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	<title>neurology &#8211; medhum.org</title>
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		<title>Alphonse Daudet and Intractable Pain</title>
		<link>https://medhum.org/article/reflection/jack_coulehan/alphonse-daudet-and-intractable-pain/</link>
					<comments>https://medhum.org/article/reflection/jack_coulehan/alphonse-daudet-and-intractable-pain/#respond</comments>
		
		<dc:creator><![CDATA[Jack Coulehan]]></dc:creator>
		<pubDate>Tue, 26 May 2026 12:59:22 +0000</pubDate>
				<category><![CDATA[Reflection]]></category>
		<category><![CDATA[chronic pain]]></category>
		<category><![CDATA[compassion]]></category>
		<category><![CDATA[depression]]></category>
		<category><![CDATA[Disability]]></category>
		<category><![CDATA[empathy]]></category>
		<category><![CDATA[France]]></category>
		<category><![CDATA[literature]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[Memoir]]></category>
		<category><![CDATA[morphine]]></category>
		<category><![CDATA[neurology]]></category>
		<category><![CDATA[neuropathy]]></category>
		<category><![CDATA[resilience]]></category>
		<category><![CDATA[suffering]]></category>
		<category><![CDATA[syphilis]]></category>
		<guid isPermaLink="false">https://medhum.org/?p=14946</guid>

					<description><![CDATA[Alphonse Daudet’s little book invites us to imagine ourselves living, at least for a little while, in the land of pain]]></description>
										<content:encoded><![CDATA[
<p class="wp-block-paragraph">In 1891 the French novelist and playwright Alphonse Daudet wrote, “Doctors are very poor at discerning things. When a patient says to them, ‘I’ve noticed that an egg taken in the morning on an empty stomach brought relief on such-and-such a day,’ they note the observation, but issue the same prescription as for all their patients.” (pp.59-60) Daudet had a lot of experience with doctors. He contracted syphilis as the age of 17, soon after arriving in Paris to start his literary career. More than two decades later, he suffered from tabes dorsalis, a form of tertiary syphilis that progressively destroys the structures of the dorsal column of the spinal cord, leading to lower extremity ataxia, muscle atrophy, and intractable neuropathic pain. From the early 1880s until his death in 1897, Daudet sought help from the leading neurologists of his day, including J. M. Charcot and C. E. Brown-Séquard, but he came to believe that none of these doctors were interested in his experience as a patient. He wrote, for example, that the famous Charcot, who frequently sent patients to the mineral baths at Lamalou, had never personally visited the place to see how his patients were doing.</p>



<p class="wp-block-paragraph">Daudet tried all sorts of therapy, including mashed bulls’ testicles and elixir of guinea pig. Nothing worked, with the exception of large quantities of morphine and chloral hydrate, which made his life bearable. Daudet also coped with his intractable pain by writing about it. He planned to write a complete memoir of his life with pain, but by the time of his death in 1897, he hadn’t gotten farther than 60-odd pages of notes and reflections. About twenty-five years ago, the English author Julian Barnes translated and collected these fragments into a small jewel of a book called&nbsp;<em>In the Land of Pain.</em><sup>1</sup></p>



<p class="wp-block-paragraph">The title is illustrative. Those who suffer from chronic pain live in a different country from the healthy, and they gradually find themselves speaking a language that others don’t understand. At first, Daudet introduces details of his discomfort into conversation but soon realizes how repetitive and boring this is to his friends. “Pain is always new to the sufferer,” he writes, “but loses its originality for those around him. Everyone will get used to it, except me.” (p. 19) Daudet finds himself living in a land where suffering is pervasive, “Pain finds its way everywhere, into my vision, my feelings, my sense of judgment; it’s an infiltration.” (p.23) Toward the end he writes, “I’ve passed the stage where illness brings any advantage or helps you understand things; also, the stage where it sours your life, puts a harshness in your voice, makes every cogwheel shriek.” (p. 65)</p>



