anybody else who has a strong set of folks that take care of them, they will always be taken care of, right? They will take care of their physiological needs, right? Whereas someone who has all their physiological needs, all the money, all the food, everything set without relationships, it&#8217;s a mess. It&#8217;s a mess, right? So maybe if we focus on our relationships, and actually, I&#8217;ve been talking to more folks where people are focusing on their physical health. Great. You go to the gym, workout three days a week, 60 minutes, all that sort of stuff. Awesome. Now more folks are taking care of their mental health, where I&#8217;m meditating 5, 10 minutes every day, right? Cool, awesome. But how many of us actually focus on our social health, right? Do we allocate 30 minutes a week, an hour a week, to reconnect with friends, family, whomever is closest to us, just to say hi? And I&#8217;m guilty of that myself, right? Where I kind of wish that I had a better relationship with my siblings, right? So we have, like, a weekly Zoom chat with my family. But all we talk about is superficial stuff. How&#8217;s the week? Oh, yeah, we had this, this happen, blah, blah, blah, blah, blah. But what about, like, the more deeper conversations with the ones closest to you, your good friends and stuff like, how much time do we allocate for that? And if that&#8217;s as good, or should be as good as our mental or physical health, then I think you hit the nail on the head with that whole connection piece, as you were talking about that. I think that&#8217;s the most important part, which I think the movie is highlighting in spades.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">44:42&nbsp;</p>



<p class="wp-block-paragraph">DH: Oh, you said it so well, I&#8217;m not going to add anything to that point. The last thing that I will add is that this movie did teach me a lot about medical humanities. I never really appreciated the role of technology in medical humanities, right? I guess maybe because I always thought about the history of medicine and I know that medicine is always advancing forward, and that there&#8217;s new research and new medical treatments, like we talked about the new treatments for cancer last month. But the world is always changing, and because the world is changing and throwing these new technologies at us, it creates new scenarios. So there&#8217;s all this new cutting-edge stuff happening in medical humanities. This stuff is actually very, very fresh, right? And I thought that was eye opening to me, because I had this idea when we started the podcast, you and I would read some old books, and that would be it. But this is actually much more cool than that. We&#8217;re talking about tech and tech is a fundamental part of it. It was in the cancer book too, right? The cancer book was all about how the world keeps pushing forward. We&#8217;re finding new ways to combat new illnesses that are developing. Here, you know, there&#8217;s going to be good and bad for video games, right? It&#8217;s going to create some problems. It&#8217;s going to solve some other problems. It&#8217;s all very convoluted and complex, and it&#8217;s good that we&#8217;re able to have a conversation to get some of these ideas out there.&nbsp;</p>



<p class="wp-block-paragraph">46:09&nbsp;</p>



<p class="wp-block-paragraph">LD: I&#8217;d echo all that sentiment, and I guess we&#8217;re in early days, because this is medical humanities, but as humans, we&#8217;re evolving, and technology is helping us to evolve. So if we were to record another podcast like this in a year, in five and 10 years, who knows what the next advancement will be, and yeah, we might have been like, ah, remember back in 2025 when we&#8217;re talking about blah blah blah, back in my day, and blah, blah, blah, those types of things.&nbsp;</p>



<p class="wp-block-paragraph">46:44&nbsp;</p>



<p class="wp-block-paragraph">DH: Absolutely. But overall, I&#8217;ve really enjoyed the movie. It is hard. It&#8217;s not an easy movie to watch, but it gives you a lot to think about. I think people should try to check it out. There aren&#8217;t a lot of movies that jump out at me as being medical humanities things that has this much to say, and I think this is one of them. One thumb up from me.&nbsp;</p>



<p class="wp-block-paragraph">47:08&nbsp;</p>



<p class="wp-block-paragraph">LD: I&#8217;d agree. Well, it&#8217;s not a no-brainer popcorn flick on the weekend, so it takes a little bit more of effort and brainpower and just making sure that you&#8217;re there and if you have a box of tissues for key moments, that might be helpful too. I agree. I&#8217;d give it another thumbs up.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">47:26&nbsp;</p>



<p class="wp-block-paragraph">DH: We&#8217;re all evolved men. There&#8217;s nothing wrong with crying once in a while, it&#8217;s all part of the emotional connection thing. So that&#8217;s our discussion about Ibelin. Check out the movie. We highly recommend it. There&#8217;s a lot to think about. If you have any thoughts, comments about the movie, if you&#8217;ve seen it, or just questions for us, hit us up on the MedHum website. There&#8217;s a link where you can comment, we&#8217;ll try to reply. Otherwise, see you in a month.&nbsp;</p>



<p class="wp-block-paragraph">48:18&nbsp;</p>



<p class="wp-block-paragraph"><strong>Apollo On Call</strong> is produced by MedHum.org. Special thanks to my co-host, Mr. Luki Danukarjanto. To hear some more of Luki and I discussing books, please check out the W5H Book Club Podcast available on Spotify and Apple or wherever you get your podcasts. Today&#8217;s theme song is Un Sospiro performed by my wife, Dr. Justina Sam. For more medical humanities content, please check out MedHum.org.&nbsp;</p>



<p class="wp-block-paragraph">Thanks for listening.&nbsp;</p>



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<h5 class="wp-block-heading">The Remarkable Life&nbsp;of Ibelin Trailer</h5>



<figure class="wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio"><div class="wp-block-embed__wrapper">
<iframe loading="lazy" title="The Remarkable Life of Ibelin | Official Trailer | Netflix" width="1310" height="737" src="https://www.youtube.com/embed/lM_hkJ0Rl-c?feature=oembed" frameborder="0" allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share" referrerpolicy="strict-origin-when-cross-origin" allowfullscreen></iframe>
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<p class="has-small-font-size wp-block-paragraph">Images of Mats Sheen and Ibelin from Mats&#8217; Facebook page and   Medieoperatørene / Euforia</p>
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