<p class="wp-block-paragraph">Although Daudet was not known as a poet, many of these presumably random notes are, in fact, miniature poems. Consider this example: “In the dining room: the man who quite suddenly finds himself unable to read the menu. His wife bursts into tears and leaves the table…” (p. 63) And here is another: “The hotel. The bell-board. The bath times. / Solitude. / Encroaching darkness.” (p. 65)</p>



<p class="wp-block-paragraph">One of the more depressing aspects of medicine today is the fact that many doctors are still “very poor at discerning things,” at least when it comes to pain. I get a knot in the pit of my stomach whenever I hear a resident discussing whether a patient’s pain is “real” or “imaginary,” or making a cynical comment about drug seeking behavior, especially when the resident herself has prescribed a grossly inadequate course of analgesia. Some of my colleagues believe that a person has to be visibly anguished before they take seriously his reported experience of severe pain. And others get exasperated with patients who describe having more pain than their condition (according to the doctor) warrants, and tell them, “You’re overreacting,” or “It’s all in your head.” When I hear this, I want to shake the physician by their shoulders and yell, “Of course it is! All pain, no matter what causes it, exists in the head. Where else could the experience be generated?”</p>



<p class="wp-block-paragraph"><em>In the Land of Pain</em> illustrates that chronic pain sufferers can live calm, productive lives despite constant agony. Daudet continued writing, publishing, and socializing until the end of his life, even though he wrote, near the beginning of his journal, “My friends, the ship is sinking, I’m going down, holed below the water line.” (p.7) At the same time, the author’s strength, compassion, and humor illuminate his little book. He emerges as a generous person, who was well loved by his contemporaries. If you were his physician, what would your assessment be?</p>



<p class="wp-block-paragraph">Would you accuse him of exaggerating his pain because he doesn’t appear desperate?</p>



<p class="wp-block-paragraph">Daudet refers to his pain as an “unwanted guest,” to whom he intends to give “no special attention.” (p. 79) At another point he reflects on “the ingenious efforts a disease makes in order to survive.” (p. 26) The writer never questions his enemy’s ultimate victory, but neither does he turn in upon himself. He remains a source of joy to others, especially his family, as indicated in this note: “I only know one thing, and that is to shout to my children, ‘Long live life!’ But it’s hard to do so while I am ripped apart by pain.” (p.49)</p>



<p class="wp-block-paragraph">Chronic pain remains challenging for doctors to treat. One set of barriers are the moral and legal concerns about overuse of opioid analgesics. Questions about the threat of addiction, or the possibility of being manipulated, favor resisting the patient’s suffering, rather than responding with compassion. Many are uncertain about how to proceed because they lack knowledge of treatment protocols that include nonpharmacologic modalities, or referral to pain control clinics for invasive procedures. Alphonse Daudet’s little book invites us to imagine ourselves living, at least for a little while, in the land of pain.</p>



<p class="has-palette-color-5-background-color has-background has-small-font-size wp-block-paragraph">1. Daudet A. <em>In the Land of Pain</em>. Edited and translated by Julian Barnes. New York, Alfred K. Knopf, 2002. (page numbers indicated in the text).<br><br>Photo of Alphonse Daudet from Wikicommons.</p>



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			</item>
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		<title>Imagining Phantom Limb Pain</title>
		<link>https://medhum.org/multimedia/video/russell_teagarden/flights-by-olga-tokarczuk/</link>
					<comments>https://medhum.org/multimedia/video/russell_teagarden/flights-by-olga-tokarczuk/#respond</comments>
		
		<dc:creator><![CDATA[Russell Teagarden]]></dc:creator>
		<pubDate>Sat, 20 Sep 2025 21:28:00 +0000</pubDate>
				<category><![CDATA[Reflection]]></category>
		<category><![CDATA[Video]]></category>
		<category><![CDATA[amputation]]></category>
		<category><![CDATA[anatomy]]></category>
		<category><![CDATA[biomedical]]></category>
		<category><![CDATA[body parts]]></category>
		<category><![CDATA[history]]></category>
		<category><![CDATA[literature]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[mind-body]]></category>
		<category><![CDATA[mystery]]></category>
		<category><![CDATA[neurology]]></category>
		<category><![CDATA[Nobel]]></category>
		<category><![CDATA[Olga Tokarczuk]]></category>
		<category><![CDATA[Pain]]></category>
		<category><![CDATA[phantom limb pain]]></category>
		<category><![CDATA[preservation]]></category>
		<category><![CDATA[Prize]]></category>
		<category><![CDATA[suffering]]></category>
		<category><![CDATA[surgery]]></category>
		<category><![CDATA[theology]]></category>
		<guid isPermaLink="false">https://medhum.org/?p=11625</guid>

					<description><![CDATA[The “fragmentary novel”   Flights, offers literary descriptions of phantom limb pain by imagining what a known amputee from the past may have gone through.]]></description>
										<content:encoded><![CDATA[
<h4 class="wp-block-heading">Reading Flights by Olga Tokarczuk&nbsp;</h4>



<p class="wp-block-paragraph">The nature of phantom limb pain has bedeviled amputees and bewildered physicians and surgeons for centuries; <a href="https://pubmed.ncbi.nlm.nih.gov/32885523/" target="_blank" rel="noreferrer noopener">up to 87% of amputees</a> experience it during their lifetime. Consistently effective treatments remain elusive. Biomedical texts on the subject are at once complex and speculative. Olga Tokarczuk, in her 2018 novel, <em>Flights</em>, imagines what phantom limb pain could be like for someone, and the desperate search for relief it can produce.&nbsp;</p>



<figure class="wp-block-image alignright size-full is-resized"><img fetchpriority="high" decoding="async" width="400" height="400" src="https://medhum.org/wp-content/uploads/2025/03/Screen-Shot-2025-03-22-at-21.12.32-e1742692956220.png" alt="" class="wp-image-9752" style="width:280px" srcset="https://medhum.org/wp-content/uploads/2025/03/Screen-Shot-2025-03-22-at-21.12.32-e1742692956220.png 400w, https://medhum.org/wp-content/uploads/2025/03/Screen-Shot-2025-03-22-at-21.12.32-e1742692956220-300x300.png 300w, https://medhum.org/wp-content/uploads/2025/03/Screen-Shot-2025-03-22-at-21.12.32-e1742692956220-150x150.png 150w" sizes="(max-width: 400px) 100vw, 400px" /><figcaption class="wp-element-caption">Olga Tokarczuk </figcaption></figure>



<p class="wp-block-paragraph"><em>Flights</em> centers mostly on the narrator’s travels among different places and across different times. It comprises mostly packets of individual story vignettes and fragments; some short, some long; some fictional; some real, some both. And though many different stories are told with many different characters about many different subjects, something about travel connects them all.&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">Certain preoccupations manifest themselves in various parts of the book. One in particular concerns the technical aspects of preserving human body parts, which comes into play in a story fragment involving phantom limb pain. The main character is Philip Verheyen, who is a real historical figure known as a renowned Flemish surgeon and anatomist of the late seventeenth and early eighteenth centuries, and as the author of <em>Corporis humani anatomiae</em> (1710).&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">As Tokarczuk tells the story, Verheyen was twenty-eight-years old in 1676 during his second year of university in Leiden when he scraped his left calf on an exposed nail of the stairway leading to his rented lodgings. His pants were torn and his skin broken. Though the injury seemed minor at first, it evolved into a raging infection that later required below-the-knee amputation. &nbsp;</p>



<p class="wp-block-paragraph">With the care of his landlady, Verheyen recovered after which he was seen “tapping his peg over the uneven paving stones of Leiden,” to attend lectures on the subject of anatomy at the university medical center.” (p. 195) In a matter of a few weeks after the amputation, however, the pain started.&nbsp;</p>



<p class="has-palette-color-5-background-color has-background wp-block-paragraph">The pains came at night as his body was relaxing and slipping across the uncertain boundary between waking and sleep…He would have the impression that his left leg was numb, and that he absolutely had to get it into the right position—he felt his toes tingling, an unpleasant sensation. He fidgeted, half conscious. He wanted to move his toes, but the unperformability of that movement awoke him completely. He would sit on the bed, tear the blanket off himself, and look at the aching place—it was some thirty centimeters below the knee, there over the rumbled sheet. He would close his eyes and try to scratch it, but he touched nothing, his fingers combed the void in despair, giving him no relief. (p. 203)&nbsp;</p>



<p class="wp-block-paragraph">In imagining how Verheyen could respond to his desperation for relief, Tokarczuk draws on his intense interest in preserving human body parts. Before the amputation, he begs the surgeon to “preserve the removed leg.” (p. 193) The surgeon followed Verheyen’s detailed instructions for preparing his amputated limb by placing it “in a glass vessel filled with a balm of Nantes brandy and black pepper.” (p. 193) Verheyen kept it “on his headboard or stretched scarily out on the table.” (p. 196) Eventually, he looks to it as a possible source of relief.&nbsp;</p>



<p class="has-palette-color-5-background-color has-background wp-block-paragraph">Once, in a fit of despair, when the pain and itching were driving him mad, he stood and with trembling hands lit a candle. Hopping on one foot, he moved to the table the vessel with the cut-off leg [rested]…He extracted the limb and in the candlelight tried to locate in it the reason for the pain…He sat down on the floor, stretched his legs out before him, and laid the amputated limb on the place just below his left knee. He closed his eyes and groped for the painful place. His hand touched the cold piece of flesh—but could not reach the pain. (pp. 203-204)&nbsp;</p>



<p class="wp-block-paragraph">Verheyen’s maneuvers and observations did not provide him relief. With his medical training, he begins thinking about mechanisms that could be causing this excruciating and frustrating phenomenon.&nbsp;</p>



<p class="has-palette-color-5-background-color has-background wp-block-paragraph">What is it that awakens me, when I feel pain and suffering, since my leg has been separated from me and is floating now in alcohol? There is nothing pinching it, no reason for its suffering, no such pain that can be logically justified, and yet it exists. Now I look at it and simultaneously feel in it, in the toes, unbearably hot, as though I were submerging it in hot water, and this experience is so real, so obvious, that if I were to shut my eyes, I would see in my own imagination the bucket of water overly heated and my own foot submerged from toes to ankle. I touch my bodily existing limb in the guise of a lump of preserved flesh—and I don’t feel it. I feel, meanwhile, something that does not exist, it is in a physical sense an empty place, there is nothing there that might give any sensation whatsoever. The thing that hurts does not exist. A phantom. Phantom pain. (p. 208)&nbsp;&nbsp;</p>



<figure class="wp-block-image alignright size-full is-resized"><img decoding="async" width="641" height="1000" src="https://medhum.org/wp-content/uploads/2025/09/81NErEOOtML._UF10001000_QL80_.jpg" alt="" class="wp-image-11629" style="width:280px" srcset="https://medhum.org/wp-content/uploads/2025/09/81NErEOOtML._UF10001000_QL80_.jpg 641w, https://medhum.org/wp-content/uploads/2025/09/81NErEOOtML._UF10001000_QL80_-192x300.jpg 192w" sizes="(max-width: 641px) 100vw, 641px" /></figure>



<p class="wp-block-paragraph">He comes up empty.&nbsp;</p>



<p class="wp-block-paragraph">Tokarczuk cannot imagine Verheyen would let the issue lie and accept it simply because he is without an anatomical or pathophysiological explanation. She knows that before he began his schooling in medicine, he was studying theology towards becoming a Catholic priest. In fact, in the book and in his real life, the amputation disqualified him from Catholic priesthood. So, Tokarczuk brings his theological training into thoughts he could have about this phenomenon that is torturing him from spiritual realms, and in this way leaving Verheyen to contemplate the mind / body relationship. He concludes, “The body is something absolutely mysterious.” (p. 209)&nbsp;&nbsp;</p>



<p class="wp-block-paragraph">It still is.&nbsp;&nbsp;</p>



<p class="has-small-font-size wp-block-paragraph">Web image generated with Dall-E 2</p>



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